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12-08-2023, 02:15 PM | #11 | ||
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Quote:
I am a few years older than you. I had a TBI when I fell into a wall/table in my living room 5 years ago. Ever since, I randomly will feel like I'm going to pass out when I'm walking or going up stairs, pulse zooms to the 150s(near-syncope). Only since the fall though. I started having pins/needles and a sense of vibration in my 4th and 5th digits after the brain injury, and it all faded over time so it was forgotten mostly. Finally did a Tilt Table test for the near-syncope last January, and when I passed out after the nitro (normal), I woke up and my entire body felt like it was vibrating so much I could almost *hear* it and felt like all of my skin was asleep/itchy... I'd sweat through my clothes. The sweat test was abnormal, but I never heard more about that. Even after I got home, it was so "loud" I didn't sleep for another 16 hours. It was far more intense and widespread than anything before. I found what your doctor said interesting because that's what it seems like to me but my docs just shrugged. One cardiologist believed me (he retired ha!), one was quiet and both neurologists have looked at me like that couldn't have changed that fast. Dude, know I'm sitting here crying my eyes out bc you've made me feel sane from 8000 miles and 18 months ago! More: I was urgently referredl to neuro, they did a skin biopsy, showed SFN and last week I started topiramate and that's that it seems. Live with it I guess? Would love to hear more about your story, I am going to look around for your posts. In any event, thank you for the validation. Means more than you know. Thank you! [any typos or incoherence are the direct result of topiramate ] |
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12-08-2023, 03:19 PM | #12 | |||
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Hi Habu,
I'm not Selenius, and I hope that you'll be hearing from Selenius soon, but I just wanted to say Welcome. I'm not knowledgeable about TBI and I hang out mostly on the MS forum but I've had a few head wounds over the years and am aware of how severe they can be. It might be a good idea to ask some questions about that abnormal sweat test, it seems to me--but that's just a thought.
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Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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