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-   -   Methylcobalamine seems to working...and... (https://www.neurotalk.org/peripheral-neuropathy/31790-methylcobalamine.html)

jarrett622 11-08-2007 12:02 PM

Quote:

Originally Posted by mrsd (Post 165516)
massive amounts of Vit C you can acidify the urine. Urine is supposed to be
a little alkaline. By changing the pH of the urine, you can change the
excretion of drugs, so keep that in mind.

Your doctor should know this Vit C intake, because it can skew some blood tests, esp blood sugar.

Yes, I always tell my doc what I'm taking and how much. I don't take that much Vit-C on a daily basis. I *have* taken that much from time to time depending on how I was feeling: I was exposed to a rather nasty cold. I never did get sick so if it was pure dumb luck or the Vit-C I couldn't tell you.

Changes in urine PH are red flags for lab results. But if one's urine is too alkaline it can also be an indicator of a urinary tract infection. Certain types of stones are also more prone to forming in alkaline urine. The treatment include acidifying the urine. And in reverse some types are stones are more prone to forming in acidic urine.

I found this link very helpful in explaining all this in terms I think most anyone can understand.

http://rnceus.com/ua/uaph.html

Brian 11-09-2007 12:11 AM

Wonderful news, it's great to a read post like yours :) good on you.

Brian :)

Brian 11-09-2007 12:19 AM

Quote:

Originally Posted by daniella (Post 165522)
Hi. That is good news. I also heard that when repairing sometimes symptoms can feel worse. I don't know if that is true. I thought too much vitamin c was bad and can make you lack something like iron. This may be so wrong so just fyi. Keep feeling better

daniella, i think it depends on the individual, in my case i can definitely say that my symptoms were worse at times whilst healing, but then again Melody & Jarrett report the opposite.

Brian :)

MelodyL 11-09-2007 10:39 AM

HI.

I truly believe that the only reason I had this great experience with the Methyl B-12 was that I had just had that neuropathy flare-up (becasue the podiatrist used that vibrating planing tool on my nails). I had never had a single case of burning, tingling, buzzing (ANYTHING), before I had my toes done.

I had been diagnosed previously with the beginning of neuropathy in the toes because the doctor at Cornell did the tuning fork on me and the tips of my toes were numb. I had no idea about this because how would a person discover that they have numb toe tips?? I mean, who goes around testing the tips of their toes?? I know I never did.

So when she told me "you have the beginning of neuropathy" I immediately said "you mean I have what Alan has?" and she said "yeah, but in diabetics it mostly presents as numbness, just keep your sugar under as tight control as you can". Which is what I had been doing, but don't forget I'm a diabetic for 20 years, and only by going to Cornell did I get my act together.

So when I had that first experience at the podiatrist where every nerve in my foot WOKE UP, and he said: "Oh you have feeling, that's good, that's good," I wanted to kick him upside his head because my feet were buzzing and I'm thinking "what the heck good is this?"

That night I buzzed, burned, ALL THE STUFF!!!. I went on these boards, learned about methyl B-12, purchased it from iherb (starting at 1000), found out in about a week that I could do the 5000 and I've been on 5000 since then.

And yeah, I do get the flare-ups but no where near that night with the buzzing, tingling, burning, YUCK!!!!

I will take this Methyl until I'm gone from this planet.


Melody

shiney sue 11-09-2007 11:34 AM

J
 
I remember the middle of the nights as well,HEY is anybody here,I was
and i was crying as well...Things aren't perfect but getting better. I
am so glad for you. Now if I could get those 400 hhundred dollor rubber
hand made in Germany,commpression hoses on and off,I might smile
a little more...But the nurse said well she has to figure out something.
I figure she could come over pulll them on in the morning,and come over
at night so I get them off,then hand wash them..I just don't have the
darn upper body stregth,and that's a lot of money...TTTTTThanks
for leting me vent..

I really am happy,that Mrs. D pops up and boom comes up the answers
to so many Questions...Also i've been gone did Rosre retire,run away
from home..Just asking??? Sue

daniella 11-09-2007 11:52 AM

Thanks Brian. I think that is the furstration were all different. A lot of what works for one may not for another. I guess when I'm in a lot of pain I try to say well maybe its repairing. Its probably just a mind game but gets me through and helps to hold to hope. I do feel though I should be repaired with the level of pain sometimes.
Sue I too wonder where Rose has been. I hope ok and just busy.
Melody I'm so glad you have found such benefits from b12. You should tell your story on the vitamin board. Others have too.

jarrett622 11-10-2007 01:21 PM

Quote:

Originally Posted by Brian (Post 165730)
daniella, i think it depends on the individual, in my case i can definitely say that my symptoms were worse at times whilst healing, but then again Melody & Jarrett report the opposite.

