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#41 | |||
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Please let us know how you are doing. I am very worried about you. One of the things on the list of causes of swollen legs is heart failure or kidney failure, and either those can become the cause of shortness of breath.
You're too quiet tonight....
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LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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#42 | |||
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Senior Member
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I am so sorry, it looks like I've frightened some people. I've since spoken with Liza Jane. She knows I'm o.k. I did not think about it but several of you thought I had a doctor's appt. this morning. It wasn't a doctor's appt. I have the doctor's appt tomorrow.
Today was slightly better. I'm still swelling. But I had planned with my husband for about three weeks to attend his Kiwanis Officer Installation Banquet tonight. I'd even bought some special clothes for it. Then the swelling got so bad and I felt so crappy. I felt like it was planning down the drain and we were both disappointed. Then yesterday I felt better and this morning it was about the same, so I spent the day on the couch in front of the tv with my little dog. Keeping my feet and legs up. I took the first nap I've had in a couple of years. And tonight I had dinner out for the first time in two years. Wasn't easy. It was one of those metal folding chairs and the only way my behind survived is because they had so many standing ovations. But I didn't disappoint my husband or myself. I went. I saw old aquaintances that I haven't seen in two years. I got hugs I needed so badly. The meal was too salty, I'll pay for it tomorrow. But I see the doctor tomorrow. We'll let him figure out what is going on. I'm now loaded with bunches of questions. I called the Endo yesterday for test results. I've heard nothing. I'll call her back tomorrow. This is ridiculous. The only thing I can think is that maybe all the tests weren't in or weren't in my file and the office help is trying to catch up from the holiday. This is way too long, but I know some of you are worrying. I'm such a lucky person to have you all. ![]() Billye |
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#43 | |||
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Senior Member
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Well this morning I got up and my feet were not swollen. Neither were my hands. You go figure. And of course I had to see the doctor about all my swelling.
My husband and I had a long discussion with him. He is thorough. He did a physical hands-on examination, liver isn't enlarged, spleen, heart, lungs all normal. He told me to have blood drawn to check the markers for inflammatory processes and at the same time is checking bloodwork for diabetes. He believes the swelling is simple edema and will probably go away as the weather gets cooler. He still maintains that he is doing all the right things for my bones and inflammatory disease. But he admits it isn't working. He said he will not oppose Forteo for my bones if the Endocrinologist recommends it. And she has already said she will probably put me on it. He is a doctor who believes in conservative treatment, if at all possible, because my body is being subjected to so much in the way of toxic substances. The bone scan was negative for a stress fracture but he says it doesn't necessarily mean I don't have one, just that he doesn't think I do. But he cannot account for all the pain. I quite personally believe it is the inflammatory disease. After all, I'm sero-negative for everything. Oh and for Liza Jane,...he does believe I have Rheumatoid Arthritis because of the xray markers I have. Hands are symetrical in damage, so were knees. I'm extremely tired, but still don't have the full picture of what is going on here. I will post as I have info. Billye |
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#44 | |||
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Member
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nighty night
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LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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#45 | |||
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Senior Member
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Quote:
I am soooo sorry to read this. I'm also sorry I've been so exhausted and not coming here so that I would have seen this sooner. I'm sooo sorry to read that you are having these awful problems. Have you tried Serrapeptase? I started taking it last year and have been impressed with the results. It reduces swelling, for one thing, and it helped with my back pain. The other thing I do when there's good sunlight to heat my water, is soak my feet in Epsom salts, which also relieves swelling. When I lived in the hydrogen sulfide I had huge swelling, my ankles looked like elephant's legs... Epsom salts baths made a visible difference. Which reminds me, if you have a house with two bathrooms, and you only use one, the water in the traps in the one you don't use can evaporate and that can allow sewer gas to come into your home. That's basically what the hydrogen sulfide was, that I experienced. Almost everyone thinks that someone would be able to smell it, but what the air quality guy told me was that it deadens the olfactory nerve first, so in fact you don't smell it after a short exposure. The other thing that I know has been helping me is the Whey amino acids which I have in my coffee every day. (((((((((Billye)))))))) I have to go, I just came to get the link for that sugar and pain thread that Belinda started.
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Do you know the symptoms of low vitamin B12.... ? |
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#46 | |||
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Member
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HI Billye!
Gosh I'm SO sorry to read of all the problems you have been having! I can't imagine how miserable and frustated you are having to deal with such things! I sure hope your dr.s can figure out what's going on and then a treatment plan to help you! Keeping you in my thoughts ![]()
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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#47 | |||
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Senior Member
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Hi Billye,
I forgot to mention that when I was living in the hydrogen sulfide (from the privy pit I didn't know about) I couldn't eat any mustard or anything with vinegar in it. If I did, the swelling would vastly increase. Also, at that time I had dips in my fingernails... sort of like valleys that went from side to side. So if you have those, you might be having some sort of toxin problem that is overwhelming your body. I'm afraid I don't have any pictures of my fingernails when they were like that. My old camera wasn't very good. I sure hope I get the equity from my condo, because I'd like to get the camera I saw that shows red better than the one I have now.
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Do you know the symptoms of low vitamin B12.... ? |
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#48 | |||
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Senior Member
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I received a phone call from the Endocrinologist today. Seems that everything looks o.k. except my Vit. D level. It's low. Strange because I'm supplementing with Calcium plus D (Equate brand). I'm to take 2 months of a prescription Vit. D then she will start me on Forteo for my bone situation. This will be hard to get past my GP/Rheumatologist because he isn't a fan of Forteo. Not sure why. I asked his nurse about this and she said the drug rep they have now does not keep them supplied with the Forteo. I have private insurance and this drug is on the formulary so it shouldn't be a problem for me. Like Liza Jane, it will be a two year initial treatment with an injection every day. I'm not looking forward to this. I don't do well with sticking myself. I've done it before with Imitrex for migraines and I've also done a few of the Humira. But I have long since given it up to my husband to do for me,..... he seems to relish the thought of sticking a needle into me.
Billye |
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#49 | |||
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Member
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Yuk. I hate sticking myself too. My husband does it for me-his eyes kind of light up when it is B12 injection time...
![]() ![]() Have you thought about seeing if you could get a referral to the Mineral Metabolism Dept. at the med school? My friend is going there, although she has not been put on Forteo as of yet. I don't know if they are going to put her on it or not... My ObGyn wants me to go also. Cathie |
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#50 | |||
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Senior Member
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Cathie,
I've been there done that about 8 years ago. I was seen by the head of the dept in a research program. I had all the tests run and was told I didn't need to take Fosamax!!! ![]() Billye |
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