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Old 08-18-2007, 02:48 PM #1
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Cool Smirk Got the Neuro blues.....

.....how about this for a bedside manner? I go to see the Neuro referred by my pcp. I'm a little apprehensive about my pn, I had already had the arms and legs conduction tests 2 weeks prior, so I'm naturally ready to get down to the meat of the matter, get the results, and proceed with a plan of action.Well, after jumping thru hoops, prodding,tapping,bending etc. I tell my sad story while the neuro records all. At this point he arises from his chair and states" hhhhrummp! small fiber polyneuropathy"! At this point he asks me to follow him out the door. Soon we arrive at the small window which I discover is the pay window ( this place is like a drive-thru at Burger King).Well, I realize I just got the whole enchilada ,so I turn to him (he is now walking away) and asked for somewhat of a clue, to which he remarks,"hurummp! just keep the glucose down". So here I stand, no clue about reflexes, motor deficits, conduction loss or any thing else. THANK You Jonas Salk!! What is it about some docs who seem to think everyone who walks in their office is some Gomer Pyle? Well ,I'ts now a personal thing I'm going to hound the hell out of these people!!!!...just needed to vent....Tom
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Old 08-18-2007, 03:38 PM #2
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Default Tom

Get copies of those records i sure you can read them if not we can,
go to sw and tell her hnnn you can't pay she will help they want there
money..Got to go hands are killing me,i'll be back,go on vent. Sue
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Old 08-18-2007, 04:10 PM #3
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Personally i wouldnt even aggravate myself with that doctor again. He is a loser. As Sue says get a copy of your records, including your emg, and find a doctor who knows about PN and is willing to listen to you and explain things to you. IN my opinion energy better spent.
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Old 08-18-2007, 06:11 PM #4
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Default Go, and get those records! THEN

While you are getting the copies....make another appt w/a specialist...Surely there is someone who has a clue about it all where you live? Do not pass go, youwon't collect $200. or the like, but you might just find the doc that YOU need? If you want help on how to search out a good doc, PM me and I'll give you all the resources I know on how to find one?
BTW My first neuro dismissed my PN as just that ...turned out to get worse? and I was still dissmissed as 'all in my head'...Got a second and third opion to back it up [by TOP DOCS] and the rest is well history? IF only I had not 'trusted' that first doc, well, my damages would have been a lot less. What Did I know about it all at first? I have learned tho.
Go, get a real EXPERT opinion, Sue and Joe are very right about this. I don't think you'd be asking if YOU weren't worried either.
's - j
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Old 08-18-2007, 09:46 PM #5
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Tom, There's some real jerk doctors out there! I have many health issues so I've had to deal with MANY stupid doctors...and paid them damn good money too! SO don't give up...just get your test results and move on to the next one. Do some research before you go to the next one. IF you put their name is Google you can find lots of info on doctors. Find some that's actually written and had medical papers published in journals......they seem to be the best ones. I wish you the best......it sure can be frustating!!!
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Old 08-18-2007, 10:06 PM #6
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If I knew how, I would start a blog or some way to post what some doctors do, so that prospective patients could read about him.
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Old 08-18-2007, 10:08 PM #7
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I have thought that very thing! LOL As is, they just get by with it over and over again!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 08-19-2007, 07:10 AM #8
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I had similar happen. If this doc works out of a hospital I would write a letter to the head. I'm doing that. I was treated in similar and its uncalled for. We wait months to get in and they spend a second. I wish docs would look deeper and go outsiide of there box. I told one of my docs if I die he doesn't care there are 100 behind me. I really feel many docs and I know there are many good so they deserve credit but the bad ones must have no concious. I agree about another neuro follow up but for me going to a pain clinic/amastesolgist was more helpful. Good luck.
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Old 08-19-2007, 11:12 AM #9
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http://ratemds.com/

heres one place to do it there are others....
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Old 08-19-2007, 11:32 AM #10
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This is so irritating to read that this still goes on... Further, how many people can keep afford to keep on going from doctor to doctor until they finally find one who will listen and help them... Even if you have insurance, the co-pays or out-of-pocket expenses eventually add up and are not cheap! And what about people whose insurance limits them in the number of doctors they can see???

I don't know why, but it seems like a lot of neurologists lead the pack in this arena...

Cathie
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