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Old 10-09-2007, 11:58 PM #1
Snikerdudl Snikerdudl is offline
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Confused PN & red hot feet

Hi,

I'm new to the group but after reading some of the discussions, I felt like this was the place to get some suggestions as to why I get red feet. I've had PN for 7 years. I take Lyrica and Noritriptylan. The last few months whenever I'm standing or walking, my feet start turning red. It starts at the toes and goes part way up my leg. My feet swell and, of course, the burning sensation returns with a vengenance. If I sit down and raise my feet and have a fan blowing on them, the red color dissipates. Of course, as soon as I stand up the red comes back.

I've discussed this with my neurologist, my cardiologist and podiatrist. No one has an answer, but all want to know if I ever find the cause.

Does anyone else have this happening?

Bummed,
Snikerdudl
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Old 10-10-2007, 02:43 AM #2
Brian Brian is offline
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Hi and welcome Snikerdudl,
Has anyone mentioned Erythromelalgia, does this sound like similar symptoms ?
http://www.merck.com/mmpe/sec07/ch080/ch080c.html

Brian
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Old 10-10-2007, 10:51 PM #3
Snikerdudl Snikerdudl is offline
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Brian,

Thanks. I've checked it out and, no, no one has mentioned this before. I'll bring it up at my next dr appt. It's really strange. By looking at my feet, you can see definite outlines of where the redness usually occurs. It's almost like I'm wearing red shoes all the time. When I'm on my feet for a short time, the red gets brighter and fills in any gaps of color and starts going up my legs. The last dr I saw brought in 4 other physicians and they were all stumped.

Snikerdudl
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Old 10-11-2007, 02:16 PM #4
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I have this problem too. The last time I seen my Dr. I was wearing red chogs and he thought they had faded off on my feet.It is PN and that is all I can say about it. They have never explained anymore about it and I quit going to that specalist. One Dr. said there was no cure, they only try to keep it from getting any worse. One told me I had nerve damage.
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Old 10-12-2007, 08:01 PM #5
Martin_12 Martin_12 is offline
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Default PN & red hot feet

Hi Snikerdudl

I have had these symptoms too, although not very badly. It seem that erythromelalgia is not well understood but some experts think it may be related to or associated with PN. Here are some refs:

http://preview.tinyurl.com/2gqp84
http://preview.tinyurl.com/2ck5zo
http://preview.tinyurl.com/3ctux7
http://preview.tinyurl.com/2u6wte

Regards

Martin
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Old 10-12-2007, 09:13 PM #6
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Default Too Hot

Hi Snickerdud,

I do notice that at night especially, after I've been in bed for a couple of hours and get up - that my feet are bright red and veins sticking out - look weird... not sure why - my feet are pretty numb so I dont know what is happening when I lay down - but it does - you're not alone!
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Old 01-14-2009, 12:36 PM #7
butterfly00199 butterfly00199 is offline
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Default i have strange red dots on my feet...

that's just it... red filled circles...and at times they hurt so so badly... i shoed the foot doc & he said maybe it was from my sneakers... UMMMM NO!!! it is always there... the last maybe year or so... and sometimes it burns... i dunno what it is... they say i have PN and vasculitis ...
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Old 01-15-2009, 06:59 AM #8
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Default Could very well be from the vasculitis

Small red dots--petechiae--or even larger blue black ones--pupura--are quite common among those with vascular compromise, generally autoimmune, such as is found in many of the anti-nuclear-antibody diseases. Basically, you're rupturing small blood vessels more often than somebody without compromises fo the blood vessel walls.
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