|
see your PM
Quote:
I sent a PM answering your questions...but I'm new to the forum and not sure if I sent it correctlly..so let me know if you do or do not get it... |
Sorry, I suppose I am odd.
I talk about any and all illnesses casually with no flinching. (just yesterday my best friend and I mentioned C-diff, and MRSA) I can talk about voiding over a meal. However, I'm a health care worker, and it comes with the space. I did not know you could get a relative of it from using something like the Netti pot. I myself have used it when I had a sinus infection, and I don't keep sterile water at home. You learn something new every day. |
you should use sterile water with a cpap machine also
|
contaminant?
I want to add a few notes on this thing about the atypical mycobacterium.
Most of the doctors I have seen over the past year are not at all sure it is of any significance at all. My sinus guy has been finding it in a lot of people, but he is the only person in the country writing about this or treating it, that I can tell. My other doctors tell me they are quite sure that if everyone was cultured for these atypicals, we'd find out that much of the population is positive. Not necessarily that everyone actually has it in their bodies, but that it's almost impossible to keep all instruments and testing materials clean of it. It's a ubiquitous organism, present in all drinking water, so we all ingest it daily. It is likely that many of us are colonized, without symptoms, and it is likely that when we get tested, unless all the materials in the doctor's office are tested, that contamination is high. That is because the organism is so darn hard to kill, including by normal disinfection. It's only killed by autoclaving, so it's on surfaces everywhere. For me, I was sick, but it's now clear that I have had lyme for,maybe 20 years. My immune system is suppressed, and I have a lot of myofascial pain and inflammation. All these things set me up for sinus inflammation, but not necessarily from the mycobacterium, or even from fungi. I don't know what to recommend about netty pots anymore. It seems prudent to use sterile saline, but then again, I was told that everytime we take a shower we inhale loads of mycobacterium, and this is how people with cystic fibrosis get this organism (they get lung infecgtions from it). So avoiding tap water in a netty pot might not change our exposure to these organisms at all. |
Quote:
|
symptoms
After 20 years of sinus infections, 2 surgeries, and 2 months of IVs for sinus infections, I can now say unequivocally, that unless there is pus, there's not necessarily a sinus infection.
Face pain and stuffiness can be caused by myofascial disorders, and I am now getting treatment for pain that feels like sinus pain by osteopathic neck massage and acupuncture. My ENT says that I'm not infected, though I get inflamed. But then, when nerve fibers are impinged upon, they send pain signals out and can hurt in places other than the starting point. So, unless there's clinical evidence of infection....think pain syndrome. It might lead someplace interesting. For me, it lead to lyme disease, which causes a both neuropathy and myofascial pain. The mycobacterium and fungi were red herrings. |
Is it sinus infection or something else
Quote:
|
Quote:
I'll give you some ideas. Some drugs actually deplete nutrients and these are all different in actions. If your PM is not turned yet because you are new... post back here or at the Vitamin forum and I'll answer. |
Along the line of supplements, Dr Burrascano, who is THE lyme specialist, strongly recommends NT factor, which is considered a membrane stabilizer. He has other recommendations when there is neurological involvement, which can be found in the article of his I linked to, the 16th edition of "managing Lyme Disease" Oct 1008.
|
I don't like products like this...
There is no list of amounts in the "proprietary blend"...so you don't know what you are getting. The ingredients listed that DO have amounts given, are nothing special except for the pantethine which is vitamin B5 that is activated. what pantethine may help: http://www.wellnesstrader.com/herbal...thine-benefits Quote:
One can have mito damage from all those antibiotics? This is by far too low an amount of carnitine to be useful. One can accomplish alot with Flax oil and fish oil and spend much less $$. Nice graphic though, IMO. |
I understand what you are saying, Mrs D. I myself am saving my money and sticking with my fish oil, carnitine, and CoQ10. If lipoid acid didn't lower my thyroid function, I'd be on that, also. I think, overall, I've gotten a lot of help from the straightforward supplements that we use here. But you did mention "membrane stabilization" and that reminded me of the lyme handouts.
Quote:
|
LizaJane, thanks for the info. One of my clients manufactures a supplement with CoQ10 and lipoid acid. He's going to send me some samples for nothing and I'll give it a try. One never knows, but maybe I'll get lucky and it will help.
Jay |
Cipro-neuro reaction
I just re-read this thread, and there's something left unfinished here. I mention in it several times that I had developed neuro symptoms on Cipro, and considered myself "allergic" to it, in a loose definition of the word allergic.
Well, now that I've been properly diagnosed with Lyme, my doctor tells me that I did NOT have a bad reaction to Cipro, per se; instead, what I had was a herxheimer reaction. Cipro was killing off the lyme bacteria and they were releasing toxins which made me neurologically ill, since these bacteria mainly live in nerve cells. Herxheimer reactions are very common when treating Lyme. He thinks it could have been a tip-off at the time. Oh well. Better late than never with treatment.... |
Cipro has significant CNS neuro effects all its own.
Don't have to be allergic or have a "die-off"...Cipro and its family of fluoroquinolones can damage the brain, cause seizures, massive confusion in the elderly (less so in younger patients), and have NOTHING to do with Lyme. http://en.wikipedia.org/wiki/Ciprofloxacin Cipro and its cousins are not just antibiotics...they are toxic to many types of cells in mammalian bodies. Quote:
|
| All times are GMT -5. The time now is 11:30 PM. |
Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise (Lite) -
vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.