NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   OT: Kick Your Shoes Off (https://www.neurotalk.org/peripheral-neuropathy/32195-ot-kick-shoes.html)

Silverlady 11-17-2007 08:23 PM

Mrs. D...
 
I don't know what all of them are but I recognize some of them. I have a shelf over my desk that contains a chinese mudman that my husband carried home 35 years ago. He watches me when I'm at the desk, and I've got a German Stein that my oldest step son sent my husband from Germany. Next to me on a stand is the plant that the nursing home nurses sent me when my Mom died (she had been there for 9+ years and they all loved her). My husband just re-potted it today for me and I put it in a pretty white ceramic post that says "flower pot". Duh...maybe I will remember what it is.

So I'm loving that photo you sent. It appeals to my artistic eye so much. Wish I could print a big glossy print of it and put on the wall beside me.

O.K. Tell us what they all are. I'm dying to know. I've guessed at some of them.

Billye

Curious 11-17-2007 09:35 PM

http://farm1.static.flickr.com/32/47...a66d81.jpg?v=0


looks like everyone kicked off their slippers too. :D

MelodyL 11-17-2007 10:44 PM

Re: Mrs. D. Rock picture.

I think the thing on the left of the photo, well it looks like a ball of dark colored twine. Am I right??

mel

Yorkiemom 11-17-2007 10:45 PM

Thanks Dahlek. I was hoping to bring a smile and a funny rebuke from Sue with my post. From the way things look, she has been having a hard time right now and is suffering a lot...

I am in hopes that she will post tomorrow... She is a very special person here, as all of you are...

I wish the best for her (and Bob) and hope that Doc John is taking good care of her...

Cathie

mrsD 11-18-2007 08:10 AM

I am curious about this statement---
 
Quote:

Originally Posted by dahlek
Cathie and Mel? About Sue? If you go into the waaay-back machine, her intro said, that you probably know me from elsewhere, but I'm going to be different 'here'. Well, Duh? Sue is super at inserting heaps of very obtuse humor here, BUT, the one thing I do not doubt rite now is that she has been hurting, and badly, in many ways now. So what if it is hard to follow at times, some of us in our own pain can be so as well.

The WayBack machine only shows the forum from
1997-2000
and 2000-Mar04 (from OBT)
The wayback does NOT have archives from Mar 04-July06 (before the crash)

Where is the "intro" you mentioned here? Can you direct me to the statement, about her intro? I go back to 1997 or so myself...I'd love to understand this
statement better.

mrsD 11-18-2007 09:30 AM

in regards to the slippers....
 
Man...curious....those are the CLEANEST slippers I ever saw!

Where are the dog/cat hair, the coffee/cocoa stains, etc on them? LOLOLOL

daniella 11-18-2007 12:25 PM

I too like this thread. I feel so bad for everyones pain. You all amaze me. I have ? do you all worry non stop? I feel I worry about everything health wise. When even small things happen to the body I fear it turning into something like the pain in the other areas. I can't sleep either and meds don't work on that. So much can go wrong in a body. Before this happened I just assumed always you go to the doc and they fix you. Not the crap of this. The specialty docs never go out of there specialty which is so irritating. They go to school for so long and learn about everything. I don't get it. Ok that is my rant which I will stop.
A few shout outs but of course many hugs to all. Lizzy I'm so sorry for all your issues that keep happening. Sue many hugs to you and I hope your soaking in a warm bubble bath in that mantion. I should post some of my affirmations on here to lift spirits. Have a great day

HeyJoe 11-18-2007 01:34 PM

Speaking only for myself of course, i worried as pn developed...where was it going? how far? whats causing it? how will i wind up? same for chronic bronchitis asthma...over the years i worry less and less about it....partly because the PN has not spread as rapidly as the first 3 years and partly because after a while i just got worry beaten out of me, just dealing with things day after day. I still worry of course but not nearly as much. Right now im waiting for results of a cat scan, which takes at least 3 weeks to get the results, because they are sent to another entity and then forwarded to me. Depending on the results it could be of immediate concern or just continue to be monitored, or i hope disappear, but i rarely think of it during the day, which really kind of surprises myself. What can you do about it anyway until you can do something to deal with it if it comes to that. Pn is the same way im doing what i can to deal with its effects until or if it changes and then i will have to do something else. I dont know if this made sense but i hope it answers your questionl.

