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Old 10-03-2023, 01:01 AM #11
Rick1081 Rick1081 is offline
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I wasn't sure what to title this post but I'm here to talk about the significant improvement and healing I've experienced recently after so many years of suffering with this disease. I haven't posted in some time and it's been years since I was active on this forum, but I've been meaning to come back and post this. You can look up my posts under my profile to learn my story if that interests you, but suffice it to say I've been suffering from full body small fiber polyneuropathy with autonomic dysfunction for at least the last 10 years. I was diagnosed around 2015 I believe, though I'm not completely sure at this point without looking back at the paperwork.

I was diagnosed in my early 30s and suffered a great deal over the years, losing my chosen/preferred career, many friends, hobbies and goals, not to mention all the pain I suffered. I had it all unfortunately. I've watched as much body became less and less mine, and more and more something I no longer recognized. I became depressed and effectively gave up on life, just wasting each day and doing just what I needed to do to pay the bills. I lost more and more control of my body with each passing day. Don't get me wrong, initially I tried everything, from tracking down the best neurologists to try to determine the etiology of my idiopathic SFN to trying every diet and supplement. Nothing worked and I was left watching the disease progress and target new parts and functions of my body.

It had been years since I had given up, until by chance I came across something people are calling a carnivore or animal based diet. I had tried paleo for a while and the same with a ketogenic diet, but neither had truly changed anything for me, nothing remotely akin to the carnivore diet. I began a 6 month project of reading up on the diet and the mechanisms at work, watching YouTube videos with experts (scientists and physicians), reading pertinent research/studies, etc. I finally took the plunge recently and the change to my life has been dramatic to say the least.

There is a great deal of talk about various diets reducing inflammation and reversing disease processes but this one actually did it. Sure, I had some improvement on other diets, but it wasn't until I removed all plant foods that I saw an almost complete reduction of my inflammation. For example, on the keto diet, I could still eat some veggies and nuts and seeds, which were hugely problematic with their high levels of anti-nutrients. Of course, there is stress and other factors in life, but within weeks I resolved my IBS, fasciculations, joint pain, and so much more. My trigger finger disappeared within the first month, something steroidal injections has been unable to do, and which had lead my doctor to say I may lose the use of my hand and that surgery likely would not reverse the problem permanently. Most important of all, in the first week my neuropathic pain was reduced. Several weeks in my symptoms and pain were reduced by 95%! I still get the odd symptom but most of the time I forget about my disease. I donít even shake/vibrate intensely when I lie down to sleep. The first night I experienced this for the first time since this disease began I found myself reduced to tears. My energy levels, mood, and focus are as they were a decade ago, and I have no complaints. I don't believe in miracles but this way of eating has changed my life. With every passing week I notice more improvements and I can't wait to hit the 1 year mark. I also lose about 10-15 pounds a month, and lost 20 lbs the first month, though it does seem like Iím reaching my bodyís healthy weight now and so Iím not losing as much these days. My body is becoming leaner and more muscular and Iíve been able to lift weights again, which I didnít think Iíd ever be able to do.

My wife decided to be supportive and take the plunge with me and one of her autoimmune illnesses seems to have gone into remission. Her doctor was amazed but she said she would see her at the 6 month mark before she formally says it's in remission in her notes. My parents have also come on this journey with me and they have both reversed their high blood pressure and now have normal A1C after being diagnosed with pre-diabetes and diabetes. Their doctor also can't believe it and was initially convinced this way of eating and living would kill them. Now he says they should do whatever theyíre doing as itís working for them.

As I see it, this is just the beginning, and though I'm amazed it's fare to say I'm cautiously optimistic. Iíve always been that way. There's no doubt I'm cautious and would like to see how this is working for me in 1 yearís time, in 2 years, and so on, but it's fair to say nothing I did before this had this level of impact on my health, nothing has come close. The science makes sense and I'm basing my future projections on that and the results Iíve already seen. However, the human body is complex and only time will tell. Itís too early to say whether Iíve managed to do enough for to reverse my neuropathy or not allow it to progress. Itís far too early to tell and Iím not the kind of person to jump to conclusions and false hope. But I can say I feel stronger, have far less pain, and donít feel like I have neuropathy 95% of the time. Of course, the severe damage to my body is still there and, for example, I havenít gotten feeling back in my feet or my hands, and the like, but I have gotten some strength back. Iíve only just started and nerves regenerate quite slowly.

