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-   -   Finally asking for some help (https://www.neurotalk.org/peripheral-neuropathy/27652-finally-help.html)

dahlek 09-18-2007 10:01 PM

Chomp down all that Calcium stuffs!
 
My combo is 2 calcium sugar free chocolate chews[Kirkland/costco] w/ 500mg calcium carbonate and 200IU of Vit D plus one Calcium {citrate[160mg], D-[100IU]; and magnesium [90mg]}. Not to mention my pre-natal multi vite...which has little bits more. Had to add that last calcium tab to get the magnesium punch in...
BUT I had gone big time very quickly over thate line to osteoporosis due to the estrogen blockers now I take for the cancer f/u therapies [really it's chemo! DUH?]. As long as I keep chomping down all those supplements I guess things will be OK...won't know till my next Dexa scan early next year. Blood work seems to be looking as if there's lots of goodies to be TAKEN up by my body...Whether it is, the dexa will truly tell me so. The waiting is a killer tho...

I really don't think I could stick myself w/shots tho...I tolerate the IV lines going in by holding my breath and closing my eyes...never was a really good trooper about the needle thing EVER..tho I have tried! [I KNOW catheters aren't really needles, BUT......]

Would I be correct in assuming that the Forteo and the B-12 injections are IM rather than IV? IM I have done on animals and that's a LOT easier...as long as you know the zones to do it in/to...

If it comes to injecting myself? I dunno about having the husband do it...would need to take a LOT of considering on that issue...just hope I don't have to...

Billye - HUGS and I truly hope things are going in some direction that's positive....FINALLY? Please take special care - j

Yorkiemom 09-19-2007 09:32 AM

Well, I don't know what was going on then. They are testing the heck out of my friend though, who now is Osteoporotic and will probably get worse, since she has Addison's Disease and has to be on Cortisone for the rest of her life.

The doc she sees is the one who gave me the info about his colleague using adhesive to glue fractures back together...

I cannot say for sure, but I believe they have made great progress, not just at the school, but everywhere, in the treatment of Osteoporosis... However, we all have to go with whomever we are comfortable with and if you feel confident in your Endo, go for it!!! :) :) :)

I went through a study program there in the very early '90's. Much has changed since then though. There was not nearly as much available then to treat this with, just as they did not glue fractures back together then... :) :)

Cathie

Silverlady 09-19-2007 12:58 PM

Dahlek... and an update
 
About your post to me and the calcium you take. If I am reading the post right, ....you are taking 1,160 mg. of calcium. Are you sure that is enough? Both the arthopedic doctor and the gp say I need 1,600 mg. of calcium and the added D plus mag.

Got the new bloodwork. and it sums up by saying that the anemia due to chronic disease is getting worse and my sed rate has almost doubled. The rheumie is kicking up my dose of methotrexate to 8 tablets a week. (20 mg. a week from 15 mg. a week)

You know when I went to Mayo in Dec., we considered my disease to be stable. When I got home, the doctor decreased my immunosuppressants because I was stable and he thought we could try doing so. Looks like it was a mistake. I have steadily gotten worse since about the 3rd month of that. So back up we go. My thinking is now.."If it ain't broke, don't fix it!"

I've been in PT for 4 1/2 weeks and as of Friday last week I have been so crippled that it hurts (in the buttock area) to walk. The Physical Therapist thinks my SI joint is all flared up. So, all the painful gains I've made in muscle strengths in the last month will probably go downhill since I am now limited in movement again. And I only have one more week of PT allowed by insurance.

I've been giving the info Mrs. D gave me about the Indomethacin and silent bleeds real thought. I've decided I'm going to quit taking it and the Nexium to see if it brings my RBC, Hemoglobin and Hematocrit back up. Any thoughts on this?

Billye


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