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Old 09-21-2007, 07:06 AM #1
amit amit is offline
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amit amit is offline
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Default "you save my life"

I'm so thankful finding this forum. All the information and the people I meet here, help me a lot. I was so desparet and frighten at the beginning and you all gave me hope for a better future, with all the tips and idea for proper diet and activity. Now, I look positively at life.
Thanks.
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Old 09-21-2007, 08:01 AM #2
Megan Megan is offline
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Megan Megan is offline
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Default I agree!

I feel much the same Rina! As a relative newcomer too I've found it has been very helpful having a few people who have 'gone before' us and have both done their homework, so to speak, and also have first hand experience of living with Peripheral Neuropathy.

How long is it since you have had symptoms of PN? Have you been diagnosed with a cause or is yours idiopathic? Also have you been feeling unwell in addition to the PN?

I have found extreme fatigue and nausea more debilitating than the actual 'burning/buzzing' sensations which are not nice....but everyone reassures us it gets easier to cope with as time goes by!!

Look after yourself!
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Old 09-21-2007, 09:14 AM #3
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Roxie2007 Roxie2007 is offline
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Roxie2007 Roxie2007 is offline
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I'm glad you two are here and love this site too! Where would we all be without it??
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 09-21-2007, 09:37 AM #4
daniella daniella is offline
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Its like a little family. Really the knowledge and compassion is so wonderful. Its like therapy and education. I really thank the people too that have progressed through this to better and how they still stick around. It gives hope. Thanks.
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Old 09-21-2007, 02:42 PM #5
belinda1317 belinda1317 is offline
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You guys, I SERIOUSLY thought only me, my sister, and my brother had all these strange happenings. NEVER had I heard another person mention the things that were occuring with us and I just thought we had some freak thing going on.......and would probably all die from it eventually. So glad I did some research and found this forum. It has been a Godsend!
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