It's also important to mention how there were hiccups in the transition process and it takes some time to become fat adapted. If you have a high level of insulin resistance, this will be even more so the case, and your body may fight you when you remove the carbohydrates. There may be issues with sleep, GI related, and the like, but eventually your body should adapt, or mine and my family's did within days and weeks. What also helped me was working with a health coach, a profession I didnít know existed! Well, it does, and when I hit some road blocks, speaking to someone who knew more than me and who had worked with others in the carnivore space/community made a big difference. He also recommended a number of Youtube videos with firsthand accounts/personal experiences and with experts addressing the various issues and the science, as well as scientific papers, and I found all this helpful.

Itís all really simple, removing all the plant anti-nutrients from my diet, and eating nutrient rich animal foods, fats and protein, significantly improved my health. Iíd be lying if I said it didnít take some time to wrap my head around what a healthy diet really is after many years of thinking otherwise. Thinking back on my life, I now realize that my neuropathy began shortly after my many years as a vegetarian and the GI issues that resulted in at the time. Of course, I canít know for sure, but thatís when my gut health began to deteriorate and one disease after another began to spring up. Thatís neither here nor there though, and what matters is that for the first time in a decade I feel like I have my life back. I hope I continue to feel this good and to see improvement in my health.

The funny thing is that for me it wasnít difficult giving up the carbs because just after a few days I began to see one improvement after another, and when the nerve pain went, no amount of cravings could make me turn back. The cravings disappeared after a few days and Iím happy to eat this way the rest of my life if it means living like this, with better health and almost no pain. Though it would be something to see some reversal of my nerve damage! It should go without saying that this is not medical advice but my own experience, though if you have any questions, Iím happy to answer any I can in the comments or private messages.
Hi David,

I am new to this forum and I have been following your posts for the past couple of weeks. I am very happy to know that after years of suffering you were finally able to significantly reduce your symptoms.

I have been diagnosed with PN 3 weeks ago. It all started about 4 weeks ago when I suddenly started fighting mild numbness and a tingling sensation in the thumb and index fingers in my both hands. Sometimes I also felt it in my middle fingers. After a week I consulted a neurologist and he confirmed that it is PN. My blood reports came back normal. I am not diabetic and my B12 is 275. The doc couldn’t figure out the reason for my PN. He says that it could be an autoimmune condition.

It has been 3 weeks now and I feel mild pain in my heels when walking. Sometimes there is a mild burning sensation. It looks like PN is progressing. I have started taking Benfotiamine 400mg every day but there’s little difference. I know that supplements take a while.

I am in my early 40s and I am completely devastated. My daughter is just 5 years old and I have a lot of responsibilities on my shoulders. Although my wife has been very supportive, I would never wanna be a burden on my family.

I came across this post of your and this gave me a lot of hope. I can finally see some light at the end of the tunnel.

I’ve also read many posts where people have claimed that a carnivore diet has helped them a lot with neuropathy.

I want to start this diet but I am a bit concerned as my LDL is 136 and my total cholesterol is 229.

Nevertheless, if you don’t mind can I ask you whether you are still on a carnivore diet and is it helping?

I see that you were last active in April but I look forward to hearing from you.

God bless!
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Old 10-03-2023, 10:51 AM #12
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Hi David,

I am new to this forum and I have been following your posts for the past couple of weeks. I am very happy to know that after years of suffering you were finally able to significantly reduce your symptoms.

I have been diagnosed with PN 3 weeks ago. It all started about 4 weeks ago when I suddenly started fighting mild numbness and a tingling sensation in the thumb and index fingers in my both hands. Sometimes I also felt it in my middle fingers. After a week I consulted a neurologist and he confirmed that it is PN. My blood reports came back normal. I am not diabetic and my B12 is 275. The doc couldn’t figure out the reason for my PN. He says that it could be an autoimmune condition.

It has been 3 weeks now and I feel mild pain in my heels when walking. Sometimes there is a mild burning sensation. It looks like PN is progressing. I have started taking Benfotiamine 400mg every day but there’s little difference. I know that supplements take a while.

I am in my early 40s and I am completely devastated. My daughter is just 5 years old and I have a lot of responsibilities on my shoulders. Although my wife has been very supportive, I would never wanna be a burden on my family.

I came across this post of your and this gave me a lot of hope. I can finally see some light at the end of the tunnel.

