Yaaay
 

You're on Forteo. I'm so glad. Despite the changes in my pn, I am glad I took it for two months; it helped. And I don't think you need to track the pn with this; what I expereienced was so different from my normal pn, it was clear something else was happening to me. And it did reverse. Could have been a virus, or electrolytes. Could have been the forteo, but it went away, so that's good.

I was told to take 500mg Calcium and, I forget how many of Vit D, with it. Were you told the same? I found the pen quite easy to use; hope you do alsol

Good luck.

That brought tears
 

I can sooo relate to that poem. My pain is nowhere near as bad as most of y'alls but I still feel the changes this has brought to my life. Unexpected changes. Thanks for posting that.

No instructions
 

Liza Jane,
He's too new to this medication. No instructions at all. But I read all the data that came with the med. Have to stop the Actonel, MiCalcitin. But I wasn't sure what to do about the calcium and vit. D.

He did tell me to try to see the endocrinologist again. I've called her office today. They don't communicate very well. They only take messages and later someone returns them. Took 3 weeks the first time.:cool:

I'm actually afraid to start the Forteo. I am not sure about my calcium level and the vitamin D. I have one more capsule to take of the vit. D. It's 50,000units. Am I to buy some Vit. D and take it along with this med?

Mrs. D or Liza Jane, I need a little help here.

Billye

this is beyond me...
 

so I went looking for you.

http://content.nejm.org/cgi/content/extract/353/6/634
So that article says they do not agree with Dr. Licata (who works for Lilly)

Here is Dr. Licata's take from Medscape:
So you see, the problem? No one agrees on what to do. I don't trust anyone who works for Lilly...that is my opinion however. They don't have a good track record for honesty.

Here is a post at Healthboards...where a gal took Vit D and Forteo together..
http://www.healthboards.com/boards/s...=427963&page=2
Page 1 about Forteo:
http://www.healthboards.com/boards/s...+D+with+Forteo

http://osteoporosis.emedtv.com/forteo/forteo.html
Looks like you need to call your doctor back and get exact directions.

I am not going to make any recommendations, because this is beyond me,
and my experience.

Thanks
 

Mrs. D,
I'll get specific instructions before I start. I'm really unsure about all of it. It looks like I need to continue the calcium and D, but dosage isn't specific.

Thanks for all your work.
Billye

Billye
 

I was always stuff rocks in the family and the pround one,but when a huge room of various Dr's jam in far to close you can only think which one didn't take a shower. And they tell you in all kinds of ways you were going to loose your leg. I decided a potapot didn't sound so bad..I have one of those silly things next to me now..And it's not over i have a way to go..But dang i want that leg more than my pride right now. I'm not fussinf at you ,you vent and cry and holler but if you get a pot carefull sitting down there not made for comfort...Good luck sweetie,everthing should be your choice..Just having the
tests for sj sysdrom is weird.:hug::hug::hug::hug: Sue

I'll call you and walk you through. Also, there's a Forteo consumer support number that should have come with the pen.

Gee Billye! What or Who is on First?
 

I do know that IDUNNO is on third tho!
I would call that Forteo support number and work it for all it is worth!
They probably will not have all the answers for you, but you bet their boots it's in their best interests to find out and pick the best minds they can find to get the answers. I believe it is called covering their own butts? I for one am not shy about making the drug companies work for their bucks.

Thanks to your misfortunes I have learned that calling, asking, and learning is the best defense I have-the only one maybe as I feel docs never read those inserts - noway nohow. Since my cancer and going off HRT and on to the estrogen blockers, also having long term use of Fosamax and now the 'adventure' of dental root 'resporbtion' I do know what quandry you are in! Any which way you turn, there are risks. It is a scary prospect, and one that is not fun by any means, especially when one seems to 'fracture' if you look at a pebble the wrong way.

We aren't the only ones who are on multiple meds and suffering from new and unusual experiences. I've learned this from many good Cancer boards. Folks there are also suffering as a result of Chemo and Radiation treatments, and are on the leading edge, both research wise and vocally about the benefits vs. side effects. THEY ARE VOCAL! And there are a lot of them being vocal-thus effective. Those complaints are really getting docs, researchers and pharmacy companies standing up and paying attention to all that we take to 'help' us, then suffer a myriad of other consequences not known.

