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Old 09-20-2007, 07:55 PM #11
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Such a devout christian shouldn't lie... right? Heh. I guess no ones tried it... I sent off an email asking for the active ingredient, and nothing yet.
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Old 09-20-2007, 08:11 PM #12
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Cool Smirk Brother in law......

........tried it. His testimonial...Snake Oil .
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Old 09-20-2007, 08:19 PM #13
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Snake Oil??

Come on, more information.....please!!!!

Melody
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Old 09-20-2007, 09:42 PM #14
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Default More Information????

POint is...you either buy or get no response to questions...ergo..you are either a sucker or ignored-translate in certain speak an IGNORANT 'non-beleiver' - Sad case of luring folks in when they have pain enuf.
Also the mention of 'Nobel cited' chemist? that is referred to on page one and no where else. No Nobel 'name' or references of any legit credentials. [HEY? MUST BE A SECRET?]

Honestly if this stuff were sooo good? Wouldn't it be up in the stickies? or even IN the stickies as a thing to avoid?

I too wish for any magic bullets I could find...Only close alternatives to those ones of DRUGS,or THERAPIES have been the 'rebuilder', Tens, spinal stimulators, and Physical Therapies...aside from proper vitamin and mineral supplements of course.

Responsible companies who wish to reaffirm their product and it's quality will respond...Responsible companies WILL submit themselves to scrutiny...Those that aren't do not open their products or approaches to questions and it's all the more questionable. Save it [$] for pain med costs- meds to be used prudently! -j
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Old 09-21-2007, 04:40 PM #15
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Dahlek:

When I said more information, I wanted to know what the tube looked like, what the creme felt like, if they think it had capsaicin in it, etc. etc.

It would be good for us to actually see this product. I thought maybe the guy could snap a photo (like I did of my bio-freeze), and put it on this website.

I love to learn about all new stuff relating to neuropathy, scams, whatever. That way we can spread the word to people we know who have neuropathy.

And I know plenty of people personally.

mel
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Old 09-21-2007, 07:44 PM #16
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Default Well I had a friend check and ask...NOT ME!

I don't want hate mail...They Got a nice response -thank you for asking etc...but we can't tell you what's in it because it's PROPRIETARY...[aka SECRET]. And a nice comment from the nice doctor[PHD] not medical or chemistry doc, either, mind you,-- That it helps his neuropathy soo much he can feel the texture in his shoe's soles!
Well fine and good...my problem is I feel too much texture and it's all distorted thanks! Salve that would make me feel more? Well, no thanks, thanks!
Well, even aspriin lists it's basic contents...the process and combo is the 'Proprietary' part! DUH? IF it's patented, or has a patent pending...anyone here got the cheap 'in' to see what all is in there? I for one really don't feel like paying the bucks to get a copy of the 'patent' which I doubt there is....
Looked at the 'site' Price is about what $35 for a one month supply of goo? Not to mention some rich $'s extra for S& H [they always getcha there].

Still can't figer out the 'Nobel' references... - j
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Old 09-21-2007, 09:03 PM #17
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Actually, as soon as I saw the word Nobel, I immediately thought of Alfred Nobel who has the Peace Price named after him. (At least I think his name was Alfred)

Anyway, as soon as I realized I thought this way, I said to myself, "Aha, that's what they want people to relate this to". People will say "Oh, this is Nobel, so it must be the real deal".

What a sham.

Mel
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Old 09-21-2007, 09:49 PM #18
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Default Melody, quick on the uptake....

..as they say. It's all about what is NOT said in-between the lines...or one big vacuum. 'Name Implied, name inferred...name reality? -different'
I guess I for one, am beating this aspect to death is that...we all want to find some 'easy, simple' solutions! Wake up and smell [or not] the 'roses'- or, other stuffs?. The solutions do not exist...If they did really work...such as this...well we all would be over it like flies on stuff! Not enuf of us are going GO FOR IT or NOT... I don't think there is a person here who would give it a try if IF it had a tad more credibility...$40. +$20+ S& H for a one month trial equals in my calculations one to two Doc office co-pays and then some...not to mention the testing costs...I somehow thing the useless doc office visits are worth more?
Now,, IF'n I were to get a 'ONE MONTH FREE SAMPLE?' Maybe , it'd take me lots of re-thinking IF I knew what 'ingredient's' there are, as I could get the 'simple/complex' rash from Chamomile...for example? Shy away, spend the bucks on 'hopefully' more competent docs! I mean, all goes down one big, black medical hole any how, doesnt IT? I sure wish I could be more sunny or optimistic rite now...Maybe I need a pair of Mrs D's Goggles...these days are getting short...and it's the light or my meds! GRUMP? Gonna say GIMME LIGHT!! no brainer? Hugs to all.. and hope - j
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Old 09-22-2007, 10:32 AM #19
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Well the one thing we have to pursue is a viable treatment, or procedure to end neuropathy, and Alan for one thing is doing such a thing.

