wow! that would be awsome. does it matter what the problem is though?
i have read that a few people have gotten impovement.
tried the stickies and couldnt see (yet) what modes might help. is there a sticky about modes of therapy that have helped people? i know about the b12. doing that. looking for something else to add to my plate.
thanks
steff

Yes, I think so. That's been my experience.

I'd take a LOT of B12, though... and if it's by means of the sublinguals it can do some damage to teeth... I found.

(now I'd rinse with a mouthwash fifteen minutes or so after each)

The other thing I'd do is use Epsom salts compresses and baths... The Epsom salts can help eliminate the toxins...

((((((((Steff)))))))))

like one sees 'plants roots'. You take out a potted plant it's got lots and lots and more fibres running to the main plant...then they branch off and get smaller. Those roots are similar to nerves.
Now for whatever reason...say take a blow-torch, dip in poison or just chop off some portion of those plant roots...there...you have what neuropathy is all about...dead or no longer existing 'roots'! Nerves because there are soo many and such a lot of nerve 'branches' can DIE very quickly. When the body's 'world is right' for them to regrow each nerve ending regrows [they guess...THEY being the 'scientists'] at about 1/4" each each month. You get nerve damage to the extent we have and well, you have MILES of nerves to regrow! That isn't going to happen overnite [and, believe ME! I want it NOW!?] It takes years. This is a patience thing, a way to change your life to make sure things happen and happen the best way YOU can make things happen - IF they are to be.
Now I for one do not LIKE to have to be patient. This tho is a thing one has to BE when having any type of neuropathy. Sometimes, damage can be reversed. At other times, not. This as well goes with the 'luck' of being diagnosed treated and getting the right therapies. I suggest you read David/Wings44 posts and others in the stickies. Since there are over 200+ and growing types of neuropathies and at least 20+ CIDP's this can get squirrelley in terms of diagnosing and treatments. Getting into YOUR mind, what all has happened in your life up to this point, what all has been done and then checking out LizaJane's worksheets...a beautiful 'roadmap' of options and some the the stickies can help YOU determine where YOU feel YOUR tests, etc should go.
And you better believe it, LUCK or 'accident of fate' often has a good deal to do with it.. Putting yourself in a place or path of such good events is up to you! Hugs and relief is what I wish for you soon! - j

PS do NOT browbeat yourself about anything you mite have done wrong before now? Just go forward and get stuff done!

When you say you take 'a lot' of B12, how much is 'a lot' if you don't mind me asking? I take 5mg a day,would there be any advantage to taking more?

Probably not, but there are some who benefit from larger doses.

Most, if not all, in going down the throat anyway. I would chew or swallow them.

rose

Dahlak,
That explanation of the nerve root system is the best I have ever read, easy to read and understand. I hope you don't mind me printing a copy as there is one particular doctor who needs to read it.

but just keep my name per-se out of it?
I Learned all this from lots of docs, the analogy to plants is my one concoction. It's just that Docs, would tend to 'adopt' this concept as their own? By being anonymous this way we can see WHICH professional...takes it as their own? HA.
I have read all [it seems] zillions of 'sources' about nerve re-growth mostly relating to LARGE fibre regeneration.. with a heap of stuff 'implied' regarding other nerve levels...all is 'implied' nothing documented or on solid record. It appears to be that death and regeneration for the most part is merely 'assumed'. Sad but true. [This is NOT just from/by/for PN nerve research - I assure you].

As I said, IF you want references to bring up...Lemme know. I can probably find you those sites [all truly legit, mind you] having any specifics.
Keep at it yourself? - j

I read somewhere a while ago that in japan they give up to 35mg of methyl B12 injections to people with neuropathy,I couldn't find much information as to what it did or whether it helped. Do you think taking that much orally may make a difference? Using Jarrow's 5mg would be very expensive but a company called AOR do a 15mg methyl b12 tablet....just a thought

Hi, I don't know if you've looked at my site at all, but apparently in Japan the low for B12 is 550, where as here in the states it is often as low as 180.

I've never heard of AOR, do you know where they are located. Certainly a higher dose per lozenge would be good.



I just Googled it, and boy it's expensive. I'm not sure why AOR thinks its prices are reasonable.

Still haven't found where the company is located, though.

****

I see, I found it in Canada and Great Britain.

I don't know... when I was going to get Methylcobalamin made up so I could give it away to people under stress, like after Katrina, I found that the basic methylcobalamin is really cheap. (I wasn't able to do that because of the problem with my condo, now in Appeal.)

And as far as I know it's all basically manufactured in the same places; what varies in vitamin lozenges is the purity or quality control on the amount included.

I know that when I lived in London many things were very much more costly than here in the U.S.

If I had a choice, I think I'd buy the less costly product since I think both Jarrow and Source Naturals have certificates relating to the purity...
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Hi Mark, I'm sorry I've been overwhelmed with court things and unable to sleep and unable, therefore, to keep up here on the forum.

In terms of how much I take, I use cyanocobalamin shots, and I have one most days, because most days I start to have increased symptoms of low B12, like nose bleeds, or numbness, or feeling depressed... I have lists of symptoms on my website; the symptoms are not the same for everyone.

The amount I have, therefore (you can tell I've just been writing legal stuff) is similar to having 6 of the 5mg lozenges a day.

It was only when I began having that amount, and sometimes twice that much, that I had my peripheral neuropathy that had been SOOOOO painful go away, and I could sleep on a regular mattress again instead of always having to buy air mattresses.

I've been having B12 replacement for a little over ten years... but it wasn't until I had the highly increased amount that the vast improvement in peripheral neuropathy took place.

If I were you and I could get my doctor to give me a prescription for shots, I'd go that route because it would be MUCH less costly than sublingual methylcobalamin.

If you use the sublingual methylcobalamin, be sure to brush your teeth more or use mouthwash... not surprisingly I had some cavity problems due to using the sublinguals repeatedly during the day and before I went to sleep at night.

I'm very interested to hear how things go for you.

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