NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Medical Gaslighting (https://www.neurotalk.org/peripheral-neuropathy/258077-medical-gaslighting.html)

caroline2 11-28-2022 06:34 PM

Sounds good and hope you can get a response on the Low Total cholesterol.

echoes long ago 11-29-2022 11:10 AM

you might want to do a search on red yeast here, I seem to recall red yeast also being implicated in long term nerve damage. I personally wouldnt be taking statins if I had nerve damage already.

JKPHOTO 11-29-2022 03:08 PM

I did not see that about nerve damage, but yes, it also has a number of side effects as well.

JKPHOTO 12-04-2022 01:04 PM

100 percent sure now, it's the Statins...
Yet they continue to suggest and insist I take them. I won't anymore, and will shall see.

Lara 12-04-2022 03:57 PM

Whatever you do, please do it in consultation with the doctor or practitioner who is looking after that area of your health care.

I wonder if you can reduce at first rather than stop outright. I don't have any experience with stopping or even starting Statins so it's just a thought really. There have been others on the forums here in past years who stopped Statins and did well afterwards but I honestly don't know whether they did it slowly or straight up.

I just found this information on Healthline.
I don't know if it'll be of any help but there may be something in there to help you worry less about it.
Statins: How to Safely Stop Taking These Cholesterol Drugs

JKPHOTO 12-04-2022 04:22 PM

Thank you Ms. Lara,

They seem to be all of the same fraternity that wants to sell drugs that cause more serious problems, then deny any connection . It has been going on a long time, and getting abusive towards me.

Lara 12-04-2022 04:38 PM

The doctors are being that way towards you? Ugh, that's terrible. Sadly I know the situation myself. If I was a patient prescribed Statins, and I had no heart problems, or ever had a stroke in the past I'd not want to take them either, but it is all about the risk.

I'm not sure what it is that they're actually treating you for with the Statins. I mean have they actually told you that it's dangerous for you to stop the Statins and if they did, what did they suggest would happen?

A lovely lady who used to post here in the past stopped Statins due to side effects. They actually diagnosed her with something else erroneously but it turned out to be side effects. I'm not in contact with her anymore unfortunately so can't find out how she stopped.

P.S. What does your Osteopath or Naturapath suggest?

P.P.S. :eek: btw there are lots of threads in the New Members Forum and in Neuromuscular regarding people who stopped their Statins and did well.

Jomar 12-04-2022 05:06 PM

I took Lipitor for awhile and had some very weird vision and cognitive issues that did go away after I stopped it.. I talked with a pharmacist about how to stop and risk of doing so, plus a lot of online searches before stopping.. It was a low dose 10 or 20 mg...

My cholesterol was at 350's and triglycerides were high also back then.. but no heart risk factors and I cleaned up my eating with healthier fats and a lot less junk food since then.. Haven't really checked cholesterol levels in years..so not sure where they are now..
My brothers all take other statins I think.. One says fun/good memories I recall from child hood, he doesn't remember...:eek: Makes me wonder if statins are affecting his memory..

JKPHOTO 12-04-2022 05:34 PM

I was diagnosed with Type 2 diabetes over 20 years ago. Before I got out the door, they had me on Metformin and a Statin. Now I learn the both are linked to painful nerve damage and they will not admit it. I am not sure what the ND has in mind but somehow get off them. the ND is also a pain specialist. I have lost the will the fight them since they seem more concerned about CYA then trying to help me. But I still need a doctor since I do a BP med is important. I have been asking about this for years, but they insist on them. I think they are trying to shut me up, but I won't. The only think they have in their dirty bags of trick is stating a very old, probably untrue mental illness as a diversion. There is not enough Liquid Paper in the world to erase those old notes. Doctor senses depression, no S***. That's all for now.

FOLLOW THE MONEY

Lara 12-04-2022 06:08 PM

How about what Jomar did with asking the pharmacist about coming off it.

I may be wrong but it appears to me that your doctor/s have frightened you so much that you're scared to stop it.

As I said I have never taken a Statin so I don't know what sort of things happen when you stop it.

Many Doctors (and other people in general here there and everywhere) gaslight all of us who have anxiety or depression or other conditions in our past. It's very difficult to deal with I know but it's always going to happen. It's shameful that people do this and especially Doctors but that shouldn't stop you coming off a Statin if you don't want to take it. I don't take anything unless I understand why I'm needing it and actually want to take it and that is my right under the health laws.

In the past, meaning many years ago, I've taken advice from Doctors and taken medications that I certainly would not do today. In saying that I have been in treatment with something that does potentially cause life threatening and serious side effects so it was a matter of weighing up the pros and cons and in the end the pros won for me. It was very difficult to make the decision but it's given me several extra years of my life so far.

Many people in past posts have said they changed diets and took this or that and have done well. If you have no really serious underlying reason (past stroke or heart attack) for being on the drug then go off it. If you have blood pressure problems, buy your own device and take it from time to time to see how you're doing with that. I have seen doctors try to prescribe me BP med when there's nothing wrong with my BP except for what they call "white coat syndrome" and going to the doctor or hospital all the time is enough to raise anyone's BP if they're that way inclined. I have a wonderful GP and she knows my BP is normal unless I go to the hospital so I am grateful she is on top of that.


All times are GMT -5. The time now is 03:28 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.