I need some suggestions. I have noticed and before my pn in my legs how sensitive I am to cold. When I developed the pn I noticed how in cold the temp goes directly to my painful areas and how my legs ache. I also have frozen feet regardless of layers and my feet seem to ache more too. Now the past winter was just start of my pn and I was super bad but now even on cold mornings I feel more in pain and my feet feel cold. Even the cold wind hurts me. I live in MI so the winter here is brutal. I have been thinking of relocating to a warm climate. Now my fear though on my own living my mom is my huge support and I know I sound like a baby but can't imagine being away in this much pain.Just seeing her lifts my spirits and makes me feel less alone. I know we could visit and talk but not the same. Like I said I currently live on my own though. Also if something happens out of state. Though I'm not happy with my docs now anyway and my mom said I would just fly home or she there. I fear the loneliness and not being able to do much. At least if I were going for work or knew more people but really its just cause of the pain issue. These legs and my own and off symptoms are so trapping. I feel like I'm retiredand just want to live like a normal person. On that note though as a positive I was so busy this weekend. I got to go to a Farmers Market and even in pain I'm able to do at least. The reason I need to decide where I move is cause I'm trying to sublet my apt because its horrible so when I move I need to figure this out. Any ideas?

I have one for you. Wherever you move, try and involve yourself in some activities that are not related to a PN group. Not that there is anything wrong with a group, but it would be good to focus on some other things and try to put your health issues in the background as much as possible.

We are your PN family and will always be here for you to help you or support you as needed. So don't think for a minute that I believe you should stay away from us. We want to know how you are doing and where you are and we want you to have every opportunity to get better and healthy again... We care what happens to you. I hope you know that...

Cathie

I lived in Mi. right now with temps of 109 you are in air because it's
hot. So your cold parts are still cold..Also i was a mama's girl as well.
I glad my kids,now boy do i miss them don't get me wrong are
independent... There are times i want to say yes and move by one.
Someday i will have to,oh Dan we are in reverse if you get what i mean.

I really agree with Cathie,your young,you need to live your life. It
will be hard but dueable...I was job and family,honest i thought this
would be all fun time..But i'm doing many of the things i still like,
if it wan't for Drs. screwy up i would be learning something new.
And please don't take this wrong,cus i adore you,maybe mom needs
a break. If you move to somewhere warm how neet,nice place for her to
visit.. Besides get your idea on where you would like our commune to be.
Think it through,maybe in a warm climate you could get out more.
i wish we did live closer but we would be in our jamies,bit--ing.
Did i say that.. naww it was MeL. Sue

Daniella:

There are two places that I know of that will help you with your pain. One is Arizona where the sun shines 360 days a year. The other is Nevada. My husband went there for a week and he had no pain anywhere. Nothing hurt him, he couldn't believe it.

Now I know it's scary and we have our comfort zones, but if you can afford to move, is it possible to bring your mom along???

If not, that's why they invented webcams. I make videos all the time. I have friends and family in different states. That's how they can see a new gadget that I just bought, or I show them a plate of my muffins.

If you move, just put a webcam on your computer and (this is, of course, only if your mom is computer savvy). If she's not, she can be. You can teach her how to use a laptop.

Just make sure she has a laptop with a webcam. The you and she can share videos. It's the next best thing to being in the same room.

And the climate will really benefit you.

So if you do move, I wish you the best.

Melody

go out in Az. i would be burn't from held to toes. My neightbors let
me see my grandson on there Webcam. Couldn't stand it,oh boy
he's got hi mama's eye's,there so cute at 3 months,going to get
one... Just gotta... Sue

Sue:

That's why they make SPF 50 or better sunscreens. So you don't get burned. And you can carry an umbrella.

Today, here in Brooklyn, you never saw so many people walking in the street carrying umbrellas (for the sun, not the rain).

I have never done that.

Maybe someday I"ll be like the gals in the 1890's. Carrying a parasol.

Now that would be some sight.

lol

We don't have such cold winters in Atlanta, but here's what I do. I have a small space heater that I keep by my side whenever I am sitting or lying down. And I wear down booties.

I'd advise that you not leave your mother. You have a comfort space there with her. You also have someone to help in case of an emergency. And who is to say what your health is going to do in the future. If it got worse and you were alone somewhere far away, what would you do? There are at least one or two of us who live alone without spouse or family. They have a difficult time. You need the emotional support if nothing else.

As Dakota says, wear down booties and use a small electric space heater in your vicinity. There are some other tricks too. Like the little chemical toe and hand warmers that you put in your shoes and gloves or pockets. Liza Jane uses them in NY.

I live in Texas and it is 100+ here. I find it really makes no difference to my pain. I still freeze, shiver and have chills. All of this while I am sweating. I've found that on the whole, my pain is better when it's cold. But it really doesn't make that much difference.

While you are still living where you are, or perhaps staying with your Mom briefly, you could take short trips to the other regions to see if it makes any difference in your pain.

Whatever you do, think this out and don't make rash decisions. There is something to be said about having family near.

Billye

Thans for your reply. The issue is I don't want to leave my mom but I can see how the cold makes me ache so much more. The past 2 mornings have been so cold and my feet never warm up and the inner ankle hurts even more.My legs feel so tight. I feel so trapped and confused. My mom said she would be there in a few hours if something happened. If I move it will be near my gramps in FL which its looking like I will maybe. I'm scared but my pain level does go up with cold. Here in MI it can be 0 in the winter. I have been crying about this issue cause I feel so lost. As for my mom moving. She loves her home in MI and my gramps who is a millionaire offered to buy her a huge house there and she doesn't want it. I'm the bad seed so that doesn't apply to me. I'm blessed though on finances but nothing like him. Were not close at all which is hard. Thank you guys so much. I wish I felt young and was able to get a job,school,hang free with people but my pain and legs though progress are limited. I feel so trapped in my mind and body. I will say before this pn issue I had issues leaving my mom though live on my own since 18. I worry about her too which is an issue. My mom has very few people in her life,she chose to get divorced though,a eating disorder though slightly better,I feel depressed. I don't want her to feel I'm leaving her which I think rationally she knows how hard this is for me. She has been my strength through this and everything in my life and I don't want her to feel I don't appreciate it yet I can't live in agony of cold. We talked about this too. I would never take things harsh you guys say. I know its from the heart and your all so caring. Like my "adopted" moms and dads I guess. Thank you

I think what Billye says makes good sense. Before you make a major committment to moving down around your grandfather, how about waiting until it cools off a little more and then flying down and seeing how your body reacts to the difference in climate? If you all are not close, perhaps you could stay at a hotel for a week or so. Then you are not out a very long move and a lot of money getting set up in a place that might not work out for you.

What do you think?

Cathie