shiney sue 11-18-2007 02:06 PM

Howdy do
 
Mrs.D stop looking in my past heh heh, John has 6 bathrooms upstairs,
he has a 2 bedrooms on main floor both with baths. A Master bed
Granps bath it has one of those showers,,that jets sprays on all
sore body parts,it's scary and amazing at the same time. I am in the guest
room for heavens sake!!!! He is being very kind, rubbing my head and nose.
We went to his Condo yesterday to get it ready for winter,his boat
and such. Very pretty ride,Seams Lake of the Ozarks has grown...
Big comfy chairs in fron of fireplace...This is best part,if I'm repeating
myself,sorry...The Condo is in the middle,of lake,it's in a circle so you
see nothing but water...There are a lot of Tonados in that area ,it's
pretty . I took pictures with our camera J. ,when my nose swelling
goes down,I will try to post one...We have know each other for a while,
he was my mom's Dr. didn't care for him. We have been dating I think
3 months. I am staying with him because everyone is with Bob.
My house is where i left it,Bob lives down stairs and i live up stairs.
Cathie we may have found or commue at John's...I have no idea why he
has so many baths...

Curious you do have clean and neat slippers..They gave my son a room
at Barnes,but he sits with Bob in ICU.. So rest stay in his room..Ryan
has a licenc to do massage in Mo.. So he is doing this for the Drs. he must
charge,Bob wrote down the amout. heh you wouldn't believe...
Sue is worried ,my youndest son just found out he has a irregular heartbeat.
This runs in family,oh Dear,oh dear...They will have tests done on Bob
Tuesday,then we will see. Danling gang,I can't breath,I was well sitting
on John's lap by the fire,and all of a sudden,a snoking,gurgling,sound
I kept doing many,then I started laughing,one of those horrble belly laughs,
you know wear you can't stop,I would have to breath deep and say I can't
and off I would go again,tears running down my eyes, Billye tears.
Then he kissed me,amost killed me...Said he was doing CPR...Hmmm
I just might laugh more,your very smart Mel,look at your video at the
end Alan is looking at you with well love or other reasons...Hugs to all Sue

mrsD 11-18-2007 03:20 PM

Sue...
 
I haven't looked YET.... but I don't understand J's post at all and what it implies.

So were you on the 2000 board? Under a different name?

dahlek 11-18-2007 06:34 PM

Mrs D?
 
I didn't mean the BIG 'waay back machine' I'd only meant that IF one looked at a person's earliest posts, one mite have gotten a 'hint' tho not much. We all like our privacy, and many of us keep some aspects without detail or specifics to maintain that privacy.

Curious: As other comments have indicated, those are super clean and neat SLIPPERS! I have to admire that! My slippers the faithful are in use and almost 'rags' & grubby-ish by now, the others I've in a Hefty Zip Toter...for what? I dunno, hope that they mite fit at some future time? Easy way to transfer to some 'donation bag' in the not so distant future?

Sue, you MUST know you crack me up with your descriptions of your relationship and all else going on! Goodness anyone who can make such FUN out of such stuffs! , Well, I believe that you KNOW I am truly grinning about now? And with all that's going on, how you and your family and friends are dealing with it, well, it surely gives me lots of hope for some parts of the world! Especialy to you...special :hug:'s

For everyone else? More of those dreaded cyber hugs!:hug::hug::hug: 's
Since I can't hug you each in person...so...take what ya can get? - j

Curious 11-18-2007 06:56 PM

:p those aren't my slippers. LOL. i googled "pile of slippers" and that picture came up. lol. but...my slippers are clean...i only wear them in the house. :wink: and no way am i going to waste coffee or chocolate by spilling some. :D

fanfaire 11-18-2007 07:05 PM

Quote:

Originally Posted by daniella (Post 168812)
I too like this thread. I feel so bad for everyones pain. You all amaze me. I have ? do you all worry non stop? I feel I worry about everything health wise. When even small things happen to the body I fear it turning into something like the pain in the other areas. I can't sleep either and meds don't work on that. So much can go wrong in a body. Before this happened I just assumed always you go to the doc and they fix you. Not the crap of this. The specialty docs never go out of there specialty which is so irritating. They go to school for so long and learn about everything. I don't get it. Ok that is my rant which I will stop.
A few shout outs but of course many hugs to all. Lizzy I'm so sorry for all your issues that keep happening. Sue many hugs to you and I hope your soaking in a warm bubble bath in that mantion. I should post some of my affirmations on here to lift spirits. Have a great day

I do not worry anymore. I found it counterproductive. I do the best I can with what I have to work with, and I try to let the rest go.

