Hey Dakota:

We have to get you a mood thingee to put under your name.

Melody

HI Mel!
Sounds like Alan is doing really with the new boot and all! That's really great......gives me hope!

Yes, I certainly plan to do that. I have a lot of questions to ask. If he gets impatient with answering them, there is my answer: "Forget it!"

Hi. One of my docs was talking about this stimulator for me. Right now I'm not willing but at my next apt with some new docs I will talk about it. I understand and hear your fear. I was also suggested and they really wanted to do it and said very little side effects. Is a tunneled epidural catheter. Its gives med through the spine. For me this was to be able to do extreme reabilitation on my legs and is only in for 6 weeks. On another note and may look into this is acupuncture. I'm not into alternative stuff but at this point I may try it if not in my legs. Good luck in your choice. I understand on how hard it is. I hope you feel better

Thanks, Daniella. I'm going to try not to worry about it until I get more information, bbut it's hard.

Melody, I'm trying out the mood thing. Lets see if it works. I'm not real good at this stuff.

for the imformation it was excellent,makes one think...D i have been
thinking the same thing. As long as i can go back.
Mel i also wondered now is it Jerry Lewis are Jerry L. Lewis they both
sure threw themselves around. Ha Oh Dakota i wish and hope you
some peace,all of us.. My son tried that Trigger Point on me,i guess he's
walking now..ouch!!!! And he makes good money doing that.. Sue

Dakota:

Right now you are brooding. Let's hope that when you get some pain relief, you can update your mood.

So far (I don't know if you read my latest post about what we did for Alan's PN), but he's been virtually pain free for over 6 hours.

If this method lasts till tomorrow morning, then we know we found something out!!! Something really interesting.

Melody
P.S. If you didn't read about what I did with cotton balls, go to the thread about the Foot Center

My pain management doctors are all big fans of the SCS and make it sound like "no big deal." Of course that is because they are not implanted in the doctors' backs. I have resisted the SCS for several years since I have heard and read that the trial is not always an accurate predictor of success. The PM docs make it sound very simple and the procedure and recovery is anything but that. From the people I have spoken to that have tried the SCS or have had them removed, to get them programmed correctly is not the easiest either. It MIGHT lessen the pain, but the longer you have had the PN (mine is idiopathic, also) the less likely you are to get relief. I have tried many many meds and alternative treatments, but the pain level is still pretty high on a daily basis. If you can tolerate the meds and they are giving relief, why take the chance on such an unpredictable procedure. Be sure to do a lot more research, speak to others that have the SCS implanted or have had them removed, and if all else fails, agree to the trial. If you do decide to try the SCS, best of luck and let us know how you are doing. Have you ever considered the morphine pump or doesn't your pain clinic like that idea. Mine hates the pump for some reason? If you do decide upon the SCS, be sure to compare all the models available and take the smallest and the one with the recharable battery. Chat soon. Ss

danielle-
what does this mean?
Is a tunneled epidural catheter. Its gives med through the spine. For me this was to be able to do extreme reabilitation on my legs and is only in for 6 weeks.
is it just for awhile then to get better? it cannot be for PN as it would go away that fast or would it?
or set me straight- i dont get it-what is the pain that you are having the pump for?
thanks
and to the person trying to decide about the scs-please let us know everything you find out. my docs vote one yes and one no- i cant take the drugs and i cant take the pain so i know what a bind you are in. how to decide is the question. we always want to believe that something will work.
i keep posting on everything possible to try to get relief.
steff

Hi. Sorry the cathter is so I can be comfortable doing rehab. I went to Cleveland clinic pain program and its full days of physical therapy. My pain was so bad that they wanted to do the catheter. I have pn in my legs but they want to treat it like Rsd though I have no other symptoms but the extreme sensitivity. I fear this catheter cause if no side effects why don't more people have it. I'm going to try something and have another opinion coming up. I need to try something cause my pain is going back again. Hang in there too.