I wish I had a magic wand to make your pain and that of others go away! I truly do! I don't know about you, but I sure would like one perfect 'band-aid' on at least one problem with a mommy-type kiss to make it better. You know what I mean. Soo for now, Multiple hugs to you and I hope that you have at least one pain-free moment! - j

Billye,
I've not posted much recently and just started to catch-up with this thread. It seems to me that you've had way more than "your share of trials to bear" and I am SO SORRY for all that you are dealing with right now.

The sad reality for many of us is that even in a somewhat controlled environment no-one anywhere REALLY understands or equally importantly can begin to predict the types of synergies or interactions from multiple drugs for multiple conditions much less with the added complexity of individual physiology, metabolism, biochemistry, etc., etc.

I can't offer any clear advice or insights - your situation with multiple meds for multiple problems is well beyond my limited abilities but I am sending you as many good thoughts as possible for some real and lasting relief while you sort this out.
:hug::hug::hug:

Alkymst

Yay!!!!!!!!!
 

Sed Rate is down. My Rheumatologist called at 10:10 last night. Obviously this is bothering him too. He was behind all day because their computer was down when I was in the office and people were stacking up like a load of logs. I knew he would have a hard day. But he took the time at 10:10 p.m. to call and let me know that the sed rate was down and I don't have to add the Plaquenil or steriods to my regimen. He also commented to my husband that perhaps the lower dose of methotrexate was what was causing the fractures. In other words, allowing the RA to "eat more bones". Who knows, but maybe I've turned a corner finally. I'm waiting to start the Forteo until I talk to the Endo. I'd like her regimen to be followed. She's experienced with it, he's not.

Now to just get over this break. By the way, I do not recommend a Temperpedic mattress to anyone who is suffering with a lumbar, hip or pelvic problem. It doesn't permit you to scoot and it is a real **tch to get out of or on to. It grabs you and won't let go.

Billye

you know, Billye...
 

Lilly USED to have a trainer, come out and instruct new patients.
I don't know if this is still available where you are.

Giving the shot is not as big a deal as determining what amounts of calcium and Vit D you should use with it.

I hope this new treatment works for you.
I wonder if IFC would work for you. This is inferential current, and stimulates healing. You should ask.

And yes, I have a mattress topper which I needed to sleep on when I had my acute phase of my leg injury. But it was a devil to move on, roll over, sit up etc.
And it is not as thick as the full memory foam mattress! I wonder if a non memory foam mattress
pad over your bed, might help?

That is good that your inflammatory markers are down. That is some good news to focus on.:hug:

On the mattress....I have a pillow top mattress, to which I thought I should add a memory foam pad....I agree with Billye....I was stuck. On the otherhand, at times when pressure seems to bother me more...the memory foam goes back on. Off and on, off and on....off and on. Hmmm, does any of this sound familiar to any one? I wonder about those air mattresses...aha, I remember, Sleep Number Beds.

Billye, I assume they are monitoring your blood calcium levels.....

As frustrated as I get with my docs at times, I almost fell off my chair last week when one doc, told me that my neuro had spoken with him regarding information I had sent to the neuro, within days of the appointment I was at...in other words...I sent a package of info and within 5 days, the two had communicated regarding my case. That is really good. I am amazed and blessed, as this is a huge medical center. I was also chastised regarding my not reporting my adverse effects with Neurontin to the doc.....It pays to be vocal. I have found that if I send stuff, the doc can look at it in his 'spare' time....but that is regarding stuff to ponder. It kind of upsets me in a way too, as I know I am a higher priority than I originally thought........if that makes sense. The word disability also came up...and I have to laugh, because I was self employed over 10 quarters went by without a contribution to social security, so I am out of luck....NOW they bring up disability! Eh, I will just have to wait til I age up...or the system goes broke. I am lucky to have a husband who supports me. I suppose I should be nicer to him...no more neurontin. Makes me a witch.

If you do not feel right on this Forteo, you call immediately! Do not wait, and also, if you feel yourself getting confused or out of sorts, call the doc.

mattres
 

I got a tempurpedic when I has surgery, and it was good because it held me totally in place, but soon became hard to get out of. Under it was a new super firm mattress, which I thought was the way to go. Just last month I replaced it with a newer Simmons/Sealy posturepedic with a softer top.

1-800-mattres (leave off the last S for savings!) delivers here in NY, and will take it back if you don't like it and bring a new one. They've been very helpful on the phone, with good suggestions for people with back issues.

I'd bet they even come to tiny towns in texas...