My philosophy is: what's the worst that could happen to me? That I die? Well, anyone can die at any time, and I'm not scared of that.

But I understand your disillusionment with the doctors. I used to trust them completely, had no reason not to, until one put me on a drug I didn't want to take and caused me permanent damage. Now I realize that some have a God complex, some never bothered to further their education once they became doctors, and some really do care but have no idea what to do with complicated patients.

About those slippers: I really like the zebra print ones! :) I've got plain black Isotoner ones with the cuffs that come up the ankles. Unfortunately, the soles are wearing off, so I may be in the market for new ones at some point.

Sue, the Lake of the Ozarks is a really pretty place! My mom was from Arkansas and used to go there on vacations. I visited there about six months after my mom died and just gazed at the water for awhile, and the white-tailed deer would come out of the woods and stare at me. :)

fanfaire
:cool:

dahlek 11-18-2007 07:26 PM

Fanfaire? BEAUTIFULLY PUT
 
daniella: Like fanfaire, I do not worry about it all much any more....with the worry comes much more stress than we all need or want. Every day each of us keeps going and fighting or accepting this all gets us just that...another day. Most important in it all is to keep the positive attitude that this all will not bury us. Most reports say no. So in the fighting it and keeping a hopeful attitude we make better progress. Attitude is key to healing of any sort...there have been lots of 'papers' done about those who have cancer. I have read them? As I have that too. We are human beings, and we have the ability to surpass any expectations, and we do! Therefore with what we have striving to overcome the many 'minimal' expectations many docs set for us is kind of easy...IF we are STUBBORN. I have found that my stubborn-ness has been my best asset in this all. I might be winning? Dunno yet. Time will tell.
Disillusionment with doctors? I wish there was a way we all could find ways to either communicate effectively or to report JERKS! If not, I'd loove the AMA to have a 'charity booth' in which those I hate could be either water chair dunked or zapped with a water gun or the like...Those who get the most dunks or zaps better watch out from the state medical boards?

Slippers....? Already said my part. About to shop for my 'presents' to me from my Hubby...Slippers ARE on the agenda....finding those perfect ones IS a challenge, NO?

Sue - I have been lots of places, seen lots of amazing things elsewhere and with the local creatures...One event before I got PN was leaving a farm and getting to the dirt road...there was one beaut of a Golden Eagle on a fence post...just looking at me...and well, me him! It was a good ten minutes before that beast decided to leave me...with one super look of disdain? But, What a magnificent Creature! Feels, silly, but I almost feel as if we had some kind of sub-consious neuro-talk? When this bird took off, I really felt as if I could Fly!?

Simple hugs to all for the interim - j

mrsD 11-18-2007 08:28 PM

Quote:

Originally Posted by Curious (Post 168928)
:p those aren't my slippers. LOL. i googled "pile of slippers" and that picture came up. lol. but...my slippers are clean...i only wear them in the house. :wink: and no way am i going to waste coffee or chocolate by spilling some. :D

Well with 3 cats, there have been instances of mouse livers, but then I won't go into that...so as not to offend others.

Our cat just hates mouse livers, and leaves them for us! sweet? Not.

dahlek 11-18-2007 09:43 PM

You mean you get
 
just the 'livers'? Oh my...maybe I should protect others' sensibilities and tell you what my mere 'suburban' cats presented me with!
Any way ya put it...those cat 'presents' for want of a better name? are THEIR way of honoring you? Giving you the 'gift' of some of their hunt. I cannot ever describe the confused looks by my beasts when I carefully [w/o my own hands, but scoopers, plastic etc.] bagged and trashed such gifts...with a "GOOD MIGHTY HUNTER BEAST" as I did it...Mouses, moles, voles OK...the still twitching other stuff... well, harder to take? But this is the way nature works. Just wish other parts of the world were more straightforward? Oh my... - j

shiney sue 11-18-2007 10:13 PM

wow
 
Curious my love you sure got us on that one...Here I am with ice on my nose
wondering HOW can she walk with those backless slippers (that are very
clean) and not end up like me..I still can't google up anything,or u tube up,
But I shall,i shall. Ok I went to sign up for a few things and messed that up,
there,I said it i really did...Mrs. D i think I spoted a few,but ya know some,look well,that's for tomomrow...

