advertisement
Reply
 
Thread Tools Display Modes
Old 08-23-2007, 06:31 PM #1
jarrett622's Avatar
jarrett622 jarrett622 is offline
Member
 
Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
jarrett622 jarrett622 is offline
Member
jarrett622's Avatar
 
Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
Default

Quote:
Originally Posted by MelodyL View Post
Jarrett:

Congrats on the 20 lb loss. I lost exactly 2 lbs this month. Alan weighs me. I dont' want to know what I weigh. He laughs and thinks it's stupid. If he ever told me the exact number, well, let's just say, he wouldn't be standing any more.

Bad experience with scales so I don't look at them.


How come you had a bad experience with the B-12.
Boy it was exactly the opposite for me.

Mel
Perhaps I simply can't metabolize it properly and the stuff that can't be used is building up in my system. It's not that the B-12 didn't and doesn't work for me it just seems that the 'stuff' builds up in my system and causes more pain. I *know* it's worked for me so I'm going to get some of the methyl formulation and give that a go.

The weight thing is very good news for me and my cholesterol. I *told* my doctor the problem was the stupid drugs they had me on. And this just proves it. When I go back for my 6 months checkup around the end of Dec, first part of Jan she'll see it for herself. I *know* my body when it comes to the weight issues. This has been with me all my life. So I know what I'm doing. Even with just the almost 20lbs gone I physically feel so much better. Only about 50 more to go. And I know I can do that.

Oooo. I know what you mean about the scale. I brave it at least once a week or so. Actually it's been about 2 or 3 since the last time I checked so this shows me it's a healthy, steady shedding of the medically induced weight gain. I'm losing about 3 lbs a week now. And I'm not starving myself. Just being careful what I eat and I've added lottsa fiber.
__________________
We are not amused.
.
jarrett622 is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 06:40 PM #2
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default What gets me is that

Different docs' scales show different weights? I just calibrate [note] what Doc X's scale says to mine....I've met only one doc scale that agrees with mine! I really, REALLY like THAT DOC! The ones that instantly add pounds are ones I just say, well [since I've made mental notes plus/minus to mine] about the same or a little less...right? They look at me totally 'bug-eyed' - like I remember? Duh - My IVIG dose is weight dependent - I have to know these things, that's why I take a note pad w/me to each visit.. same for BP.

Jarrett, yes meds do play games with our Blood Pressure, Cholesterol and a lot of the Bloodwork #'s get skewed due to them. It's hidden in all the 'prescription information' all over in the fine print. I'd probably have better luck at someplace like Atlantic City or Vegas [and I don't find gambling interesting at all!].

Pain free times, and maybe some fun! - j
dahlek is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 09:12 PM #3
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default

Well, if muscle weighs more than fat, then I must be Hercules.

I wouldn't get on a scale if I weighed 120 lbs.

Really, I wouldn't. The darn thing hates me.

So I just don't think about it. My clothes look fine, my doctor is happy, my body is happy, my diabetes is under control, my neuropathy is happy.

Alan is walking again.

I'm happy!!!!
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 09:16 PM #4
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Default

y'all know we have a weight loss forum here right?

very motivating..and it;s members from all over the forum. we do our best with all the different health problems and rx's everyone has.

ps..and it helps having a gym owner who has been in the biz for 18 + years as the resident monkey motivator.
__________________

.
Curious is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 09:28 PM #5
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Curious It's not the weight loss or gain...

it's simply the disparities between scales..If one can get weighed on two different scales in the same docs' offices on two different floors and one gets a 20 lb disparity from what your own scale says...well. The docs CLAIM their scales are checked every year but each is different w/the same person on the same day [one who hasn't had a bathroom break-to change things?]

In my case, I watch my weight more than others as the cancer meds should be INCREASING my poundage...they arent...I don't know whether to be lucky or concerned...It almost leads one to a spookey concept such as paranoia or something.. Actually according to all the meds I'm on, I should be about 25 pounds heavier than I am?
Soo, as long as I'm 'holding steady' I am thinking good things, simply because the alternatives aren't accepable...

Now - That you have a 'resident monkey motivator' does that mean we should start a new forum to pat each of us for actually doing our theraband exercises ...rather than talking about it? It IS soo easy to well, put off? - j

Jarrett - sorry It's my fault I got this off the B-12 track...Beat me with a wet noodle or something?
dahlek is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 09:36 PM #6
jarrett622's Avatar
jarrett622 jarrett622 is offline
Member
 
Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
jarrett622 jarrett622 is offline
Member
jarrett622's Avatar
 
Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
Default

Quote:
Originally Posted by dahlek View Post
it's simply the disparities between scales..If one can get weighed on two different scales in the same docs' offices on two different floors and one gets a 20 lb disparity from what your own scale says...well. The docs CLAIM their scales are checked every year but each is different w/the same person on the same day [one who hasn't had a bathroom break-to change things?]