Checked with my bone guy on calcium/D for Forteo and sent it on to Billye. It's a guideline, at least.

We have 3 of the Visco Elastic foam memory toppers. One is 3 inches and the other two are 4 inches. So we have 11 inches of memory foam over the old mattress. Alan would shoot me if I ever try and replace what we have in the bedroom. You climb up and get in this bed and you don't want to get off. No pinchy places, no bones hitting anything. Obviously, this can't be to everyone's taste. And if I had my way, and I had the money, I'd throw out everything and pay $1000 for a brand new Temperpedic mattress.

But until I get rich I'll just sleep on this cloud of comfort. The 4 inch one comes with two pillows. We got them all from Overtstock.com. Very cheap too. And it sure was better than buying the whole mattress.

And the best part about buying a mattress topper is no one knows you are getting it. If I bought a brand new mattress, all the neighbors (including my landlord), would see this mattress truck drive up and they would go, "Oh, Melody is purchasing a brand new mattress, my, she must be doing well for herself". Believe me, landlords LOVE to say this.

So we bought (at different times), the 3 mattress toppers. They come all compressed and they come in a box about 2 feet high. You would never know they contain a foam topper.

You uncompress it and lay it on a table where it has to breathe for one day.

We did this 3 times. You should see the thickness of the 4 inch one. It's amazing.

I'm telling you, Alan is in love with our bed. So we have a mattress and 3 mattress toppers, and all this is over a box spring.

If we didn't have the mattress toppers, my bed would be so low, we'd be on the floor.

Melody

Not for back issues
 

Melody, Liza Jane is so totally right. The Tempurpedic is wonderful, .....unless......you have to slide your body. When a nerve is involved like this one is it hurts to move 1/8 of an inch. You plan every single tiny move. And laying down and not being able to put your heel down on the mattress and scoot is agony!! The body simply isn't able to move itself when there is this much pain. And this mattress is not good in this condition. Not being able to simply turn yourself over in the bed is agony!! Last night I lay down on my side, winced, tried to put a pillow between my knees, couldn't, then rolled to my back and couldn't lay straight. I strained to get my cell phone and called my husband. He came and helped me put a pillow under my knees. I stayed that way until 2:00 a.m. I had to sit up sideways and pull myself off the mattress. I've not laid down today because I'm afraid I can't get up again. This is the pits!

There isn't any position that doesn't hurt. I got the CT scan report today. I am broken in so many places that I didn't know. I kept thinking, it's all inflammation. But if it was, then it was inflammation from all the breaks. My pelvis is broken in two places. The high bone on the side of the body (ishial, I think ) is cracked accross to the sacroilliac joint on one side. Both wings of the sacrum are cracked downward and then accross the spine at S3. I don't know how I'm walking. Well....I'm not. The crutches are my legs right now.

But, we'll get there. I'm starting Forteo tomorrow. I have help from Liza Jane's bone doctor and hopefully they can recommend someone in Dallas.

Billye

Hi Billye, I'm glad the info from the bone doc helped. His nurse was very upset to learn about you, and promised to find out whether he has someone in Dallas for you or not. She was really helpful. I'm wondering if you'd send me a copy of your CT scan. I think I might be able to get them to actually look at it and come up with a referral after seeing it. I think it's going to be dramatic enough that it might stir them. This is a practice devoted solely to osteoporosis and healing bones. The nurse said it's possible I've had some healing from the Forteo in the two months I was on it. She was both disappointed and happy that my symptoms cleared, and she's setting me up for some more tests of bone function, a CT of my spine to see if ther's been any healing, and then, maybe back onto Forteo once every few days, rather than daily.

The doctor operates on people with spontaneous fractures 2 - 3 days a week. When he told me that, I was floored, and I asked how that was possible. His answer was, with lots of glue and cement.

So maybe you're a candidate for that.

While serum calciums are followed with Forteo, his protocol is only once, I think. It shouldn't b elevated for more than a few hours after the injection.

Billye, getting on a good track is well
 

good news! Far better than going around in circles with all 'professionals' going DUH?
I do know that I am truly benefitting from your experiences, tho in partial hindshight. I also wish with all my heart that none of us had to 'learn' from these experiences!
I believe that a dialogue on mattresses -types and the pros and cons of each from our own personal viewpoints could be useful but for a new thread.
All in all, I wish I could asorb all your pain and ease your life for even a minute! I am not sure that I could do the asorbing, nor take any extra aspects of pain myself. So, I'll be selfish in that quarter. I will tho, truly hope that SOMETHING, Combo or whatever...can help you and NOW.