I'm going to St. Louis, Bob is not happy,well who would blame him,not me..
Fanfaire and Hey Joe and other brave one's ,I'm getting there..My younest
was 22 when his father died,and left for MN. right after,first his sister went
to check it out..They came back and loved it,the so called mamy friends,ha
So I thought he's bright,he's big,and he's brave,not to mention so many
friends. Ha Them my oldest took him there to move,besides his Grandmom
said he always has tons,of friends,he beat camcer,and you ran off at 17.
Well this is true before my oldest left MN. he took a picture of the youngest
sitting on a porch readimg....He looked so young,bright,not so big or brave
but he had his chin up..He knew no one,but soon he did,and once again he
surviced...I got hurt by a Dr. which soon I will be able to talk about,I made
a poor very poor decision,I got sick,my mother got Cancer,and my youngest
got scared..First his Dad,his beloved Grandmom ,I got pain could not shut
up,he was far away,,but the other 2 saw me,when he did,he put his head
in my lap and cried..He couldn't talk to me much,didn't come back much,
I was scared and so was he..3 yrs ago he got married,he kept looking at me,
I was different..So after the wedding there was a big staircase,where
everyone was walking down to comgrat them.. He planned everything
for my wheelchair but that...I went out into the the parking lot,made my
way down to the street,and went flying over a speed bump,yelling his name,
almost hit the tourist bus...But he was ok,and i stopped crying so much.

D your young my youngest son takes care of his 32 yr. sister-in-law with PN
or was,but she flew away to live with a boyfriend in a apartment,,she's
happy.. and so on..Am I afraid to die no,do I want to no,but oh boy I
hurt more than I want...So in some ways you are our young one,to young
for this,by helping others with the eating disorders,you are making a
difference..So fear we are all different in the way we handle it,helping each
other in anyway is good..

J. Thank you how lucky we are if you catch my meaning,and you do. WOW
Joan got mushy and smooched us,hot dog,hey where's the reat of you all..
Oh yes living your life. Got something to tell you My youngest and his wife,
adopted little3 yr. old Daniel,then the Surogate had ther baby Daughter
Sullivan almost at the same time. Hands full yes,well they got a phone
call,the adoption folks in March twin boys are a coming...4 for them,my
daughter's 6 month old Ozzy look out Bob i'm catching up. Hugs to ya Sue

daniella 11-19-2007 01:39 PM

Thanks for your feedback on worring. I try not too but really am doing horrible. I'm trying to use the tools I have learned from you all and my support team. As for docters I too wish there were mor consequences for bad ones. I think like a 20/20 hidden camera to show the public and to make docters more scard to show the treatment of patients.
Sue gosh I'm sorry for all you and your family has gone through.

cyclelops 11-19-2007 02:39 PM

Just wishing every one a "Happy" Thanksgiving, which actually means, I hope everything goes as well as can be expected for all of you.

I have just had a hideous 4 days without 3 nights of sleep. Can't figure out what happened,but nothing worked to put me to sleep, last night was not too bad, I just woke up every 2 hours, but did fall back asleep. I think what set this off was taking my one daily Vicodin, at night, as ordered. (I normally don't touch any codeine at night...keeps me up...but not THIS up.)

There is nothing in that 2D6 drug family that has not had an abnormal effect on me. I should get those genes tested. I am not wired normally and the more I dug in my genealogy the more I understand why. It has been an interesting journey. If only I could verify all my suspicions.

The weird thing was I did doze off during the day during this time period. My Circadian rhythm just went bonkers, but my RLS stopped completely (never happend before).

I tried not to take much for meds and just laid in the dark and listened to my rain and thunderstorm CD and just let myself doze, and when not sleeping drank sips of juice (as I had a bad headache and nausea too). It seems to have worked OK and now 4 days later, I feel fairly OK.

This is my first ever Thanksgiving without all my kids coming home, so, it is depressing,but I had best get used to it, as grown kids have to move around the country for jobs and such. One daughter had to chose, either Thanksgiving or Christmas, so she is coming longer for Christmas....probably a good thing given all the flight problems.

