Adding my 2 cents to it
 

Megan,
You have gotten some of the most valuable information you could possibly receive. And from people who are really in the "know". We have all spent many years suffering from similar symptoms. And as a result spent years putting together the answers you just got. I hope you treat them like the treasure that they are. Good luck to you and we'll always be here.

Silverlady

Roxie,Is yours affecting the sensory and motor nerves also? If so then the difference is the cause , autoimmune vs toxins. There has never been any indication in any of my blood tests including Athena and in the lumbar puncture of anything autoimmune going on.

knowledge
 

thank you for all the info. I am reading and thinking about it all as much as i can. i can see that i did not get the best work up at all. perhaps that is becasue i told the doc what caused the pn, the prolotherapy shots. on the other hand, it may be that i had somthing else going on and the shots sent me over the edge. i do not see the neuro doc for 3 weeks, he is gone, but i may try to see another one for a second opinion. i am going to call my hospital and see if there is a neuro who specializes in pn.
thanks for all the info, although i consider myself to be faily intelligent, it is quite a bit to understand and tajke in.
steff

You've gotten the best advice there is here and there's little I can add other than take the B-12. Even if you're not deficient, per say, it can help heal nerve damage. Yep, that's right....heal it. I know. I'm one that B-12 has helped. My symptom reversal has been nothing short of a miracle. Other than that: Welcome to the board! :)

Hi, a normal blood glucose tests will not show if there is any prediabetic condition going on, which will give the same symptoms as being a full blown diabetic, a 3 -5 Glucose tolerance test will show it up if there is a suspicion of diabetes going on and do you know what levels was accepted as in the " normal range" on your b12 test ?
i hope you can find some answers.
Brian :)

Thanks to you all!
 

I just lost the post I was sending, so I will try again (hope it doesn't come up twice).

Thanks for all your responses to my posting they are very much appreciated.

To Glenn, I have looked at all the links you posted. I have a few questions forming in my head, so I will post them on a new thread. I have had the Algorithms article for a few weeks and found it very useful.

To Rose, Melody, Brian and Jarrett thanks for your suggestions re. B12. My B12 level was 267pmol/L and was considered normal....however I have read some research that suggests there is a grey area for levels under 298pmol/L. I have also read that there is a test called the Active B12 (holotranscobalamin) test which is toted to be more accurate (????). My plan is to ask my GP or neurologist for this other B12 test. If they refuse I will begin to take the oral B12 supplement that you suggest.

To Dahlek and Joe for info on toxins and LP's. These are my next place to go although I have had a hair analysis done as a starter for the toxins and mineral deficiencies.

To Sliverlady, Roxie and Liza Jane thanks for general info and encouragement. Very much appreciated!

Megan, I hope all the info helps you get well.....or at least provides you much less pain!

Everybody brilliant,Glen you are unbelieveable,and yes to Lumbar
Puncture and sooner the better. But get rested and read it all.
Keep posting,your wore out and overwhelmed,we are all that way
at first...I hope your sleeping Sue

Sue you are right!
 

Megan you are so hurting, not understanding and plain out SCARED at first that it's only with luck that you get a doc who LISTENS and TESTS! I believe most of us have been there for a short or long while.....
It's a whole different language, about what you have, how you are being tested and why, and then what it all means....
Just get a diagnosis in the ballpark and work your way up the food-chain from there. I won't lie, it IS hard work, but, if you show you are willing to get 'there' wherever that is, I bet your doc [docs] will go to bat for you. If you trust the doc, honesty and candor can go very, very far.
GO get the tests, they are your only path to really know what IS, then it'll be up to you to work backwards to decide the whys.
Right now, it's the what IS and what can be done about IT that is key to plain old living and LIFE! The shoulda's and coulda's are past, just go forward, and IF I had a bulldozer at my disposal I truly would lend it to you! - j

Start Taking B-12 - No kidding!!!!
 

Megan:

If your B-12 level is 267 as you indicated, holy moly, you need Methyl B-12.

Doctors do not understand about Methyl B-12.

Your body is obviously not absorbing it.

I do hope you can go online and get the Methyl B-12.

Not promising miracles but that reading really is low for someone with neuropathy. It really made a world of difference for some of us.

Best of Luck

Melody