:hug:'s from my heart...Be super careful now, this moving about stuff is truly dangerous? - j

I'm just curious. If one does indeed have back problems and the Temperpedic mattress is not a good fit, so to speak, then what is the best possible mattress to purchase.

For example, if one had no money problems, and wanted to purchase a new mattress, and that person had sciatica, or just plain old back problems going on, what would be the ideal mattress to buy. And should it be soft, firm, orthopedic, etc.???

I remember years and years ago, when Alan and I went to buy a mattress, I never saw so many descriptions of mattresses. We sat on all of them, just to make sure. There was firm, ultra firm, securely firm, orthopedic firm, medium firm, ultra this, Kingcoil that... I mean, we went crazy, went to so many mattress stores. We ultimately got an orthopedic something or other, but I'm just curious. If I ever win the lottery or some rich relative calls me up and says "name the mattress you want, which one would any of you purchase?

I mean, there must be the Best Mattress in the World, somewhere, right??

Melody

http://www.utsouthwestern.edu/utsw/c...es/108435.html

Charles and Jane Pak Center for Mineral Metabolism and Clinical Research
Program Director
Khashayar Sakhaee, M.D./Chief of Mineral Metabolism
5323 Harry Hines Blvd
Dallas, TX 75390-8891
214-590-7783 or 214-645-2870 (Voice)
214-590-4091 (Fax)
Khashayar.Sakhaee@UTSouthwestern.edu

I saw him yesterday and told him about Billye. Someone at the school is doing the glue repair also. Sorry, can't recall his name, but there is definitely someone doing this there.

His workups are EXTENSIVE and he said he would see her. If your doctor in New York knows him, he probably could get her in sooner, particularly since this is urgent... If there is anyplace better in Dallas that relates to mineral metabolism, I sure don't know where it would be, though there are other Professors/researchers there in the Pak Center...

Cathie

Hey you all!!
 

I appreciate all the help in this subject. But when it comes down to the final call, I have to run my own race. I have an endocrinologist who is versed in this med. I faxed her all the info yesterday and I expect to hear from her. I need a local to work with also. The players are all in place. I do not relish putting "glue" into my body and I don't think there is any way to glue all the parts I've got broken. The last time I had something foreign put in my body, I got the gift of Sjogren's from it. At this point, it's not just one break, it's many many many. I don't want to start trying to glue them all. If this one in the groin fails to heal on it's own in a short while, I may consider it. But over all, I'd like to see my own bones grow.

Cathie, I am familiar with Dr. Sakhee. I was a patient of his many years ago. He told me years ago that I didn't need to take Fosamax. That I didn't have a bone problem. So I hesitate to go back to him. We'll see. I need to do this. But thank you all so very much for diving in to help me.

Billye

I'm sorry I may have missed it and I know that one doc said no fossamax but are you on it now? My mom is for osteo and that is why I was wondering. I have osteo but am not on it but I think its because of my age and though can't reverse osteo I can make the bone stronger. I'm sorry again for all your struggles. I'm going to go reply on the bed post cause I had this issue well still do. Many feel better wishes.

Gee Billye, I am so sorry about all of this. I am glad you have someone you feel comfortable in working with. I am going to talk to my Endocrinologist today about this when I go. I don't know about you, but my tolerance for going to the doctor these days is slipping at the rate my copays are rising...

I was told that this is "the" place to go for this evaluation, so don't know what to think. On my orders for bone density, one place said something about senile Osteoporosis, whatever that is...

I didn't have a bone problem either, until after I took the Prednisone. I had always been a big milk drinker, but for some reason, I let that slide after I hit 30 or so. I think it had to do with the pie, but I am not sure...

Cathie

Not a problem
 

Cathie,
I don't think it was the doctor's fault that the osteo progressed. It's just something that happens with Rheumatoid Arthritis. Dr. Sakhaee is well known in the medical community and he was very kind. If I remember correctly he is pretty crippled himself.