At least I talked my husband into NOT buying the biggest turkey he could find. That was hard for him, as that has been a family tradition forever. He has gotten turkeys too big for roasters and one almost too big to fit in the oven....of course, who had to deal with all that turkey meat after dinner...me! It would take hours to get it all chisled off and put in ziplock bags.

I hope every one at least 'feels OK' and that the day is peaceful.

MelodyL 11-19-2007 03:02 PM

Happy Thanksgiving Cyclelops:

I wanted to make a turkey breast. And cranberry sauce, and stove topp stuffing. You know, thanksgiving food!!!!!

I ran this by Alan and he looked at me like I had lost my mind. His words and I quote: "If you want to know what I really want, I want what you made last night, that was the most delicious dinner I ever ate!!! MAKE THAT FOR THANKSGIVING!!!

What did I make.

I put some chicken cutlets in some egg beaters, I dipped them in bread crumb mixture with fresh parsley, grated cheese, garlic powder, minced onions, (NO SALT), some cumin. Then I sprayed the frying pan with PAM, added a bit of extra virgin olive oil, and cooked them until they were nicely done. Then I transferred the chicken cutlets onto to several paper towels until they are completely drained.

Then I did the same cooking method with my sliced zuccini, and broccoli florets. After they are cooked, I drained them in the paper towels also.

Then I opened up a can of no-salt tomato sauce, heated it up, added a packet of SPLENDA.

Then I put the chicken, and veggies on a plate, poured the sauce over it. You should have seen Alan's face as he ate this. He died and went to heaven.

I shall take a snapshot of this meal the next time I do it. He swears it's the only way to eat chicken.

I don't touch it this way. Isn't it amazing how we are married and we rarely eat the same stuff?

amazing!!!

Melody

daniella 11-19-2007 03:37 PM

Cyclops I hope you remind yourself your kids I'm sure are thinking of you and miss you too. I know I'm in Ca and my mom in Mi and I feel homesick too but were just a phone call away. You too. As for sleep me too. I have sleep maybe a few hours the past nights. Does not make the body or mind feel better at all.
Melody that sounds yum! Do you like to cook? I made a similar recipe and it was for chicken tenders you dip in egg white,corn flakes so on.
You know what is good honey baked ham turkey. If people are not up to cooking and even if are able to they are great. I don't eat ham but people always rave.
Can someone explain to me why pain levels from one day to another can differ from not even doing anything different? I'm sure its different for everyone. I would do the same every day if I could figure out my flare up. I know you guys would too. Just so confusing.

MelodyL 11-19-2007 04:51 PM

Daniella:

It's all about endorphins in the brain. Anything that gets those endorphins to GET UP AND TAKE A BOW!!, well, your pain level will go down.

We all have and make endorphins, ...some more than others.

That's why (and I am not being distasteful when I mention this), a person who has an orgasm....well, talk about endorphins being released.

If they could bottle that feeling, no one would need a joint!!!

And yeah, I like to cook. Just ask Alan.

lol

Melody

Silverlady 11-19-2007 07:51 PM

What it takes to make a Happy Thanksgiving.
 
I have had an absoutely horrible time lately as you all well know. I went thru a period of really weepy days. I couldn't even look at my husband without crying. No. nothing he did:D

I think it was just the cascade of breaks before I could get over the next one. And the limitations of my life. Can't do anything and it's hard to take care of myself. A shower was an episode. Just the manuvering to get in and out of the shower. Oh forgot to tell you, the hotwater heater quit after I had laborously managed to get feet and body soaped. Had to finish my shower this week in cold water. Not a happy camper.

During this weepy period because I couldn't fix any Thanksgiving meal or even shop or serve anyting and I have my son and wife coming home for the first time in 3 years, (Haven't seen my daughter-in-law in 5 years.) my husband went shopping for the few necessities I had put on our grocery list. I was standing on one crutch and trying to help him take the groceries out of the sack, when I pulled out a can of cranberry sauce that he had bought. It wasn't on the list. But he knows that I think I have to have cranberry sauce for a thanksgiving meal. Just the thought that he had thought of this without my putting it on the list made me lean my head against his shoulder and laugh and cry at the same time.

He teared up too and that little thing made my Thanksgiving all it needed to be.

