Hello -
It's been some time since I've posted. I was rolling along fairly well. Someone told me about NAET along with accupunture treatments. I decided to give it a try. Well, this seems crazy. But, PN makes me crazy, so no matter.
Anyway, the NAET is a form of muscle testing and treatment for allergies. I'm certain many of you have heard of it. It may have helped balance me out in some manner, but my PN has gone off the charts! I think I'm dying here. My feet are burning, throbbing, buzzing and stinging horrible.
I don't know if it is the weather or coincidence, but the pain level has gone through the roof. I've had 6 treatments, but will not get anymore in case they truly are stirring up something with me electrically! I take Neurontin with Vicodin for my pain. It does not seem to do much help now at all!
I thought maybe my nerves were actually trying to heal, but this is not fun.

Anyone ever had a bad experience with accupuncture or NAET? Do you have an opinion about if it could make things worse for me like this?

Hi Carrie, the hot weather used to aggravate the heck out of my small nerves, nerve's healing can go a crazy too its hard to tell the differance at times but i found it normally followed by very slight severity of symptoms, there was no certain pattern of the amount of time they would flare for though.
I was told by a Gp that has spent decades practicing Accupunture that it would not help or repair my small nerve damage, i know its fantastic for muscel spasms and heaps of other complaints, sorry i don't know anything about NAET.
Can you see your doc to see if you can adjust your meds or add another whilst you are going through this hard time ? sometimes we can build up a tolerance to certain drugs and they don't seem to work as good as before.
good luck
Brian

I was thinking of getting acupuncture but now not sure. Anyhow do you think maybe some was in a very senstive area. Like for ex my issue is in my legs/ankle/feet so I was not going to have it there. Maybe Brian is right about the meds too. Hope your feeling better

Since this was your first post, it seems to me that it's hard to respond to anything about NAET...I don't think I've come across anything in the NIH or other medical research about it... Actually this is the first I've heard of it!
I do know that a few folks have responded well to accupuncture by itself, but that it's like chiropractic and naturopathic therapies...not guarantees...not covered by insurances [a BIG factor for most of us] and they just seem to last a short time and go on, and on, and on.

Not that 'conventional medical treatments and diagnoses' are much different, but...there are usually a WHOLE lots of steps in the diagnoses and selection of treatments and therapies in that system...read some recent posts and if there is a web site in 'BLUE' [anywhere in the 'stickies/important information ' above or in any posts], click it on and you will get the site 'cited'...Read away and learn. It's a WHOLE LOT to read, asorb, learn and begin to use and apply to your situation or any other.

I have been going thru my mental 'memory bank' thinking of any 'allergy induced' neuropathies and am drawing one big total ZERO...

Could you please tell us more about your medical situation...onset, timing, how many docs you've seen, tests you've had, and what they've said about it all? We are a collective group of good minds here...mostly other than mine for sure and we all have a 'variety' of problems involving 'neuropathy'...Everyone gives what good insight and support that they can...please tell us more and all are going to try their best to help you! TRULY! I know because they have helped ME for a long time now...over 4 years...I would be a true basket case were it not for all the help, support, information and just plain kindness all have given me! So? - j

I have run accross references to this therapy before. Especially when dealing with the antibiotic remedy approach to the autoimmune disease. I went searching for info to post and found wikipedia. It seems to best summarize my feeling about Naet http://en.wikipedia.org/wiki/NAET But who am I to judge or make a decision?! If it is a placebo, and it WORKS, by all means continue it but it looks like it may not be working for you. Also, this statement...."Its recommendations for dietary restrictions based on nonexistent food allergies are likely to place the patient at great risk for nutrient deficiency."...make me wonder if possibly you have a nutrient/vitamin deficiency that you have made worse by following this protocol. Perhaps you should have a panel of bloodwork run by a doctor (other than the Naet doctor) and check your vitamin B12, E, D, etc. bloodwork to see what if anything you are low in.

Billye

what is Naet?

Nambudripad Allergy Elimination Technique

See http://www.naet.com/subscribers/what.html for explanation of NAET

I appreciate each response, very much! Since I've posted, the pain has not let up a bit!
I've had PN for six years. It began following heart surgery for afib. Afib followed Graves Disease. Heart meds gave me Lupus. I'm well now except for this PN. All tests point to Small Fiber Idiopathic. I've had three Neurologists. Quit the first after becoming tired of listening to all of his problems and all he wanted to do was give me more pills. The second was fine. Although after he gave me Cymbalta and it had severe side effects, he tried Lyrica, and when it failed (causing worse pain), he just told me to keep on Neurontin and do the best I can and pretty much seemed to push me off to the side.
So, going hunting for answers myself, I found this place. I read all the time, and get comfort knowing I'm not alone - though I hate others must suffer too from this horrible stuff. Family does not understand the agony of the pain. I grin and bear it best I can.
Lately, it has been almost too much.
I fell in the street (walking) in February. I had to have knee surgery in April, and am still recovering. I have swelling in my knee and leg, but it is getting better now. It has been a long healing process and will take up to a year I am told. I fell because of the PN making me so clumsy. I am grateful though that it is getting better, even if slowly.
I decided to try the acupucture and NAET when hearing about it from where I was getting physical therapy for my knee.
I have not been back since I last posted to you. I agree now, that it is not for me. I don't know if it caused my PN to worsen, or the summer heat, or the stress of knee recovering or what. But, the PN pain is still UP over what it was before the acupucture and NAET. I did read the article Billye mentioned, and would have to agree that NAET is questionable. But, for some reason my PN is so awful now I am not doing well. I've been very depressed. It has been hard to talk about anymore. I'm just too tired of the pain.
I see my heart doctor tomorrow for a check up, and will discuss the problem with her. I will see if I can get in to see my neurologist before Friday also. I just feel I won't get anymore answers than before. The drugs I can take are limited since I seem to have adverse reaction from so many.
I will take Billye advise and request blood tests. I do take B12, LCarnitine, and ALA. I once thought they were helping, but now nothing seems to help.
I'm sorry I sound like a cry baby. It has been really rough lately. Thank you for being here.
Carrie

Carrie,
Your poor body has been thru a lot! No wonder you are feeling the way you do. It sounds as if you have autoimmune small fiber neuropathy. Has anyone suggested IVIG to you? Also, see www.lizajane.org It has a lists of tests that can be done and it would be good to know what tests you have had done.

I really hate to say this and please folks jump in and correct me if I'm wrong. But doesn't autoimmune thyroid disease and Lupus cause neuropathy? If I am right, then there is not much sense in doing any more testing. It is just more money spent when you already know what is causing the neuropathy. Please please correct me if I'm wrong.

Autoimmune neuropathy can be treated with IVIG. Here is a quick explaination of IVIG: http://en.wikipedia.org/wiki/Intravenous_immunoglobulin

Also, you might want to see a good pain control specialist. Hope all of this helps.

Billye