Don't know if anybody read my latest post on crysosurgery, but yesterday, Alan spoke to Hospital for Joint Diseases in NYC. They are affilited with NYU, and the ortho surgeon there, does crysosurgery on the foot. He wasn't there, so Alan couldn't get specific answers, but Alan did speak to the girl there and he told her all about his neuropathy between his toes, and he asked if this doctor did cryosurgery for neuropathy.

The girl said "well, he does do crysosurgery on the foot, but since he's not here, I can't give you an answer to your question". But she took down everything Alan said and she promised to run it by the doctor on Monday and to give Alan a call back.

And they take his insurance.

So, (and this is a stretch, I know this), since every single thing he's tried for 15 years has ended up to him still having pain between his toes (from time to time), not all the time, but enough that he says "jeez, I hope that somebody invents a procedure where they can just zap these nerves".

and lo and behold, we go on the internet and we see "crysosurgery for Morton's Neuroma and neuropathy", well, I mean, we have to pursue this.

It's only a $15.00 copay to be seen by this guy. Unless of course, the girl calls us back on Monday and says "no, he doesn't do neuropathy".

I, for one, do not understand how a person can do crysosugery on a Morton's Neuroma, and won't do it on neuropathy. I hope Alan is not told this. Because if a person has three toes on the right foot, and two toes on the left foot (Alan told her "I have 5 toes affected by neuropathy), and if this procedure can work on Morton's Neuroma, then why, can't it work on nerves causing Neuropathy??

I mean, they give you a local to numb the area, they insert an ice cold probe thing, they zap the affected nerves, they wrap you up, and the next day you simply put a band-aid on.

Do you have any idea that if this procedure does in fact do what it is purported to do, how many people can benefit?? It's not for everybody, I understand this. But for the certain ones, it can make a dramatic improvement in their lives.

So here's hoping, that on Monday, the girl calls us back and says 'Oh the surgeon would love to see Alan".

One can only hope.

Will update.

Melody

P.S. Want to know what I find completely strange??? Every doctor we have seen, (including neuro's, surgeons, podiatrists, etc.), well, I've always asked this one basic question. "If Alan only has neuropathy between certain toes, can't you just zap these nerves and get rid of the neuropathy, or can't you just remove the nerves???" I was always given a look as if they were thinking "is this lady out of her mind??" One doctor said "of course we can't touch those nerves, there are millions of nerves involved". I would say "but he only has it between certain toes, there are millions of nerves there??" and they would still look at me like I was crazy.

Then I go on the internet and see "cryosurgery for Morton's Neuroma and Diabetic Neuropathy".

I guess I'm not out of mind after all.

I believe all things should be investigated, if only to rule them out.
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Old 09-22-2007, 07:21 PM #20
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Default Mel--

-- a lot of this, for Alan, may depend on several factors.

I imagine the cryosurgery has a much better chance of success in cases where it can be demonstrably proven that a particular large nerve is the symptom culprit, such as it would be in Morton's neuroma, in which the neuroma is obviously growing from a particular nerve.

It would have to be one of the larger, myelinated nerves for it to work even in this case, though. And that's where the caveat comes in. If Alan could be proven to have neuropathy due to a specific compression of one fairly large nerve somehwere in the foot leading to the toe area, then cryosurgery would have the chance of zapping that nerve and getting rid of the symptoms.

But, I suspect that more is involved with him than that; that he does have some systemic autoimmune issues (and, of course, he has psoraisis) that are contributing to his condition.

Moreover, it's likely that at least some of his really small unmyelinated fibers are affected, and those would be too small to find and zap accurately with the currently available instruments.

Now, it is true that he may get good symptom relief from things that release compression from the area--Dr. T's manipulations, your toe spreaders and sponge creations--because of the double crush phenomenon. This is the idea that people with damage to nerves from other, systemic causes are more likely to get increased or new symptoms from compressive forces on the nerves than "neuronormals"; increased compression has a much greater affect on already "damaged" nerves, and even if these nerves were not very symptomatic before, the additional compressive forces may trip them over.
This phenomenon in well documented in diabetics, who suffer far more from compressive carpal and tarsal tunnel than "neuronormal" groups. Many of us here, of course, myself among them, have reported being more prone to pressure palsies and other compessive nerve effects after our neuropathies began than we ever were before. I even wonder, for instance, if your own situation may be exacerbating your sciatica more than it otherwise would be--you could have some sciatic damage traceable to your diabetes, and feel symptoms more often from the pressure there than you would if you didn't have the condition.

This, of course, is another strong argument for controlling blood sugar and taking B12 and other neuroprotective and neurobuilding supplements.

It wold be interesting, if Alan is seen by this doctor, and you give said doc all of Alan's medical history, how he would interpret the chances of the surgery. My supposition is that if Alan had a mono- or multiple mononeuropathy down there directly traceable to compression and no other cause, he'd be a better candidate--given the autoimmune history and the probability of systemic invovlement, it'd be much harder to assume success from the procedure.

Last edited by glenntaj; 09-23-2007 at 06:36 AM.
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