I’ve also read many posts where people have claimed that a carnivore diet has helped them a lot with neuropathy.

I want to start this diet but I am a bit concerned as my LDL is 136 and my total cholesterol is 229.

Nevertheless, if you don’t mind can I ask you whether you are still on a carnivore diet and is it helping?

I see that you were last active in April but I look forward to hearing from you.

God bless!
your
B12 level is very low. research some of the B12 threads on here, in the meantime start supplementing with 5000 mcg of methylcobalamin a day and get those numbers up. That could be your cause of the tingling, numbness and pain right there.
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Old 10-03-2023, 01:20 PM #13
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Hi Echoes, thanks for your reply. I too feel the same about my B12 levels. Iíve seen a lot of YouTube videos on low B12 levels causing neuropathy. Thanks for the advice, Iíll definitely try methylcobalamin.

I see that a carnivore diet has helped many people in reducing their symptoms. Since I am in the early stages, I wanna try everything that can help me reverse my neuropathy.

Let me try and see how it goes. Cheers!
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Old 10-16-2023, 10:19 PM #14
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Hi Rick,

Thanks for your message. I'm not active on this forum but I do try to check it once in a while and post when there's something worth posting. I just happened to check it after a while and see your message.

Thank you for the kind words. I'm sorry to hear you're suffering from this disease. It can be particularly overwhelming and hopeless when it first comes onto the scene, perhaps even more so when you're younger and are just beginning to build a life and raise a family, not to say it's not difficult at any age. If you're reading my posts, you'll know that it hit me right in the prime of life, in my 30s. I have lost more than I care to think about because of it, but I'm grateful for the things I still have today. Many of the things I lost were superficial things that were replaceable. It doesn't have to crush you there are things within your control. I wish I had known of the carnivore diet then, but it wasn't a thing really, not to this extant. Of course, there was a zerocarb movement.

As Echoes Long Ago said, get that vitamin B12 up immediately. I used to take the Doctor's Best active B12, though now I eat enough meat that I don't need any supplementation for anything really. You want that vitamin B12 much higher and your doctor should know better. Often the normal range is just the average for the patients in a given area, no matter how deficient they are. Mine is between 800-1200 and that's a good range, even though some will say that's too high. It's simply not. You can take Benfotiamine as well if you like. I too the Doctor's Best for years and I'm not sure if it did anything to be honest with you, but there is certainly some research showing benefits for neuropathy. You can try it and see if you notice a difference, though just because you don't notice a difference, it doesn't mean it's not benefiting you. It's often difficult to tell these things unless the difference is substantial.

To answer your question, yes, I'm still eating carnivore. I can't imagine ever going back. The longer I eat this way the great the benefits I notice. As we say, I've been eating an unhealthy, damaging diet for decades and it takes a long time to see benefit. The amazing thing is I experienced so many benefits immediately, but with each passing month, I see more systematic improvements. The reduction in inflammation and symptoms was almost immediate and things improve more and more as your body becomes healthier. For the first year I only ate meat and salt and drank water (and sparkling water). It was quite obvious early on that my neuropathy was linked to my gut: I would eat certain things and my symptoms would get worse or I would have nerve damage in a part of my body where I hadn't had damage previously. Gluten and dairy were among the worse, and eggs were also quite bad for me. Believe it or not, after just several months of carnivore, I've managed to reintroduce eggs with no issues and I'm eating 4-8 eggs a day or as many as I want really. My gut has healed enough for that. The protein in eggs can be quite inflammatory but not anymore for me. It's quite amazing really.

I could say much more here about how eating just meat has changed my life, but I need to get to bed soon. What also helped me was doing a great deal of research and working with a carnivore/keto diet coach who himself has suffered from neuropathy and is carnivore. In a sense the carnivore diet is easy, and though somewhat simplistic, it's true that all you need to do is eat fatty meat, salt to taste, and drink water (and maybe add some electrolytes initially). But with complex health problems and decades of poor eating you may need to do some trouble shooting to feel your best.

As for cholesterol, there's nothing to worry about unless your LDL is oxidized. This is best measured by checking for fasting insulin or the ratio of HDL to triglycerides, not a raw LDL number which studies have shown is useless. The culprit is carbs, especially refined carbs, but also things like fruit with fructose. Saturated fat and dietary cholesterol have been demonized without any science to back it up. Here is a brief video with some background and details of the science: 🔴The Truth about Cholesterol and Heart Disease - Dr Anthony Chaffee MD - YouTube. For a more detailed, fascinating, and richly rewarding history of how dietary cholesterol and saturated fat came to be demonized, I'd recommend Nina Teicholz's The Big Fat Surprise. The science is quite clear on this at this point even if medical/clinical practice is terribly behind: Just a moment....