In my case, I watch my weight more than others as the cancer meds should be INCREASING my poundage...they arent...I don't know whether to be lucky or concerned...It almost leads one to a spookey concept such as paranoia or something.. Actually according to all the meds I'm on, I should be about 25 pounds heavier than I am?
Soo, as long as I'm 'holding steady' I am thinking good things, simply because the alternatives aren't accepable...

Now - That you have a 'resident monkey motivator' does that mean we should start a new forum to pat each of us for actually doing our theraband exercises ...rather than talking about it? It IS soo easy to well, put off? - j

Jarrett - sorry It's my fault I got this off the B-12 track...Beat me with a wet noodle or something?
I'll do no such thing! There's always value in every post IMHO. I've never seen a thread led so far astray that there wasn't still something good in it. Besides, all your posts I've seen have always contained pearls and gems of wisdom! So lead away!
__________________
We are not amused.
.
jarrett622 is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 09:43 PM #7
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Default

we use the same type of scales that dr's do. if they actually get a reputable company to calibrate them, they will be tagged. the office staff needs to be trained on how to use them and set all the weights back to zero after each weigh in.

you should also ask when the scale was calibrated and how much the scale is known to be off each year.

ours are used way more than a dr's office scale. average has only been 3-5 off. many times they have weighed under.

when the company that does the calibrating comes out, they check usually replace all springs.

it might seem like a real pain, but we have had members who have brought their home bathroom scales into the club..and calibrated it to match ours.

i know weighing can be very frustrating. there are so many factors. yes, time of day, time of the month for women, constipation....

on the b 12 issue...
the methyl i can take.i am taking 1000 mg daily. i get extremly nauseated with any b-complex.
__________________

.
Curious is offline   Reply With QuoteReply With Quote
Old 08-24-2007, 02:27 PM #8
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
Default

No wet noodle here.

But this is from my B12 website. Many of us have independently described the repair process as "weird" with good reason:

Quote:
When deficiency is treated early enough, damage may be repaired quickly and completely. The longer treatment is delayed, the more likely repairs will take many months to years and be incomlete.

Do not despair if a symptom becomes worse at some point after treatment begins. This sometimes happens when the body is addressing that particular problem, and often the symptom becomes dramatically worse. Symptoms can even multiply previous to great improvement. No guarantees, but this often happens when damage has been serious.

Many people who have serious damage experience what I call a honeymoon period within days or weeks of starting treatment. At that point it may seem that improvement is so rapid they begin planning to dance on tables within a few months. Then, in those who experience great fatigue and increased symptoms as their bodies begin very hard work on serious repairs, fear is common and reasonable.

Recovering from damage is often not linear. It isn't like getting over the flu or a cold, or healing from a wound. Nerve repair is slow and can be very weird. Many of us have settled on "weird" as the best way to describe it.

And very few medical people have the slightest understanding of that process. Many in fact assume, irrationally, that as soon as the B12 deficiency is corrected, the body will miraculously be back as good as new. As if even a simple knife wound would be healed as soon as the knife is removed. Ridiculous.
A couple of pertinent examples: 1) I developed vertigo late in my deterioration, and it wasn't until just before the last bit of vertigo went away (as a result of treatment) that I experienced spontaneous dizzy spells. 2) when nerves repair, the signals change, and until the central nervous system figures out how to interpret those new signals, pain can increase, or any number of abnormal sensations can be present.

Regarding being unable to use the cyanocobalamin. If you can't convert it, for storage and use, it goes out with the urine.

rose
__________________
I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

.
rose is offline   Reply With QuoteReply With Quote
Old 08-25-2007, 03:07 AM #9
Brian Brian is offline
Senior Member
 
Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
Brian Brian is offline
Senior Member
 
Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
Default

I found lots of times that my symptoms increased for some periods, no set pattern but flaring was very common, followed by a little less severity of symptoms.
Brian
Brian is offline   Reply With QuoteReply With Quote
Old 08-23-2007, 09:34 PM #10
jarrett622's Avatar
jarrett622 jarrett622 is offline
Member
 
Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
jarrett622 jarrett622 is offline
Member
jarrett622's Avatar
 
Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
Default

Quote:
Originally Posted by Curious View Post
y'all know we have a weight loss forum here right?

very motivating..and it;s members from all over the forum. we do our best with all the different health problems and rx's everyone has.

ps..and it helps having a gym owner who has been in the biz for 18 + years as the resident monkey motivator.
Oh?? No I didn't know that! Thanks for the info...going to take a look around an locate it.

Barbara
__________________
We are not amused.
.
jarrett622 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Good news, bad news..... Just Jacquie Bipolar Disorder 9 04-23-2007 02:25 PM
Anyone have any accomplishments or good news? Bad news? Mari Bipolar Disorder 27 04-07-2007 06:31 AM
Good News!! printerhead Spinal Disorders & Back Pain 5 02-07-2007 07:40 PM
Some good news.................my mom Nikko Bipolar Disorder 3 10-31-2006 01:28 PM


All times are GMT -5. The time now is 12:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.