Brian :)

I did go through some worsening of symptoms but never for too long. A week and a half if I remember correctly at it's worst until just before I stopped taking everything. That last few weeks was horrible. That's what told me that something wasn't right. It just kept getting worse and worse. It took about a week for everything to go back to what it had been before that last few weeks.

It's been a bit over a week and I'm feeling wonderful! Pain levels have changed yet again from what it was just prior to restarting the *proper* form of B-12 for me. I knew I needed to try that form or just tough out the other form of B-12. But I needed to do *something* because the pain was again getting gradually worse. Thank goodness it seems to be working wonderfully for me! :)

Mark._. 11-10-2007 05:49 PM

Hi jarrett
 
Quote:

Originally Posted by jarrett622 (Post 165468)
Seems to be a problem for me. Since I restarted with this form of B-12 I've seen a huge jump in my energy levels and a decrease in my PN symptoms. Somewhere in these forums I have a list of all the things I was taking. No time to hunt it down now but I'll be looking at that soon and will begin adding one vitamin or supplement back in at approx 2 week intervals. So, bottom line for me, it seems that I have issues with absorbing B-12 from foods and my digestive tract. This just really brought this issue home to me since I restarted the B-12.

If anyone recalls, I suddenly hit a spot where *something* I was taking was causing a major increase in symptoms. I had started several new supplements at the same time and couldn't pin down precisely what was causing the problems. So I stopped everything. And didn't restart (other than Vit-C and E that I've always taken) any of the others until I had the better form of the B-12. Also, I'm taking much more Vit-C than I've ever taken before. I've gone as high as 8000mg a day with no backlash, so to speak. :D So, now we'll see what we can see.


I remember your previous post as im sure I replied to it as I also suffer the same problem,ie that some supplements definatley make the neuropathy much worse. I still cannot get to the bottom of why supplements like acetyl l carnitine/ calcium and magnesium / thiamine and benfotiamine (taken separately of course) bring on the numbness/altered sensations when they are meant to help the neuropathy, it isn't a question of the symptoms being a sign of the neuropathy getting better either unfortunately,they really do make it worse, I have gone on and off these supplements quite a few times to make sure it wasn't just a coincidence that the sensations got worse,they really do affect it. Mrsd mentioned the my electrolytes may be out of balance but I am not sure how to go about getting these checked. I would be so grateful if anyone could shed any light as to maybe why these supplements seem to be aggravating the symptoms.... One thing I do wonder about is the fact that I may have axonal damage by the looks of things and would this mean that supplements would not help this type of neuropathy....

Its excellent news that the b12 has worked well for you and I hope it continues to help you :)

jarrett622 11-10-2007 09:45 PM

Quote:

Originally Posted by Mark._. (Post 166228)
I remember your previous post as im sure I replied to it as I also suffer the same problem,ie that some supplements definatley make the neuropathy much worse. I still cannot get to the bottom of why supplements like acetyl l carnitine/ calcium and magnesium / thiamine and benfotiamine (taken separately of course) bring on the numbness/altered sensations when they are meant to help the neuropathy, it isn't a question of the symptoms being a sign of the neuropathy getting better either unfortunately,they really do make it worse, I have gone on and off these supplements quite a few times to make sure it wasn't just a coincidence that the sensations got worse,they really do affect it. Mrsd mentioned the my electrolytes may be out of balance but I am not sure how to go about getting these checked. I would be so grateful if anyone could shed any light as to maybe why these supplements seem to be aggravating the symptoms.... One thing I do wonder about is the fact that I may have axonal damage by the looks of things and would this mean that supplements would not help this type of neuropathy....

Its excellent news that the b12 has worked well for you and I hope it continues to help you :)

Thanks! Me too!!! :D

Yes! I recall your posts too because it was sort of an 'ah-ha!' moment for me. It *wasn't* just all in my head! Nice to know I'm not alone. I, too, would like to know more about the electrolyte issues and why it seemed that one or some of the supplements I was using was making things worse.

Aussie99 11-10-2007 11:22 PM

Great News
 
Anything that is helping you matey is really good news! I hope you continue to improve.


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