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-   -   Mayo!! or Bust!! (https://www.neurotalk.org/peripheral-neuropathy/280-mayo-bust.html)

dahlek 09-07-2006 01:17 PM

What is this good Humidifier? ...
 
Ohh, please, share? I'd always take a bath towell, totally wet, and put it over the blowers - would always be bone dry in the AM!


I know of a diabetic who keeps her meds in a mini-frig plugged into the liter. I can find out more if you wish...Tis easy..
Is there a place we all can send you your therapeutic choccies prior to, during or after this whole thing? Can only speak for myself, but CHOCOLATE IS GOOD!!!!!! Should anyone say to the negative,...I simply ignore them!
Imagine! Your hotel getting heaps of 'care packages'! Wouldn't that be cool? After all, you DESERVE THEM!

When I was in 'deep' VA, yes Moon Pies were a common source of nourishment! THE Good stuff is not to be ignored. - softest fuzzies ever, in heaping quantities! - j

Silverlady 09-07-2006 02:15 PM

Answer to Dalek
 
The personal humidifier I've ordered is the Medisana Personal Humidifier. I don't know much about it except for what they posted on the forum. It is packable.

I hope it will help. I use two humidifiers in the bedroom in the winter and one cool mist in the summer.
Billye

dahlek 09-07-2006 02:50 PM

Sounds good!...
 
If I don't find it first, I'm betting Melody will!
Melody [I hope you don't take offense - absolutely none intented] - But you DO have a very serious and admirable shopping gene! Have you ever considered consulting?

Billye, How many dozen Moon Pies do you want delivered to yer Hotel? OR, if the comfort requirement is necessary...where to send? PM someone...we'll all get together and pitch in! Should you get a 'deluge', no doc in the world would treat you 'litely'! They know, that we know, that they know? They are worse than gossipy old ladies in some quarters ...fuzzies and hugs - ALWAYS - j

jccgf 09-07-2006 05:13 PM

Quote:

Have any of you been to Mayo? Did you have to take your own wheelchair? We are going to be crowded for space. I'm hoping they have some I can use. I can't walk very far any more. What do you know about the hotel/motels around the clinic?
Karen from the GS/CD board took her son to Mayo a couple of years ago, and I think she had some tips for motels, restaurants, and such...BUT...I haven't seen her since BT went down. I'll see if I can track her down for you.

Otherwise, if you really need some leads for lodging...my son's girlfriend is from the area (her Dad works at Mayo), and I'm sure I can get some hotel tips from her. I'm a big fan of sniffing out good motel rates online, but it will be important for you to know exactly where you will be in proximity to the clinic.

On second thought...nevermind. I bet you are going to the Mayo clinic in Arizona. I'm so used to the Mayo meaning Rochester, Minnesota...because that is the nearest to me.... that I forget there are others :o. Karen was from Oregon, but went to the clinic in Rochester.

Well, December is still a ways away, so I won't wish you the good luck yet, but I am really happy that you were able to get the appointment.

Cara

Silverlady 09-07-2006 09:07 PM

more of the same,almost..
 
Dalek,
I can't eat Moonpies or unfortuntately Dove chocolates. :( I'm gluten free diet wise. Sjogrens has a high coincidence of gluten problems as do most autoimmune/inflammatory problems. I am just afraid to push my luck and compound my problems any more. But I appreciate the thoughts. We ordered the humidifier from Amazon. But there may be a better price from ebay. Melody will find it if there is. :)

Cara,
We are actually going to the Rochester Mayo. What do you know about the Soldier's Field Best Western? I was given the link to it on npnc by Wendy. It looks good but you never know how old the on line info is. I like the idea of the breakfast, transportation and new Dreamsicle Mattresses. I dread sleeping away from home because we have a Tempupedic mattress. I've also got a fedish about sleeping in someone elses bed. Weird.. I know. Restaurants are not an issue for me, since I can't sit without a lot of pain. I eat my meals pacing, sitting and laying down in increments continuosly.

Billye

MelodyL 09-07-2006 09:25 PM

Here's the humidifier info!!!!
 
Here's a link to the humidifer:

http://www.ekitchengadgets.com/meulp...=01-Hah1500EBP

-----------------------------------------------------------------------

Medisana Ultrasonic Personal Humidifier Hah1500EBP
Product Info Related Items
Features:· Moistens up to 1,000 cubic feet of air in approximately two hours · Helps break up congestion and make breathing easier all while you sleep; includes eucalyptus cold therapy sample · Up to 10 hours of continuous use · Ultra-sonic technology for silent operation · Features soothing blue LED lamp and hi/low vapor flow control

--------------------------------------------------------------------

AND WHAT THE HECK IS A MOON PIE????

Mel

Silverlady 09-07-2006 10:43 PM

Moon Pies
 
Mel,
It is a cake thingy made up of two large chocolate covered cookies with marshmallow cream in the center. To die for with an RC cola.
I knew you weren't from the south.
Love,
Billye

glenntaj 09-08-2006 06:08 AM

Mel--
 
--think Scooter Pie (that's a Northeasten thing, for those who haven't heard of THAT), only tastier (and a bit larger in diameter).

My wife was at a conference in Nashville and returned with a box of them, which I can't eat. Sigh.

I didn't know you were gluten-free, Billye. I humbly apologize and withdraw the Moon Pies--maybe some macoroons? :)

Silverlady 09-08-2006 08:18 AM

Macaroons it is.
 
Sounds great Glenn, as for the Moon Pies and Dove Chocolates, I can dream....sigh...
Love,
Billye

MelodyL 09-08-2006 10:38 AM

Oh!!!! SCOOTER PIES!!!!!
 
Now you're talking!!!!!

Oh yes, I remember well, my days of eating Scooter Pies.

How the heck do you think I ballooned to 300 lbs? when I was much younger.

Between the Hostess cupcakes, the Devil Dogs and something out of this world that I bet you never heard of called a SUSIE Q!!!!

Oh my god!!!!

Alas, those days are over for me.

I live on produce, produce, produce, fish fish fish, and veggies veggies veggies.

Alan eats this plus his protein whey shakes.

Oh, I'm happy to say he gained 3 lbs of muscle. Went from 184 to 187.

Of course he things he's fat now and I have to go to him

OH, no, my dear, you look just like Arnold Schwartzenegger!!!

He just LOVES THAT!!!

my god. I wish someone would tell me I looked like Gina Lolabrigida....


mel


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