Article about the rebuilder...

echoes long ago · 04-16-2010, 04:33 PM

nah im still working off broadway, i hope to make the big time on broadway someday

the first thing to know about NYC is that no one above the age of 21 that lives in Manhattan was born in NYC. They all came from somewhere else. (this also now applies to park slope brooklyn,brooklyn heights and south brooklyn )
If you want to meet real New Yawkers ya gotta go to the outta boroughs.

nide44 · 04-17-2010, 08:42 AM

Quote:

Originally Posted by echoes long ago

.......If you want to meet real New Yawkers ya gotta go to the outta boroughs.

Don't forget Miami, Fla. !!

(on the beach, or playing Golf)

echoes long ago · 04-17-2010, 12:35 PM

dokh......

220powerguy · 12-21-2010, 05:51 PM

Quote:

Originally Posted by malawigirl08

Hi I posted this on another thread but just in case you miss it, this is my experience with the rebuilder

I bought the rebuilder in September and used it twice a day - the dry method as i didnt like the fuss of using water - at first I set it too high and felt my nerves were frazzled - the pain was awful! I contacted the on-line support and the girl said I needed to reduce the setting that I had overworked my nerves so wait a few days before using again - I put the setting at 2 and continued twice a day and felt great improvement - the soles of my feel felt like lumps of flesh that werent connected to the rest of my body, a strange feeling but I was euphoric(an end to this nightmare was in sight) - after a few weeks my pain levels got really bad again and after consulting my GP i stopped using this - but by now it was winter and we have seen the worst snow that I can remember and I dont know if anyone else notices the cold weather increases their pain? I have recently started to use the Rebuilder again and get total pain relief while it is on and the pain then gradually builds up again - i am in two minds about whether it is working or not so would not recommend anyone rushes to buy it at that price but i will keep you posted on my progress with it - hopefully by the end of this year I will be evangellical about it as I will be cured - I am known as the eternal optimist!

Sorry I couldnt say it is agreat cure also like you I decided not to take meds but over time I have had to and now feel like a drug addict - I can now tell the time by my pain levels rather than a watch and know when my meds are due - you do what you need to to get by - good luck

It is a few months later and I was curious if The Rebuilder was working for you. I have severe neuropathy pain brought on by chemotherapy and radiation treatment. I am taking too many drugs that just dull my senses. I am desperate for some relief and The Rebuilder sounds like it might help. Thank you.

mrsD · 12-22-2010, 04:01 AM

Hello 220powerguy, and welcome to NeuroTalk.

Neuropathy from chemotherapy may respond to some supplements to help repair damaged mitochondria from the cancer treatments.

http://neurotalk.psychcentral.com/thread121683.html

They are most effective if taken during the treatments, but I would still try them, because you may still have some working mitochondria left.

Acetyl Carnitine has some studies showing usefulness in chemo.
The other supplements that help with it are lipoic acid and
CoQ-10.

You should get your Vit D level checked and also B12.
Vit D is showing potential as a cancer preventive agent. It also helps with chronic pain states.

My B12 thread is here:
http://neurotalk.psychcentral.com/thread85103.html

Vit D information:
http://neurotalk.psychcentral.com/thread92116.html

Dr. Smith · 12-22-2010, 08:29 AM

Quote:

Originally Posted by malawigirl08

....I decided not to take meds but over time I have had to and now feel like a drug addict - I can now tell the time by my pain levels rather than a watch and know when my meds are due - you do what you need to to get by - good luck

Hi malawigirl08,

I know this is an older post, and perhaps you're past this, but this paragraph really jumped out at me.

Anyone taking appropriately prescribed medications as prescribed and for the reason(s) prescribed is not an addict.

It's important that old misconceptions and confusions be dispelled; dependence and addiction are not the same thing!
From: http://www.ampainsoc.org/advocacy/opioids2.htm

Addiction
Addiction is a primary, chronic, neurobiologic disease, with genetic, psychosocial, and environmental factors influencing its development and manifestations. It is characterized by behaviors that include one or more of the following: impaired control over drug use, compulsive use, continued use despite harm, and craving.

Physical Dependence
Physical dependence is a state of adaptation that is manifested by a drug class specific withdrawal syndrome that can be produced by abrupt cessation, rapid dose reduction, decreasing blood level of the drug, and/or administration of an antagonist.
-----

The fact that you are telling time by pain levels rather than a watch supports that you are not an addict; "clockwatching" is an addictive behavior (it is also a pseudo-addictive behavior, but that is a separate issue also explained in the above referenced document.)