Thanksgiving is about love, thankfulness, family and the little things. It doesn't have to be big. We are probably having pizza which son and wife will bring and........cranberry sauce!:D

If I forget or something happens, I want to take this opportunity to tell you all how grateful I am for you, how much I appreciate all of you, how much I appreciate all your kindness, support and giving. I wish you all cranberry sauce. :):grouphug:

Billye

dahlek 11-19-2007 08:44 PM

There is a lot to catch
 
up on! Goodness,
Where to start?
First off, being alone on the holiday[s], During my first year of college, my folks moved OUT OF THE COUNTRY....So on their penny, I'd see them at Christmas break and no more until summer. I was a gypsy between my two sisters living near my hometown at the time, but two years of THAT 'camping out on the living room sofas', well....It wasn't as comfy or as 'home' as it I would have wanted. After I got out of school, we all picked up the idea of 'Orphan Parties', where host/hostess would cook the bird, provide dishes and forks etc to eat with, and each other person broght 'something'. Once married, we decided to alternate between the 'parents' for Christmas, and just 'DO' Turkey day on our own [that way WE'D get all the leftovers!] Get a small bird, make it just the way we like it, and not something we didn't care for at nearby 'cousins's houses..Cook, eat, then sleep! It's kind of a selfish pig-out thing? But We [my DH and I] never have a complaint.
Billye, about the sauce? That is truly the sign of one really good guy! Last year with my broken knee, I was wheelchairing into the kitchen and back to my 'chair' to try and slice, dice, snip clip and break up the various veggies for the prep. My guy just read the 'directions' on the plastic wrap and did the rest!
Cycleops? About that sleeping stuff... at my onset I was that way, once in the hospital the 'docs' kept wanting to wake me up and TALK to me about my 'condition' -of what they'd no clue at the time. ALWAYS once I'd started to fall asleep after four days of NO sleep other than a few 15 minute naps! I even in That state politely said [tho I wanted to really BITE many] excuse me, I'd just gotten to sleep after many days, you have woken me up. I am in no situation to discuss anything at all with anyone rite now, But, while you're here...could you help me to the bathroom?...Please? They left me alone after that, can't imagine why? Don't fight the need to sleep or the inability to not do so...chill out about it, it'll happen when it should. Once I'd started my post-cancer med [lemme tell you that one's a doozie!] I've wrestled with the sleep/non-sleep issues a lot. Check out all the herbals for such as valerian or chamomile tisanes [infusions-not teas]. You will probably have to be careful about any other issues you have, but these are the most tame.
Daniella, being alone is a well, beyond strange thing. At times I believe it's that part that separates us from the rest of the world, in many ways? We aren't 'fun' people to be around at times, But we CAN and DO try to have fun in the most obscure ways? Such as those bird [squirrell?] feeders, hummingbirds, smelling the earth, and feeling the sun [something we CAN do, tho why I've no clue] and just listening and appreciating the world's sounds. As in the two way eagle-eye thing, there are glorious moments out there if you look for them and wait. They can calm your heart and soul immensely. At least, it's worked for me.
Melody, you gotta spring for at least a turkey breast and just ROAST it! It's soo simple, use veggies for the 'rack' underneath and well, no bread crumbs? Plus lots of leftover for sandwiches [with cranberry sauce, I hope?-tell Alan the berries are chock full of anti-oxidants or something -they are, but..ya know?] I always make my sauce from the berries, it's so easy and it also freezes in baggies for later use [keeps in the frige for about 2 weeks, dunno about sugar sub's tho...] Ok you can use mayo or the like...Do you have Durkees' sauce..that's good too. Cooking a T-B takes all of about 1-1/2 hours with 15 minutes prep if it's fresh or thawed. No brainer in my book, stick it in and wait...then snarf!
Sue, I know that you will be with friends old and/or new as you get thru this all. I just hope that thru it all, you are--well, warm where needed and iced those places as well. By the way, on good days I can be a total Mushmallow!
Just get me on a good day? Heh? as you say...
OK Enuf blather to all? Heaps of those silly smiley face hug thingies!
:hug::hug::hug::hug::hug::hug::hug::grouphug: and all that! - j

