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Anyone with Anti-MAG neuropathy?

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Old 06-09-2009, 09:30 AM #1
MAGLADY MAGLADY is offline
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Default Mag neuropathy
I wonder if you are still on this site..funny I have MAG too and have actually stayed on Lummi island.

Write back if your out there.

Maglady
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Old 06-10-2009, 08:14 AM #2
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".............I wonder if you are still on this site......."

I doubt it
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Old 08-29-2009, 10:32 PM #3
NancyKay NancyKay is offline
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Quote:
Originally Posted by MAGLADY View Post
I wonder if you are still on this site..funny I have MAG too and have actually stayed on Lummi island.

Write back if your out there.

Maglady
Hi Maglady,

How amazing that you have anti-MAG neuropathy and stayed on Lummi Island! I am 54 and have been diagnosed for about 8 years. I've gone down to Virginia Mason Hosp. to see a neurologist there. I'm not currently receiving any treatments, but would like to try Rituxan. Let me know what you are receiving in the way of treatment and where you are going to get it.

NancyKay
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Old 09-16-2009, 01:32 AM #4
NancyKay NancyKay is offline
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Originally Posted by MAGLADY View Post
I wonder if you are still on this site..funny I have MAG too and have actually stayed on Lummi island.

Write back if your out there.

Maglady

Hi Maglady,

It's great to hear from you! How are you doing? How long have you had anti-MAG neuropathy? It is a bit over 7 years for me. I am seeing a neurologist at Virginia Mason in Seattle. I'm not sure what treatment to try next. IVIg worked for a while, but I've been off treatment for almost 2 years and the numbness, burning, poor coordination & fatigue just keep slowly progressing. I need to get started on something that works. Hope to hear from you soon. Where did you stay on Lummi Island?
NancyKay
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Old 06-13-2010, 06:54 AM #5
jurgen975 jurgen975 is offline
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Why dont you try electroacapunctuur it helps me but i have still long way to go.And if it helping allot of other people then why not try it?
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