Hi Steff
 

I sent you a private message.

Cathie

i WALK WITH A PLATFORM WALKER,I HAVE PN AND MANY OTHER,THINGS,
THAT ALLOW ME TO WALK 120FT WITH THE WALKER. i HAVE A ELECTRIC
WHEELCHAIR THAT GET'S ME TO SO STORES,dR.S AND OUTSIDE IN THE
AIR. bUT IT TOOK 4 YEARS OF THERPY,THAT CONTIUES..DO I HURT
YES,DID I SPEND TIME IN BED ,FOR SHORT TIME,TO MUCH PAIN..I SLEEP
IN A CHAIR WITH MY LEGS UP. mY LEGS ARE BOTH IN UNABOOTS AND HAVE
BEEN SINCE MAY. i HAVE BEEN IN AND OUT OF THE HOSPITAL,AND IN AND
OUT OF REHAB AGAIN.. i TIRED,I HURT,I CRY, I SCREAM,AND THERE ARE
DAYS I FEEL NO PAIN AT ALL...ONCE AGAIN WE ARE ALL DIFFERERNT,
OUR WE WOULD NOT BE HERE TALKING ...WE JUST MIGHT BE NUTS, SUE

Steff
 

Have you considered trying the Anodyne Therapy? I rented the machine
for a two month trial. I don't have any pain but just numbness now So they applied my rental fee to the purchase. I believe you can pay it out
over time

[URL="vhttp://www.anodynetherapy.com/."]

I feel for you!

Carolyn

Yorkiemom
 

I didn't get the message. Please try again.

I do have peripheral neuropathy and carpal tunnel, but it is considered mild and is probably caused by the Sjogren's syndrome. I think also the fibromyalgia makes it hurt much worse than it ought to. I had the EMG (the nerve conduction test, is that the right abbreviation?) which was positive, but so far, luckily, there has not been a need for a biopsy or anything.

The long term disability insurance company took one look at the fibromyalgia diagnosis, ignored all the other ones, and hired a shrink to declare that all that was wrong with me was somatoform disorder. This particular company does it ALL THE TIME because there is a two year benefit limitation for mental illness. Therefore, they want to declare as many claimants mentally ill as possible to save them money, even if it means they are lying and even if it means they will be sued for it.

Back on the subject of neuropathy and wheelchairs, I'm sure there is a great deal of variation in the severity of the neuropathy from person to person and whether or not the person can continue walking in such pain. If you find you can actually do more with a wheelchair than going without, then by all means use one. Also, some people aren't in much pain but have such weakness or numbness that it would cause them bodily harm to walk, in which case it would be a matter of safety for them to use a wheelchair.

fanfaire,
who would have a sig a mile long if she listed all her diagnoses :D

This kind of pain and the problems with DX and treating PN there can't honestly be a sane one among us. :D