shiney sue 11-19-2007 09:22 PM

Today
 
It was 78 degrees in Mo,not real sunny on the ride to Barrnes but beautiful,the wind just enough to blow the leaves..I was on a Oaks bus,
very much like assit aride..I wanted a driver who knew how to turn and get
you to the right entrance of the hospital...People around me some crying some sick,some sleeping..
I was glad I had My wheelchair,I didn't want to go in,so I sat outside for awhile...What if's,I had a bad case of what if's..I was late Bob was not well,
my son had to be so tired..No matter,my brother 's were there,and others.
My son would not leave Bob and didn't..Ryan is such a strong man,34 yrs. old
the 26th of this month. I was pointed in the right direction,there they were,
both sleeping,Ryan had his head on Bob's bed,Bob was gently moving his hand through Ryan's hair,and they held each others ,well they were holding hands. I went to where the family was,in a room where my son refused to
go but share. ..We hugged tear 's of not seeing each other more...I went back to get Ryan to get to that room...My son heard those wheels,he smiled,
He's mad at you Mom,he's better ,yes i'm beter he voice the Trach. gone
where have you been... Talk about smooch,they both laughed I got over,
the what if's,for awhile...
My son whispered food and off he went..Sue he's well,you know,we talked
about his tests tomorrow,he never shows fear,always delikes the Drs.
Reading your post C. well I miss my other 2,and they all pick the holidays
or not,but darn it's so hard,my Daughter-in-law will be here in a few hrs.
Bob just thinks she will make everyone feel better,she will...All these years
and this truma, empty nest I hate it..Bob saids Hi..

Mrs. D is one a odd looking crystal,or a box of cookies and a little egg,oh Bob
said I should look through my glasses...Got a big bowl of candy for the
nurses... Now we will whisper,about why I can't get him some food,ha Bob
whisper is a roar,I wish I had some of that rice pudding Mom use to make..
Hugs and :eek: I just looked at myself in a mirror. Sue

MelodyL 11-19-2007 09:29 PM

Dahlek:

We don't eat sandwiches in this house. So for me to make a turkey breast, well, Alan doesn't want it. He wants my chicken with the sauce and splenda on top. I wouldn't touch it with a ten foot pole, but it makes him happy.

Oh, most of you will enjoy this link.

TURN DOWN THE SOUND. It can be loud.

Enjoy!!!!

http://moreoldfortyfives.com/TakeMeBackToTheSixties.htm

Silverlady 11-19-2007 11:55 PM

For Sue,
 
I read your records and read between the lines. Bob's still critical ...right? But putting up a fight all the way. Probably be pinching nurses before it's over. You have wonderful children. YOu are so lucky to have them. You have a good family there in showing their concern. You are blessed in many ways. Don't let yourself get too tired. It's important to stay strong so you can help Bob when he comes home.

thinking of you, but you are surrounded with love there.
Billye

fanfaire 11-20-2007 02:06 AM

When I was able to work, my jobs in radio and newspaper required me to put in a shift on every major holiday. It didn't really bother me much because I got paid overtime for it. :D At my newspaper job, my husband and I worked together (that's where we met :hug:), so sometimes we'd put together a little something before work so we could have leftovers on lunch break.

In college, I couldn't afford to go home for holidays, but I'd have a dorm mostly to myself, which wasn't all bad. :D One Thanksgiving, one of the fraternities invited everyone still on campus to their house for a simple dinner and rented movies. We watched "Suddenly Seeking Susan" and "Amadeus".

Now I don't have to deal with working holidays, but other things have kept me from spending holidays with family, like surgery, severe fatigue, major exacerbation of gastroparesis. I hate being a "party pooper" when I've been invited somewhere, but there are times it can't be helped. And I hope this doesn't sound mean, but sometimes it's a relief to not unduly exhaust myself with major festivities, even when I really enjoy the company. :(

But I too wish you all virtual cranberry sauce! :D:D:D In the virtual world, I can have all I want and not worry about glucose levels! :D No, really, you guys are awesome.

About pain levels: there are days when mine go sky high for no reason at all. When I can, I engage in some distraction, like a funny movie, or my favorite music, or a really engrossing book if it doesn't hurt too much to hold one up. I guess this is my way of getting in touch with the endorphins. :wink:

Wildlife moment: this is really long, but I must share it. When I was in vacaction in Hawaii in 2004 (the last vacation I was able to take without a wheelchair), I went on a snorkeling tour. Turns out I was in way worse physical condition than I thought because I was too weak to swim against the waves. The tour guide took me by the hand, though, so I could get out far enough to see the gorgeous fish and coral. I was horribly exhausted and in pain and about to pack it in and go back to the beach when I saw something huge swimming toward me. It was an endangered Hawaiian green sea turtle, and he looked ancient, maybe 100 years old. He came right up to me and swam along side me, so close that I had to put my right arm at my side to avoid touching him! He looked me right in the eyes and watched me for awhile as if I were really interesting. The instructor later told me that he'd been conducting this tour for 20 years and that sort of thing is pretty rare.