I recently did my 1 year blood work and all my markers are better, and some infinitely better than when I was eating a so called healthy omnivorous diet. My LDL has gone up slightly, but so has my HDL and my triglycerides have dropped. My fasting insulin, A1C, blood pressure, etc. are all great. I've also lost 32% body fat and gained 15% muscle mass and bone density.

All this aside, I would recommend doing your research as I did. It also helps to bear in mind that physicians are not trained in nutrition and know very little about the most recent studies on cholesterol and diet. I broke the new to my doctor that I only ate meat when she asked how I lost so much weight and improved my biomarkers in such a short time. The cognitive dissonance was rather humorous to see. Before I had told her I was just low carb.

I would recommend eating only fatty red meat with at least a fat to protein ratio of 1:1 grams (sometimes more fat is even better), salting to taste, and drinking water. Chicken and pork are higher in polyunsaturated fat and are not as healthy. I never feel better than when I eat fatty red meat. Don't be scared of fat or protein for that matter. This diet has given me mental clarity and calm to a degree I didn't know was possible. You can try this for 3-6 months I would say and then start to reintroduce things one at a time if you like. I would even avoid dairy and eggs initially unless you do fine with both. But if you do this as an elimination diet and just do red meat, water, and salt, you can then easily tell what is causing you issues. While you try to figure out the cause of your neuropathy, you must do everything you can to reduce your inflammation, and that means from diet, stress, and anything else that's problematic. Exercise, eat well, and sleep well. This is what you can while you search out the etiology of your particular neuropathy. I hope you find the cause but you may not as I didn't in my case. Thankfully there are things you can do to feel better and live a happier life despite it all. I hope this helps and good luck!
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Old 10-17-2023, 12:50 PM #15
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Hello David,

I am so happy to hear from you and I am glad to know that you have been doing great. Iíve been following your story and I can understand all the pain and suffering you must have gone through. Iíve been diagnosed only a few weeks ago and it feels so terrible. But you have lived with it for a decade and I must admit that it takes a lot of courage and determination to keep fighting. People like you make me feel hopeful buddy.

After reading your post, I researched on the carnivore diet and I came across so many people who claim that this way of eating has changed their life. It is indeed surprising to know that when modern medical science has failed to cure so many autoimmune diseases, a simple diet is able to help people in healing themselves. People call it a miracle diet and this explains the effectiveness of the diet and how it has brought a positive change in their lives.

I have been a fairly active person all my life. Iíve been hitting the gym and doing heavy resistance training about 5 times a week. My diet has always been up to the mark, no junk food. I have been quantifying my diet for years and I count my calories. I never smoke and I am not a heavy boozer. I used to have a couple of pints on Saturdays. I am not really sure what could have caused my neuropathy. Destiny probably.

Nevertheless, after coming across so many stories I finally decided to take the plunge and I am on day 2 of my carnivore diet. Currently I am only eating eggs and beef cooked in tallow. I use salt and pepper for seasoning my meat. Fat accounts to about 70% of my calories and remaining 30% comes from protein. I am avoiding all other meats at the moment. Will consider adding them once I start feeling better.

So far I have been doing pretty well on this diet but on my Day 2 I noticed a slight increase in my symptoms. The numbness in my palms was gone but it came back today. I am not sure if it has something to do with my new diet. May be a result of oxalate dumping? Or could it be because of the eggs? Iíll observe it for a couple of more days and will exclude eggs if this continues.

Iíve also started taking benfotiamine, R-ala and B-12. I know itís too early to start expecting results. I will continue this diet atleast for 90 days before drawing any conclusions. But I am hopeful that if it has helped so many people it might help me too.

Thank you so much for the encouraging words and tips David. It means a lot. I really appreciate it and I wish you great health and a happiness life. Keep rocking! 😊
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Old 10-19-2023, 12:31 AM #16
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Hello David,

I am so happy to hear from you and I am glad to know that you have been doing great. Iíve been following your story and I can understand all the pain and suffering you must have gone through. Iíve been diagnosed only a few weeks ago and it feels so terrible. But you have lived with it for a decade and I must admit that it takes a lot of courage and determination to keep fighting. People like you make me feel hopeful buddy.

