I'm starting to have more and more 'prickling' days where instead of burning arms, legs, face etc. the sensations are more of a prickling nature (hard to explain!! ). Each time the 'prickling' crescendos, the fatigue in me also rises and I feel totally drained. Is this common?

To be honest, I'm not sure. But I've noticed that the prickling sensations feel better to me than the burning...

Strange isn't it? Even though the burning is not nice the prickling sensations seem to be of a greater intensity than the burning for me. I feel totally exhausted again! The shooting electric currents in the feet were also out in force today.

Could be progressing; could be repairing.

Wish I knew.

rose

My PN came on all at once in April ‘04.

I had been under a lot of stress (long time wife dumped me). Then the sadness/worry just kept coming from all different directions. When to the Dr about the PN and was told “your kidneys are not working right”. That tossed in yet another panic - turned out to be wrong but I almost killed myself trying to cut down on protein. Then the only friend left in my life (my mom died).

Three or four years of total bad news after bad news - in my opinion added to the PN and may have been a major cause of it in the first place.

My burning - buzzing - prickling goes and come and goes and changes and comes and changes and gets worse and gets better.

While I use to be able to say “hey maybe it is repairing” - the fact is .... overall it is getting worse.

Fatigue.

The one thing that is consistent regarding (PN related) fatigue (for me) is sleep. Lower amounts of sleep crank up the PN.

I keep forgetting that until ..... until I have a low sleep night (the PN does not cause lack of sleep - stress of it and aging and worry does) I get a very blatant reminder.

I just wanted to welcome you. I don't have much medical knowledge about anything but Sjogren's Syndrome (an autoimmune disease) and Rheumatoid Arthritis (another autoimmune disease). But one of the things that comes thru even to my level is the extraordinary sadness in your post. You might benefit from some counseling or something to medically intervene with depression. I read your post on Finney's post and felt I couldn't post again in that thread, but I did want to welcome you and let you know someone cared.

I don't know you. Maybe it would help us help you (if we can) if we know what tests, background etc. you have.

Billye

Megan, I was just wondering if it your symptoms started in one area and then slowly spread or if it quickly evolved to other areas? For me that particular sensation is really irritating!

Julie