I agree, support, and have long professed the view that "you do what you need to to get by" (with the usual disclaimers re: legality, safety, harm, etc.) with slightly different phrasing.

Hang in there,

Doc

Maryb1953 · 12-29-2010, 10:44 PM

Quote:

Originally Posted by mrsD

Magnesium works against calcium which the latter is involved with
NMDA pain perception. So magnesium quiets nerve firing.

Also it relaxes blood vessels that may be contracted, and improves blood flow.
Some is also absorbed thru the skin, and may help if there is deficiency.

Some Autism treatments use it, for the sulfate portion also..they claim autistic patients have errors in sulfates, and this helps. They use a cream from Kirkman labs and rub it into the back.

I find it has good local effects. And it is great in the bathtub too.

Mrs. D,

Magnesium soaks cause a flare up in my feet. So does foot massage

. Does this reaction give any clues about the type of neuropathy I have? It seems to be counterintuitive. You would think that increasing blood flow either by heat or by rubbing would help but it always causes a flare up.

Mary B., they say it is idiopathic small fiber, but ?

BTW, whoever came up with them I love the emoticons

mrsD · 12-30-2010, 02:08 AM

Quote:

Originally Posted by Maryb1953

Mrs. D,

Magnesium soaks cause a flare up in my feet. So does foot massage

. Does this reaction give any clues about the type of neuropathy I have? It seems to be counterintuitive. You would think that increasing blood flow either by heat or by rubbing would help but it always causes a flare up.

Mary B., they say it is idiopathic small fiber, but ?

BTW, whoever came up with them I love the emoticons

Are you using very hot water? Too warm?

Another thought is that your circulation in the feet is poor, and they are cold. When warming up, they may feel tingly or burn.
This is like when you go out in the snow and get really cold, and then warm up... hands and ears may tingle?

There are two sets of sensory temperature nerves in the hands and feet. Heat sensing ones and cold ones. The cold ones take over precedent sensations because of their survival value. So when they are active, the heat ones don't get thru to the spinal cord to register heat. This is why certain rubs with high menthol content work well for burning sensations in the feet. Biofreeze is one example. Menthol stimulates the cold sensing neurons.

You can try putting something like Biofreeze on them after the soaks. Or you can take oral magnesium instead.
People vary in the sensations they get in their feet with PN. I get burning mostly. But others get stabbing pain instead.

Check the temperature of the soaks you are using. I would try to get used to the soaks. Say everyday for a week. Your reaction may dissipate as the magnesium starts working.
If not, nothing is lost, you will then have to try Biofreeze.

If your PN is highly compressive, say because of ligament pressure on the foot, you may have to experiment further with topical products. Lidoderm patches may help.

I'd like to add: If you put too much epsom salts into the water, it may irritate the skin...just like salt would.

220powerguy · 01-03-2011, 04:55 PM

Quote:

Originally Posted by mrsD

Hello 220powerguy, and welcome to NeuroTalk.

Neuropathy from chemotherapy may respond to some supplements to help repair damaged mitochondria from the cancer treatments.

[
They are most effective if taken during the treatments, but I would still try them, because you may still have some working mitochondria left.

Acetyl Carnitine has some studies showing usefulness in chemo.
The other supplements that help with it are lipoic acid and
CoQ-10.

You should get your Vit D level checked and also B12.
Vit D is showing potential as a cancer preventive agent. It also helps with chronic pain states.

Thank you for the info and this great site!

Dr. Smith · 01-28-2011, 12:31 AM

I don't have any firsthand info about the rebuilder, but I happened to have a chat with a fellow this.... er.... yesterday afternoon, so I thought I'd pass it along.

The gentleman was a very spry 78 years old, (appeared early/mid 60s) and said he's had PN for about 3-4 years in his right foot, and now beginning in his left. He said he bought a rebuilder for ~$400 some years back (and that he thinks many insurance companies will pay for it now w/ doctor's prescription (?) ). He believes it beneficial - for symptoms anyway, which may be enough for some of us; said it eliminated the shocks/pricking pains, and temporarily (for a few hours after use) lessened his other PN symptoms when used daily. He recommended it highly to me.

OTOH, while helping his symptoms, his PN overall hasn't really reversed, and as noted, is now manifesting in his other foot.

FWIW - secondhand hearsay.

Doc

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