After reading your post, I researched on the carnivore diet and I came across so many people who claim that this way of eating has changed their life. It is indeed surprising to know that when modern medical science has failed to cure so many autoimmune diseases, a simple diet is able to help people in healing themselves. People call it a miracle diet and this explains the effectiveness of the diet and how it has brought a positive change in their lives.

I have been a fairly active person all my life. Iíve been hitting the gym and doing heavy resistance training about 5 times a week. My diet has always been up to the mark, no junk food. I have been quantifying my diet for years and I count my calories. I never smoke and I am not a heavy boozer. I used to have a couple of pints on Saturdays. I am not really sure what could have caused my neuropathy. Destiny probably.

Nevertheless, after coming across so many stories I finally decided to take the plunge and I am on day 2 of my carnivore diet. Currently I am only eating eggs and beef cooked in tallow. I use salt and pepper for seasoning my meat. Fat accounts to about 70% of my calories and remaining 30% comes from protein. I am avoiding all other meats at the moment. Will consider adding them once I start feeling better.

So far I have been doing pretty well on this diet but on my Day 2 I noticed a slight increase in my symptoms. The numbness in my palms was gone but it came back today. I am not sure if it has something to do with my new diet. May be a result of oxalate dumping? Or could it be because of the eggs? Iíll observe it for a couple of more days and will exclude eggs if this continues.

Iíve also started taking benfotiamine, R-ala and B-12. I know itís too early to start expecting results. I will continue this diet atleast for 90 days before drawing any conclusions. But I am hopeful that if it has helped so many people it might help me too.

Thank you so much for the encouraging words and tips David. It means a lot. I really appreciate it and I wish you great health and a happiness life. Keep rocking! 😊
Rick, I am in the same situation as you. Healthy, lifted, no chronic diseases. Got covid and 6 weeks later, small fiber neuropathy. I now have numbness in my entire body. Even neurologists I see can't believe it because its in every piece of skin which is supposedly extremely rare.

I am now on day 18 of ketovore - I drink kefir with whey protein powder and eat some cheese. I also just started taking 500mg a day of benfotiame, 1200mg of ALA, 2500mg fish oil, 5000IU Vit D, 5g createine and costco's Mega B-complex. So far no real changes.

If you need support or want to bounce ideas off each other, I can be reached on telegram @Depeche_Made or whatsapp
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Old 10-20-2023, 04:09 AM #17
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Rick, I am in the same situation as you. Healthy, lifted, no chronic diseases. Got covid and 6 weeks later, small fiber neuropathy. I now have numbness in my entire body. Even neurologists I see can't believe it because its in every piece of skin which is supposedly extremely rare.

I am now on day 18 of ketovore - I drink kefir with whey protein powder and eat some cheese. I also just started taking 500mg a day of benfotiame, 1200mg of ALA, 2500mg fish oil, 5000IU Vit D, 5g createine and costco's Mega B-complex. So far no real changes.

If you need support or want to bounce ideas off each other, I can be reached on telegram @Depeche_Made or whatsapp
Hi RationalBeing, I am so sorry to know about your condition. I can relate to what you are experiencing and I understand that this could be quite overwhelming. I was diagnosed about a month ago and to be honest, I felt that this was the end of road for me. But then I came across many people like David who were successful is managing and even reversing their condition. This gave me a lot of hope and I started my own research on different diets, supplements and lifestyle changes that could help me in reversing my neuropathy.

I am in a better position now. Although I still feel some numbness and a vibratory sense in my palms, my foot pain has reduced by 90%. The pin and needle feeling has also gone.

In the beginning I started with intermittent fasting and I could notice that my symptoms would subside a bit but they would come back as soon as I ate carbs. I felt needles and tingling immediately after I ate rice, bread or pasta. So I went totally low carb and I could see some difference.

I also added supplements like benfotiamine, R-ALA, L-Citruline but I did not notice any significant improvement until I included B12. My B12 came to be around 250 and people here advised me to start supplementing immediately. I started taking 6000mcg of B12 and within days I could notice reduction in my foot pain. Just to make sure that B12 was helping, I stopped it for a few days and the pain came back. I reintroduced it and now my foot pain is gone 90%.

