NeuroTalk Support Groups - Down and full of questions....

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Down and full of questions.... (https://www.neurotalk.org/peripheral-neuropathy/30904-questions.html)

--here's an interesting summary article that was done:

http://jama.ama-assn.org/cgi/content...ct/273/23/1865

It's not very specific, though, which is why the following may help:

http://autoimmunedisease.suite101.co...m/ivig_therapy

http://www.pemphigus.org/content/view/52/52/

This one is only a wiki summary, but it does point to a number of links:

http://www.answers.com/topic/intravenous-immunoglobulin

Most of the recent literature in this area has been talking about "off-label" usage of IVIg as greatly contribtuing to the recent shortage of the product, In actuality, IVIg was being used quite commonly "off-label" for many years before the shortage; it's probable that IVIg has been used more commonly "off-label" than for specifically indicated conditions for at least a decade, due to a considerable body of anecdotal case studies that showed it effective for some across a wide range of conditions.

I'm sure that some of the real IVIg experts here will come on with more detailed info (most of my knowledge of it comes through discussion of its uses/efficacy with the neuros at Cornell-Weill, who are big advocates of its use for suspected immune-mediated neuropathies).

Glenn I posted this under a new thread...

Here is the connection:
http://neurotalk.psychcentral.com/sh...ad.php?t=31082

As I posted there, I have HEAPs more info if asked. I believe that it would be best to address under that other thread as we could be 'hijacking' Monica's initial questions. - j

Lots of the info I have is generic vis-a-vis IVIG, other info is detailed research or topic specific. But there are at least 15 sites that I have, as you can see the insurance aspects are seminal for those who have acquired immuno issues in the long run. I am not old 'enuf' yet, but, given my experience having worked for the 'gummint', IF I do not start boogeying [aka: advocacy] BIG TIME NOW...It is not going to be there for me 'When I'm 64!' Thank you Beatles! - j

Thank you jccgggutenfree and megan for your help. I sure appreciate it.

Quote:

Originally Posted by glenntaj (Post 162366)

--here's an interesting summary article that was done:

http://jama.ama-assn.org/cgi/content...ct/273/23/1865

It's not very specific, though, which is why the following may help:

http://autoimmunedisease.suite101.co...m/ivig_therapy

http://www.pemphigus.org/content/view/52/52/

This one is only a wiki summary, but it does point to an umber of links:

http://www.answers.com/topic/intravenous-immunoglobulin

Most of the recent literature in this area has been talking about "off-label" usage of IVIg as greatly contribtuing to the recent shortage of the product, In actuality, IVIg was being used quite commonly "off-label" for many years before the shortage; it's probable that IVIg has been used more commonly "off-label" than for specifically indicated conditions for at least a decade, due to a considerable body of anecdotal case studies that showed it effective for some across a wide range of conditions.

I'm sure that some of the real IVIg experts here will come on with more detailed info (most of my knowledge of it comes through discussion of its uses/efficacy with the neuros at Cornell-Weill, who are big advocates of its use for suspected immune-mediated neuropathies).

Thanks for the info