Here is the definition of senile osteoporosis: Senile Osteoporosis: Senile osteoporosis (type II osteoporosis) probably results from an age-related calcium deficiency or a vitamin D deficiency and an imbalance between the rate of bone breakdown and new bone formation. Senile means only that the condition occurs in older people. It usually affects people older than 70 and is twice as common in women as in men. Women often have both senile and postmenopausal osteoporosis

This is the website it came from http://www.merck.com/mmhe/sec05/ch060/ch060a.html

I think that if you have an appt with Dr. Sakhaee, it would be good to keep it. All I'm saying is that I have a plan and I'm going to work with it for the time being. It may be that the endocrinologist I'm currently being seen by will refer me to him also. We'll see. Thanks for all your help.

Billye

Thanks Billye. I did visit the Endocrinologist today. They seem to feel that the workup at the school is very thorough and a good place to be for this. The Nurse Practitioner said that in private practice, they would not have time to spend a half day with a patient. That is not to say that other Endos would not, just that they can't.

All I know is he is planning a 24h urine test, a 4 hour urine test, a 2 hour urine test, blood work I can't remember (seems like Vit. D. and then some), a bone density. He just said a lot of testing and that he felt he could help. He was extremely kind and I could tell very knowledgeable. It sounds like an exhausting day though.

I hope you won't have to go into the school. I know you probably don't feel much like even getting into the car. Should you end up having to go though, I imagine that your doctor could get you in considerably faster as he said he is booked until Feb.

Please post what the Endocrinologist is planning to do for you and if possible, the type of testing. I know there are others who will be interested in knowing about this, besides myself...

Cathie :)

Will do
 

Cathie,
I'm still waiting for the call from the endocrinologist. This is the 3rd day. I think we will be finding a new endocrinologist. Either that or I will get my rheumie to call. If I haven't heard by Monday, I'll try calling again. We did start the Forteo last night. So I'm now committed to two years of this medication unless side effects start popping up. I'm anxious to hear if Liza Jane has had any healing in the short period she's been on it. I'm using the calcium/vit. d ratio that the drug insert calls for. But I'd sure like to know why so many breaks. That is still unanswered. I'm anxious to know what you find out also. Let's keep this thread active.

Billye

It really irritates me when the docs don't call back. I don't think you should have to wait through the weekend. I would try to at least call tomorrow. Its up to you but why be on edge all weekend. Take care

Absolutely Right!
 

Daniella,
You are so right. I will call tomorrow. Thanks for pushing me over the edge. :)I called, then faxed an urgent message with a copy of the ct scan results and have heard nothing. I will call again tomorrow and see what is going on. This is just ridiculous. I know this is rural Texas but I have had no follow up at all from the Endocrinologist. Texas is so backwards medically!!!!

Billye

awww..come on billye...you know dern well we can get snake oil pretty darn cheap. :wink:

you gotta figure that one of the dr's is from up north and they can't understand each other's accents. :wink:

we need to find a case of firecrackers to set under their arses.

:hug:i hope you hear back from them in the morning. you know the races are this weekend. :rolleyes:

Sorry Billye, you say your doctors did everything and nothing was preventable. I was astonounded when my bone guy's nurse told me that giving vitamin 20,000 Units every 2 weeks prevents osteoporosis in patients on prednisone.

I've just googled on the phrase.Is Steroid-Induced Osteoporosis Preventable?

It seems that the main mechanism for osteoporosis with prednisone is that absorption of calcium frm the gut is inhibited, so calcium leaches out of bone. Increasing absorption by loading with vitamin D and calcium is key. Nobody told me that when I was on prdnisone. They just put me on fosamax.

The question would be then, given how low your Vitamin D level was last month, how did the doctors let it get low, when there are a million articles on how important it is to keep it up in patients on prednisone. Mine was never checked either.

I'm quite fed up with medicine.

Entirely different situation
 

Liza Jane,
I haven't been on a regular prednisone routine. I have had some steroids in injections for some of the nerve blocks but that was before I went to Mayo.

I don't take them regularly because they severely activate my tremor. Putting on lipstick is a real comedy. I took them for only about one month.
And that was prior to Mayo.

Cathie has been taking prednisone regularly. And I know they really screwed up with your sinus spray. But we have to look elsewhere for the cause of my problem. The rheumie looked at me Monday and said "Are you SURE you haven't been taking prednisone?" I haven't taken nasal spray or anything. And my vitamin D was borderline. This is all a mystery because I'd been supplementing with 1600 mg of Calcium which had D in it. (Citrical)

I reallllly need another trip to Mayo, but there is just no way.

Billye

This is terrible. You should call up there and raise h*ll with them over this. I think Daniella is right, you should not have to wait over the weekend or even another day. Maybe you should call back again in the morning, if they don't call you. Some doctors close early on Friday now.