I came across Davidís post about managing his neuropathy through the carnivore diet. I also spoke to many people who were able to reverse their autoimmune diseases like rheumatoid arthritis, lupus, MS etc by going carnivore. With some many case studies, I decided to give it a try. Iíve been on a carnivore diet for about 5 days now. Although I did not notice any significant improvement in my hand numbness, I feel great from inside. Iíve been suffering from ulcerative colitis for years and my gut has improved a lot immediately after going carnivore.

I started with eggs, red meat, salt and pepper. But now Iíve excluded eggs completely. I still have that vibratory sense in my palms and forearms. It is like how we feel immediately after an electric shock. It is difficult to explain. But Iíve not lost hope yet and Iíve decided to continue this diet for atleast 6 months before making any conclusions. Nerves take a lot of time to heal so I need to be patient.

I understand your case. Covid and Covid vaccine induced neuropathy are quite common these days. But the good news is that since this is not related to diabetes or any other autoimmune condition, there is a high a probability of getting this reversed. Unlike diabetic or autoimmune neuropathy where the nerves will continue to degenerate due to the associated health conditions, in covid induced neuropathy there is nothing ongoing that could continue contributing to this condition. Well, although I am not a doctor atleast thatís my opinion. This is somewhat similar to alcohol induced neuropathy and Iíve come across many patients who were able to reverse it by simply cutting alcohol completely.

You made a good decision by going ketovore because going carnivore directly might be hard on the body. But I would recommend that you slowly transition into a Lionís diet as suggested by David. This is an elimination diet and it will help you in figuring out which foods you are allergic to. After about 6 months you can slowly start reintroducing other meats. Our myelin sheath is made of fat and only animal fat can help in regenerating it.

Howís your B12 by the way? If it is anywhere below 600 please start supplementing immediately. You can also include beef liver in your diet as it is rich in B12. Lionís diet allows organ meat of all ruminant animals. This will also help you with some variety in your food.

If possible, also get an ANA test done just to make sure that you donít have any autoimmune issues. My ANA came out +++positive and that freaked me out in the beginning. But as modern medicine canít help with this, i decided to focus more on diet, supplementation and exercise.

Last but not the least, donít get disheartened as this will lead to stress and stress can further aggravate your symptoms. People in this forum are very helpful and you can reach out if you need help. I would also suggest that you join carnivore groups on Facebook. It has helped me a lot.

I hope this helps. Sure, you can get in touch with me on telegram. My id is @beachlifez

Wishing you all the best and praying for your speedy recovery 😊
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Old 11-02-2023, 07:12 AM #18
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Hi RationalBeing, I am so sorry to know about your condition. I can relate to what you are experiencing and I understand that this could be quite overwhelming. I was diagnosed about a month ago and to be honest, I felt that this was the end of road for me. But then I came across many people like David who were successful is managing and even reversing their condition. This gave me a lot of hope and I started my own research on different diets, supplements and lifestyle changes that could help me in reversing my neuropathy.

I am in a better position now. Although I still feel some numbness and a vibratory sense in my palms, my foot pain has reduced by 90%. The pin and needle feeling has also gone.

In the beginning I started with intermittent fasting and I could notice that my symptoms would subside a bit but they would come back as soon as I ate carbs. I felt needles and tingling immediately after I ate rice, bread or pasta. So I went totally low carb and I could see some difference.

I also added supplements like benfotiamine, R-ALA, L-Citruline but I did not notice any significant improvement until I included B12. My B12 came to be around 250 and people here advised me to start supplementing immediately. I started taking 6000mcg of B12 and within days I could notice reduction in my foot pain. Just to make sure that B12 was helping, I stopped it for a few days and the pain came back. I reintroduced it and now my foot pain is gone 90%.

I came across Davidís post about managing his neuropathy through the carnivore diet. I also spoke to many people who were able to reverse their autoimmune diseases like rheumatoid arthritis, lupus, MS etc by going carnivore. With some many case studies, I decided to give it a try. Iíve been on a carnivore diet for about 5 days now. Although I did not notice any significant improvement in my hand numbness, I feel great from inside. Iíve been suffering from ulcerative colitis for years and my gut has improved a lot immediately after going carnivore.

I started with eggs, red meat, salt and pepper. But now Iíve excluded eggs completely. I still have that vibratory sense in my palms and forearms. It is like how we feel immediately after an electric shock. It is difficult to explain. But Iíve not lost hope yet and Iíve decided to continue this diet for atleast 6 months before making any conclusions. Nerves take a lot of time to heal so I need to be patient.

