Hi All,
I am new member to this site and like all of you have had pn for many years. Two months ago I reached the end of possible drug treatments for the problem. My body has become over sensitive to the many meds out there. The meds were no longer working, not working at all or making me totally ill with adverse side effects. Anodyne therapy was recommended by both my neurologist and a pain specialist as my options were becoming very limited. I went through the 4 week session doing three meetings a week. About three weeks into the treatment I began to notice a change and improvement. Due to the expense, after much discussion with my husband, I purchased a home system.
At this point I do a daily session which takes about a hour and a half , giving me time to read or watch tv. Doing daily treatments has resulted in a very noticeable change in the intensity of the pain and now reduces the level enough that my pain med at night actually works. Before this nothing was stopping the steam roller of pain and nights become a very long ordeal.
Days with really high humidity still produce runaway pain but these occasions are much fewer. On the whole using this treatment and having to take a minimum of pills a day is a true blessing. This is the first sign I have had in over eight years that something I am doing is actually slowing the progress of the pn. For me this is a small miracle! I actually have long periods of time when I can say I feel no pain !!!!!!!! What a wonderful thing!
This treatment is worth the trial session if you have pn. For many it is a wonderful gift.
PS My pn is contributed to Sjogren's Syndrome. I am not diabetic.
*This was first posted under new members thread and it was recommended that I post to the general pn thread for others to see.

hi-my pn or neuropathy (no one can agree) is not being touched by drugs either, or anything.
i have the pain from injections into my feet that inflamed/damaged my nerves. i cannot walk without agony or hang my legs down.
it is burning, stabbing pins and needles no loss of feeling.
did you have any of these?
who did the therapy?
thanks
steff

Welcome to the PN board Salsen! There is a very knowledgeable group of people here always willing to help.

I also have done the Anodyne therapy and purchased the home unit. I agree 100% on the results as it has done much for me with pain also. At the therapy facility you could do both legs and feet at the same time, whereas the home unit you can only do one leg and foot at a time. As you said, gives one time to read or watch TV.

Hi Salsen,
Welcome to the PN board. Glad to hear the news about the Anodyne Therapy. I'm thinking of looking at that too.

See you on the Sjogren's board.

Billye

Welcome! That's great news that you've found something, at last, that works at reducing and sometimes even eliminating your pain.

HI Salsen!
It's always nice to hear that a therapy is working and you're overcoming the pain! Fantastic! We all need to hear news like that!

I have had and do have all the sensations you mentioned. The treatment as helped to reduce the level of pain but has not eliminated it. At least most days I can attempt to ignore it now. Sitting for more than 15 minutes will cause numbness in the legs and holding my arm in one position for that amount of time will cause them to tingle. These areas above the ankle began having problems about three or four years ago. Before that it was just in my feet. Wish I could help you Steff. I have been where you are at and know how frustrating it can be. Unless you feel this type of pain it is really hard to make others realize how bad the pain can be. Maybe you should try the Anodyne trial treatment to see if you can at least tone the pain down. I have become faithful to the daily treatment. Good luck to you!

HEY Billye!!! Good to see you here too. I am glad to find this forum too. It seems loaded with good information and good people who share and help. Hope to see you in chat soon.

Sal

My father has peripheral neuropathy in his feet and legs. It started after a failed spinal fusion. Do you think anodyne therapy is worth looking into?

--though it tends to be like a lot of other things--works for some and not others.

It seems to be particularly helpful in those situations in which the neuropathy is caused by microvascular compromise, such as indiabetic or vascular/connective tissue autoimmune situations. This is due to the effect of light wavelengths on nitric oxide and subsequent improvement in small vessel circulation. If neuropathy is caused by compressive issues in the spine or nerve roots, though, I'd speculate that it wouldn't be quite as effective--improved circulation is always a good thing, but the fundamental cause in that situation would not be addressed.