My D levels have never been checked either. I have been on Prednisone now for 15 years. I failed to mention that he said that the bone density in my back could actually be worse than it appears in the test, because there is a lot of arthritis there that makes it appear to be bone, but may not be...

I am so stressed trying to get off of this stuff, but it is almost impossible when you are on it for rheumatic disease... I have nearly killed myself trying to cut my dose constantly, but you get terrible flareups and other problems, like lungs. The Endo's Nurse Practitioner told me yesterday that I may never be able to get off of it...

I am positive for MGUS, which can cause neuropathy. No one ever thinks to check for this. Since the abnormal protein in MGUS is also in Multiple Myeloma, I wondered if there might also be a link to bone loss. Both of you should consider this testing... Google about how this is supposedly NOT linked to implants. A number of the implanted women are positive for this though... I INSISTED on testing when I heard this. My Immunologist was stunned at the + result...

Cathie

As we all
 

know i take no crap off of Drs. after working for them and with them for 25 yrs.,call that Dr.and don't let the phone lady give you any excuse. Are you
will mention her to the Dr. when you talk to him....Gezz Dr's can be uncaring and stupid sometimes,yes even that one i'm dating. Sue

Billye:

Did the office call you back today?

Cathie

No they didn't
 

I'm calling on Monday to make an appt with Dr. Sakhaee. I know my experience before wasn't that great, but he's older now and I'm older and smarter. He is considered the authority in Dallas on osteoporosis. I know I'll need testing after starting to take the Forteo and I don't know what testing. So I'll make an appt to see him. I did call on Friday to talk to the indocrinologist again and she wAs in another office. I see the problem. She's making too much money with just appointments to bother to follow the patient otherwise. I don't need that. I need to know why I'm breaking bones.

Billye

Hi Billye:

I cannot believe that she will NOT call you back. I would think she would want to refer you on, so you can get help quickly...

If you can't get an appointment with Dr. Sakhaee right away, maybe that wonderful Rheumy you see can get him to squeeze you in... He seems to really want to help you.

Meanwhile, I can't see where I might have posted this, but in case you need to know, Dr. Sakhaee likes to see a bone density done at the same place previous ones have been done for comparison. He said that it is hard to compare bone density studies when they are done at different places... If you had some recent ones done to compare, when you go for the appointment, it would probably save some time.

He wanted all recent bloodwork and also a pathology report for a kidney stone I had some time back. I don't know what he would ask for, since you are on Forteo. Maybe LizaJane knows...

Actually, I don't think most doctors around here do much looking for the "whys," they just prescribe stuff like we all have taken, like Actonel...

Michael Moore could make a great movie out of the frustrations we deal with having chronic health problems... :)

Cathie

Cathie:

That is a fabulous idea. We should contact Michael Moore. Maybe he can go on Oprah and fight the fight for PN.

I'm giving it a try.

Mel

Silverlady I hope you got a call back. Cathie is right they like the tests and the follow up bone density at the same place cause the machines can be off sometimes. That is what I heard. Really this not calling back of docs is unacceptable. Even $10 an hour jobs if you don't return a call you get fired. The same should be with this. You know on 20/20 how they do undercover camera things for people who get taken advantage of with cars and so on. They should follow one of us to a doc apt and the after care. The way many of us have been treated would scare america that have no clue.

Finally, but nothing
 

I did get a call back on Monday. But it was just to tell me they had my fax and the nurse was putting it on the doctor's desk. But.........the doctor will not be in the office until Tues or Weds. Weds I will be in Dallas to see the neuro. I'm taking all of this to her and ask her what she suggests.

Thanks for all of the support folks. You are all great!

Billye:hug:

Outrageous!!!

Maybe she would like to join this exclusive club:

http://ratemds.com/social/?q=node/8521

When you feel like it, I hope you will post there...

Cathie

Trying this now
 

Cathie,
I've put in a call for an appt. with your doctor Sakhaee. I'll try him again. I saw my neurologist today. She did another on the spot, I want it right now, MRI's of my lumbar spine. She suspects problems because my reflexes are too brisk again. Like it was when I had the stress fractures in my spine. She also encouraged me to see Dr. Sakhaee. She knows that the Endocrinologist that I've been waiting forever on is having medical problems and she confirmed it was cancer. So I can forgive her not getting back to me. I'll start over again.

Thanks for the help Cathie.
Billye