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Old 08-14-2007, 07:57 AM #1
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Default New Neuropathy study.....

HI All!
Here's a link to the study for that new MS vaccine. The vaccine helped heal the Myelin sheaths in MS patients. Let's hope one day this study will help all of us with Neuropathy!

http://www.medicalnewstoday.com/articles/79540.php
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
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Dx'd: Barrett's Esphogus July 2004
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Old 08-14-2007, 11:13 AM #2
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Thank you for posting this.

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 08-14-2007, 05:36 PM #3
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Default Thanks Roxie

I'm printing this off for a friend whose daughter has MS. She has 2 small children.

I appreciate the post.

Billye
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Old 08-14-2007, 06:50 PM #4
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Default Roxie, good homework!

Isn't that Medical News Today summary wonderful? You can pick and choose and learn soo much.
My only complaint is that soo much research is still on the 'mouse model' phase!

Keep up the good work! - j
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Old 08-14-2007, 08:40 PM #5
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HI Billye! I hope these injections will eventually help your friends daughter. I can't imagine living with MS and have small children!

J and Rose, My dear husband searched out the link for this article after hearing about it on the news yesterday. I sure hope it helps lots of people with MS and can help us too!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 08-14-2007, 09:02 PM #6
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Default Roxie, Many of us with 'demeyelination' issues...

really are not that different from those with MS...the PLACE where the demeyelination occurs is simply different.
MS the deterioration occurs in the Brain...with potenatially broader and long term permanent damage consequences..
In a way, we are 'lucky' that our deterioration occurs at the extremities. I suggest that you read up about MS folks on this board and others...Their fears are akin to ours. Their research helps US. It Does NOT make it hurt less?
Surgeries and other major 'invasions' for testing are similar in the rationales for doing them and their potential pitfalls.
Ultimately, we really are part of a very LARGE neurological world. Then part of an even LARGER medical world with all the other things we have as a result of or because of what we 'have'.
We definitely are a GOOD part [tho esoteric] of a somewhat far larger part of a bunch of really good folks who HURT!
We are not alone, ever... - j
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