I think both Daniella and Dakota have good ideas here. However, if this is the result of an inflammatory process, someone needs to address this part of the problem. If inflammation is causing the pain, a more agressive approach may need to be taken for treating this, which in turn may give some pain relief in itself.

If you are going to start on some of the drugs mentioned, it is a good idea not to be alone considering your depression. Anyone can correct me if I am wrong, but I believe that a psychiatrist is usually more than willing to try and work out a regimen for pain treatment, but I am not sure that this would be the right person to address the inflammation issue.

I went to a psychiatrist early on after being diagnosed with PN. She was just wonderful and tried her best to help me with the pain issues. However, my problems are basically due to inflammation and she wanted me to address this part with my Immunologist.

If you respond to this post, I will be out-of-pocket for a few days, so hopefully others will post here with other suggestions.

Cathie

Rsd
 

You might want to check the reflex sympathetic dystrophy board, as it sounds as if you might have RSD from the trauma. Have you looked into that possibility?

no rsd
 

i do not have rsd-no swelling, no color change-just pain -11 am still in bed. dont want to walk on my burning stabbing legs and feet.
i am going mad.
steff

Like I said I don't have those rsd symptoms either but that my treatment is the same and how important it is for me to be on my legs. I was in bed for 4 months in the worst pain crying through vicadin. The only time I got out was very small errand. I had similar symptoms and still do but I had to push.Now I'm out of the bed full days and even am up to a short 15 minute walk. I'm in a lot of pain but from where i have come progress. I'm not saying this is for you but if I didn't gradually push myself through the pain and out of bed I feel I would be in the same place. I hope you follow up with more docs. The people here are very smart in what they are telling you and have been through a lot too. I'm sorry for your struggles but don't give up.

Steff:

Can't your doctor prescribe something for you. Many here take the fentanyl patch, or neurontin or lyrica.

You don't need a pain management doctor (that is if you can't find one near you). Any competent physician can write a prescription.

Here's hoping somebody relieves your pain.

Alan used to use the Lidoderm patches on his feet. He would wrap them around each foot. They worked.

Mel

I think that someday medical science will find that foreign material is not accepted well by at least some people's bodies... As I read other postings on these and other forums, I see a number of people with PN who have had foreign material placed or injected into their bodies. If there are no other factors to consider, I would be highly suspicious of this as a cause.

Whether it be an inflammatory response, a metabolic or chemical response, you still have to have something to give relief. Since prolotherapy has to do with an inflammatory response, if it were me, I would pursue seeing someone who deals with inflammation and hope that he/she could prescribe something to help control the inflammation...

I am so sorry you are having this trouble. I hope that someone will help you with this. Do you know if any of your labs have included testing for inflammation?

Cathie

inflam
 

i think that depression has stopped me from seeking help. when i go to the docs they all seem so hopeless. i will ask for more precise blood and a nerve con study. i am going for a second opinion too.
thanks

I think you have stated something that is a problem for a lot of us. I know it has been for me at times. That depression can keep us from seeking help sometimes. I know that has been a problem for me. We have to be persistant, but it is hard sometimes.

I understand and here you depression. Do you have supports to reach out to? I know how hard it is not to give up hope but you can't. I have to remind myself and today is super hard that people do get better and live normal lives. Its just about finding what helps you. I know you have not wanted to start new med but it also may help with the depression. Havey you thought about therapy too?Take care.

Steff DO go and not only ....
 

make that appointment for a second opinion, actually GO! No matter how hard or impossible it seems. Those wiser and with far more complex medical issues have given you their take on your situation. I do however KNOW that occasionally you can find a really sensible Doc who can connect the dots of your issues and likely help. I also know, that the depression part of what comes with all the pain is a very real and true demon. One big bad critter that all here have encountered to some degree or other. Our lives change! Period! One day we are just chugging along with our lives and then POOF! Life suddenly has to be totally redefined.
Our nerves [all the millions of miles of them in us] can die in seconds. They regrow - each one of those very many nerves [IF they can regrow-or new ones which are totally clueless about what to DO while growing and then connecting] grow at about 1centimetre per month. Less than 1/2 an inch for EACH.
We have to work to move and keep new ones learning and damaged nerves 'remembering'...It HURTS and it can take years...depending on the extent and nature of the damage.
We have each other to support us, but we have to take the initiative and get a doc who believes the PROBLEM and then do what all there is that CAN be done for it. It right now, mite not hurt for you to take a look at the Chronic pain forums here - there are wise folks there as well, with less of a diagnosis than we have, but they have good ideas on how to 'cope' in the interim.
All I can do is give you a :hug: for now, it's not the same as a real one, but sometimes even a 'remote' hug doesn't hurt? Keep faith, persevere and go get THEM! - j