As far as I know
 

I suffered only SF neuropathy, autoimmune and monophasic. For 2 and a half years I only had positive sensory symptoms and some autonomic disturbance. I have had amazing recovery from the neuropathy and dramatic improvement in my autonomic system too. Thankfully.

But I have developed fibromyalgia, tender points, and now the twitching. I don't know why I assure everyone I am the poster girl over here for clean living,exercise,and supplements.

I am taking BP meds Beta blockers and Atecand daily. I don't know much about hypoglycemia, but I am not diabetic. Unless one can be hypo and not diabetic??

But I beleive this shiatsu machine has set off my twitching. I just don't understand how massaging the foot...fair enough feet start to twitch,but what about the rest of me? My muscles will twitch at rest too. It's not whole body twitching at the same time,but a twitch here and there, in different spots all the time. But the twitching is in every muscle group. I don't know what this means????? Is this still SF? Is this Fibro?

Boy this is a hard one!

What autoimmune problems do you suffer from....I only ask because I realized an amazing link in terms of my twitching....and autoimmune issues

I was twitching everywhere it made me crazy and I had tremors. And neuropathy as well. And i took propanolol for the tremors it in addition to thryoid meds. I was taking the thyroid meds for my hashi's as i was starting to go hypo thryoid but apparently my gland was not being destroyed uniformly because part was still functioning and the other part was gone.

The more thyroid meds I took the worse i was. But the blood tests showed owtherwise...normal. And my symptoms just kept getting worse. But I did nto connect it to the thryoid or meds.

But it was my thyroid that made me twitch...it truly was causing a lot of problems...my twitching, my muscle weakness and my tremors.

Not to say that yours is similar at all but now that thryoid is gone...tremors and twitching down and almost gone all together.

Doc said I had thyrotoxicosis from my HAshi's and darned if it did not cause a lot of problems. Apparently not a lot of docs recognize it. What I have read about it is that you can test normal but as your thryoid is destroyed and thyroxine is sent into your blood stream unevenly (which is why blood tests can show norrmal) that its like little mini attacks on your muscle and the excess thyroxine changes the muscles from slow twitch to fast twitch and you twitch all over. Doc called it a myopathy. And thyroid problems are known to attacke nerves, especially arm and hand nerves. And tyrotoxicosis also attacks the muscles of the shoulders and legs/pelvis and hands the most. I was also dx with fibro but given the reversal over the last 8 weeks from the surgery I realize it might have been autoimmune all along. My doc gave me this to read.


A clinician may, however, wrongly believe that a patient who is "thyrotoxic" has fibromyalgia. The word "thyrotoxic" refers to tissue overstimulation by excess thyroid hormone. Hyperthyroid patients usually have thyrotoxic muscles. (So do hypothyroid patients who are overstimulated by taking too much thyroid hormone medication.) Weakness is the main symptom of thyrotoxic muscles, and some patients also have muscle pain. It is the patient with both muscle weakness and pain that the clinician may mistakenly diagnose as having fibromyalgia. Pain is the hallmark of fibromyalgia, and most patients also have chronic fatigue. A misdiagnosis is likely if the thyrotoxic patient describes her muscle weakness as fatigue rather than weakness. The clinician may mistakenly consider this evidence of fibromyalgia. The muscle weakness of the thyrotoxic patient, however, is easily distinguished from the general fatigue and low motor drive of the fibromyalgia patient. The fibromyalgia patient’s muscles are usually not weak in relation to her level of physical conditioning. Clinicians, including rheumatologists, must be careful to make this distinction or risk making a misdiagnosis of fibromyalgia.


CHRONIC THYROTOXIC MYOPATHY The symptom onset is very insidious, so much so that patients very often do not notice the wasting or weakness. An average of six months elapses before the diagnosis is made, as the symptoms are subtle and the progress is very gradual. As mentioned earlier, only around 30% of patients complain of neuromuscular symptoms whereas around 80% show muscle weakness on testing. Patients complain of low exercise tolerance, easy fatigability, difficulty in doing certain tasks, muscle stiffness, muscle twitching and sometimes muscle wasting. Shoulder, hand and then pelvic muscles are affected and tasks like climbing stairs, getting up from a low chair or lifting arms above the shoulders become strenuous. Due to the weakness, movements become clumsy and effortful. The degree of wasting varies among individuals.

Anyway please dont take this as me saying in anyway that your problems could be this but I know what that twitching was like and no one could help me with it. It was only after i insisted that they take out my thryoid that it decreased and is going away.

So it might be autoimmune connected. Just wanted to pass along my learning. I also posted a longer thread in the TOS and autoimmune forums of my experience.

Anyway I hope you find some relief. :hug:

Thanks Shelley
 

I don't think I have thyroid problems,it is tested regularly. It seems that too many things can cause neuropathy and also twitching. Too many things to remember and also to many to forget.

Thank you

I have had fasciculations for over a decade. It seems it comes in spurts and can occur all over. I have had them in the most unusual places. I assume it is part of the small fiber neurop. I have not really found anything that influences it, but then again, I haven't undertaken any real study of it. I may be incorrect, but it must involve some motor nerve activity, as a fasciculation is movement, not just sensory. I can see my muscles moving. Perhaps the sensory nerve is overactive and the result is signalling the motor nerve to contract the muscle. The generic term twitching can also imply a singular unintended movement of a body part, like a jerking. I get those too.

The docs don't really seem to understand this condition all that much, especially the idiopathic, so, I just assume most of my oddities are due to the condition.

Thanks Cycleops
 

for your reply. Today I went and did something I enjoyed doing after work,and I am feeling better.It's amazing sometimes how little reward or fun we with Pn seem to have. I can tell you now I deprive myself of plenty,almost everyday, because all I do is worry too much about PN.

Good Morning Aussie!
I'm glad you were able to go and enjoy yourself doing something fun for you. I enjoy working in my flower gardens and that really helps me feel better mentally and physically.
Have a good day......I'm heading off for day 3 'back to work'.

how much calcium are you taking daily?
 

And what form of magnesium are you using? Oxide?

Have you had a blood calcium test? Derangements with this mineral, or imbalance with magnesium causes all
sorts of musculoskeletal symptoms.

Mr. D
 

http://neurotalk.psychcentral.com/sh...t=16359&page=2

I hope this link came through.This is the Magnesium I take. I also take a better calcium supplement now too. I beleive I am getting enough mag & calcium.

If you have too much mag does it cause twitching Mrs. D or not enough magnesium?

Hope I'm not cutting in here. Just wanted to mention what helps with my twitching.

I take a supplement that contains calcium citrate and magnesium glycinate. I divide it into two doses, with the larger dose at bedtime, for a total of 1000mg calcium/500mg magnesium daily. It doesn't completely clear up the twitching, but it does keep the muscles from cramping, which helps a lot.

fanfaire
:cool:

Don't know if this will help or not, but I take SloMag and Klonopin before bedtime...

I think mine has improved some, since I had my thyroid surgery.

Cathie