I understand your case. Covid and Covid vaccine induced neuropathy are quite common these days. But the good news is that since this is not related to diabetes or any other autoimmune condition, there is a high a probability of getting this reversed. Unlike diabetic or autoimmune neuropathy where the nerves will continue to degenerate due to the associated health conditions, in covid induced neuropathy there is nothing ongoing that could continue contributing to this condition. Well, although I am not a doctor atleast thatís my opinion. This is somewhat similar to alcohol induced neuropathy and Iíve come across many patients who were able to reverse it by simply cutting alcohol completely.

You made a good decision by going ketovore because going carnivore directly might be hard on the body. But I would recommend that you slowly transition into a Lionís diet as suggested by David. This is an elimination diet and it will help you in figuring out which foods you are allergic to. After about 6 months you can slowly start reintroducing other meats. Our myelin sheath is made of fat and only animal fat can help in regenerating it.

Howís your B12 by the way? If it is anywhere below 600 please start supplementing immediately. You can also include beef liver in your diet as it is rich in B12. Lionís diet allows organ meat of all ruminant animals. This will also help you with some variety in your food.

If possible, also get an ANA test done just to make sure that you donít have any autoimmune issues. My ANA came out +++positive and that freaked me out in the beginning. But as modern medicine canít help with this, i decided to focus more on diet, supplementation and exercise.

Last but not the least, donít get disheartened as this will lead to stress and stress can further aggravate your symptoms. People in this forum are very helpful and you can reach out if you need help. I would also suggest that you join carnivore groups on Facebook. It has helped me a lot.

I hope this helps. Sure, you can get in touch with me on telegram. My id is @beachlifez

Wishing you all the best and praying for your speedy recovery 😊
Great information! My own ANA and ANA2 were all negative, but I did have some positives on gangliosides. Still trying to make sense of it, but the doctors say its just covid that caused mine and time is the only way to recover.

I completed 30 days of Ketovore with good results in terms of feeling energetic and good, but no real improvement to my neuropathy. My B12 hasn't been checked since January, but it was 865, so quite good. I've been taking 1000mcg-2000 a day the last couple of weeks now in chew form.

If I cut out the kefir with whey protein and the large amount of nutritional yeast my carbs would go to nearly zero. Not sure if it would make a difference, but something I could try. I never had any real issues with my gut before the disease, so i'm fortunate with that.

Sent you a message on telegram, let's connect!
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Old 12-20-2023, 01:18 PM #19
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Hi Rick,

Thank you for your kind words. I'm not sure how courageous I am, since I have no choice but to live with this disease. I suppose there's always the option of ending it all, but as dark as things got for me in the first several months and couple of years, and as much as I didn't want to be living my daily life with this disease, I never really had suicidal ideation. Among other things, like you I had and still have people for whom I'm responsible. I've done the best I can and ever since I've been on carnivore I've felt more positive, energetic, and happy. A great part of that is how much better I feel. Even if my nerve damages doesn't regenerate, these days I barely notice much of it. That's partly due to time, and getting used to living with all the weird symptoms, but it's mostly because my symptoms are significantly reduced with this way of eating and living. I just had to focus very hard to see if my feet have that vibrating sense and I barely noticed it. In my hands, I notice nothing as hard as I am trying right now. It's just an example.

It does sound like your diet was better than mine overall. I drank quite a bit of beer and some wine, and I'm sure that contributed to the onset of my neuropathy. I'm glad you're now on carnivore and doing better. I read your other comments after your response to me and I'm even happier that you decided to do the so called 'lion diet'. Ruminant meat is really the healthiest thing you can eat and after several months you can start reintroducing things slowly, perhaps one a month, to see how you do on them. That's at least what I plan to do in the new year. Until a few months ago I only ate meat, salt, and drank water. I've since reintroduced eggs which would make my neuropathy much worse and so I hadn't eaten them in many years. Now I do just fine on eggs, even when I eat a dozen in one day. However, at some point in the new year I plan to go back to ruminant meat only and do a very serious elimination diet, even so much so that I'll introduce ruminant meat one at a time, begging with beef and moving on to lamb, etc. As much as I love eggs, I need to do this to see what is most optimal for me.

I also think it's prudent to at least try the diet for 6 months before deciding anything. I know there are all sorts of influencers who advocate for a 30 day carnivore challenge and the like, but that's not enough. It took me 3 months to become properly fat adapted where I had the high energy levels that I now have. I felt better immediately don't get me wrong, and with each week I noticed more improvements, but it wasn't until 3 months in that I started feeling like superman. If wasn't until several months after that my sleep became well regulated. I was still sleeping alright, but not enough, though I still had plenty of energy during the day because on carnivore I have so much more energy and so little pain if any. The sleep problems were partly because I had histamine issues. Things significantly improved once I addressed that and also made sure I was eating enough fat. As some like to say, this diet isn't really the carnivore diet but the fativore diet. It's essential to be getting at least 70-80% of your calories from fat.

It does sound like you did your research, and I hope you're keeping that up. This is the way to go. Did your initial issues improve? You should be well on your way now. I'm not surprised that your symptoms got worse initially because it's a stress on your system to radically change your diet. Carb withdrawal is a serious thing and I've seen it crush family members who went keto. My own father looked and felt like he was dying the first few weeks because he's a huge carb addict or was. Either way, the change will create dramatic changes in your body and can cause some temporary inflammation among other things. It could also be oxalate dumping depending on how oxalate heavy your diet was. Most of us over-consume oxalates so it's no surprise. Oxalate dumping often present more like a rash, but anything is possible. I possible had it a few weeks in when I had a rash on the back of my leg, behind my knee. It lasted a few weeks and then subsided to never return.

Your supplements sound good too. These days I just eat some liver, either cod or beef, and call it day. But I still do occasionally take B12, D3+K2 given the winters here, and Benfotiamine. Next year I'll likely come off all supplements, but one at a time and see how my body responds. My B12 numbers are a 1000+ these days. Right now you should make sure you feed your body everything it needs and supplements can help with that. I would recommend keeping an eye on your iodine and omega 3. If you're eating grass fed and finished/100% grass fed ruminant meat, you'll get your omega 3s no problem, but grain finished is depleted of this essential fatty acid. I also eat a can or two of sardines a week, cod liver from time to time, and a piece of wild salmon now and then. But when I go full ruminant next year it'll all be 100% grass fed to ensure I'm getting the essential DHA. As for iodine, if the animals you consume graze near the ocean, you should be good, otherwise you will likely have to supplement. Iodized salt is rarely sufficient without eating wild seafood, etc.

I really hope the carnivore way of eating and living helps you. Do your research like you're doing and reach out to me if you think I can help. I'd be happy to do so. I'll keep an eye out for any comments or private messages. Good luck!

Last edited by DavidHC; 12-21-2023 at 10:58 AM.
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Old 12-24-2023, 01:39 AM #20
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Hi David,

Although I am still struggling with my condition even after 2 months on carnivore, your story gives me a lot of hope. My suffering is not even close to what you have gone through. Yet, you were able to swim against the tide and this reminds me again and again that neuropathy can be reversed.

It has been 77 days since I started carnivore but so far I havenít noticed much difference with my symptoms, although I do feel energetic and active. Oh yeah, my gut has improved a lot after going carnivore.

My foot pain went away even before I went carnivore and that could be because of the B12 supplements.

However, I still have tingling in my hand fingers and sometimes around my lips and thatís bothering me the most.

My doctor has prescribed 300mg oxcarbazepine twice a day. This is an anti-seizure medication, similar to gabapentin. When I take the medicines, my tingling and numbness disappear completely but it comes back immediately even if I miss the dose for a single day. This makes me realise that the carnivore diet hasnít started showing itís benefits yet.

I almost forget about my neuropathy as long as I am on this medication. However, I donít want to be dependent on these drugs for the rest of my life and thatís the very reason for going carnivore.

Right now I eat only red meat most of the time. I add salt and pepper to my meat to make it taste better. I also drink 2 cups of sugarless tea every day. I am not sure if I should do that. I eat eggs may be once every 2 weeks when I feel like eating something different. I am not sure if I am doing carnivore the right way.. I really wish there was someone who could hold my hand and help me navigate through this.

I know that it is too early to conclude if carnivore can reverse my PN but so far it hasnít been very effective. But I wonít give up and will continue to stay on this diet due to the other associated health benefits.

Thanks 🙏 for all the support and kind words David. It helps a lot. I am unable to send you a private message, may be because I donít have the required permissions. Nevertheless, Iíll keep you updated about my condition.
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