May you all have unique moments that make you smile. And cranberry sauce!

fanfaire
:cool:

mrsD 11-20-2007 04:43 AM

the little framed box
 
contains agatized ammonite fossils. They are cut open, and polished.
It came in a little framed box because it originated in China, and they are
big on presentation details. An Ammonite is explained well with pictures here:
http://en.wikipedia.org/wiki/Ammonite

I tend to collect natural objects, that are artistic in some way. The ammonite is a natural example of the golden mean. (this is a ratio used by artists to attract our attention--we respond to that ratio instinctively because it is somehow wired into our brains). Also the right/left duality appeals to me.
I just bought two slabs of a septarian nodule, from a lapidarist from Utah.
He cut them and advertised them with the second slab turned over like a page from a book. The result was a very close resemblance to the human brain.
Many septarian nodules have beautiful calcite cystals in them, and these did also. So I am going to polish them up and put them on the top of one of my art drawer/cabinets.
This is an example of one:
http://cgi.ebay.com/POLISHED-CALCITE...QQcmdZViewItem

One of the items on my shelf is a septarian egg..the picture is not that great, and I took it down, BTW because I am uncomfortable putting really personal things on the internet.

This picture I'll leave up for a couple of days.
It this a close up of the right hand of the shelf. The septarian egg is next to the rose quartz egg in the foreground.
The wolf print in the back I made from real tracks up North.
One of the ammonites shows up to the left. Next to the ammonite is a pyrite egg with crystal faces showing inside.
Behind the septarian nodule is a selenite egg.

Silverlady 11-20-2007 08:48 AM

BEautiful Mrs. D
 
I covet your shelf. My studio upstairs has many art objects simliar in style to yours. I yearn to see them. Hubbie says after we get the kids straightened out (money) that he will look into one of those elevator things that attaches to the stairs. That's on my wish list. He could probably install it.

I've always loved collecting pieces of nature. My husband has stopped beside the road during many vacation trips to let me forage for something for my studio. And rolled his eyes as I tuck yet another rock, twig formation, etc. into my luggage.

fanfaire...how awesome about your turtle. Perhaps he reallized you were in trouble. They say the sea creatures do this. I read stories of turtles letting people in distress hold on to them until they get them into shallow water. And there was just an article in the paper about how a young man was attacked by a shark while paddling his surfboard. He was doing this while watching a school of (can't remember for sure) but I think it was a porpoise (cannot spell that word this morning, not sure if that is right?). They formed a circle around the young man and fought off the shark. Maybe the turtle was going to help you.


Who knows...nature is awesome.

Billye

daniella 11-20-2007 12:24 PM

Sometimes the "different" thanksgivings are the most fun. One year we went to Denny's and I swear it was a blast.
Thanks for the help with the up and down pain. I have another pain doc apt with also an rsd specialist next Tue so please prey for me he is not like the others. I know pain at any age is horrible but I see my friends running around so active and carefree and I'm so frustrated. I wouldn't wish this on anyone but I just want to be involved in a young persons life.
Dahlek I agree about finding ways to lift our spirits. Its the plus for me being in ca as I love the outside. Thanks for reminding me
Now this won't be for me even before my pain a mall on the day after Thanksgiving was not happening. Anyone do or able to go for the Friday shopping?I just saw on tv Kohls opens at 4
Have a good day

shiney sue 11-20-2007 01:58 PM

Well
 
Bob is off doing some tests,so Ryan has a pager around his neck,so Bob
told us all to leave last night,big nurse while eating candy,picked up the
big bowl of candy threw us out..Bob talked first to Dr. Amy ( daughter-
in-law} she came out and said let's go. Now it was time to,go to my brother Steve the oldest and close to hospital,well sorta.

So Msry can cook,married to brother1, so can Son and wife, Both brothers and I eat. My mom and bio Dad came to parting of ways before I was born.
Steve was born to bio Dad's 1st wife,he went back to her. So we take out
pictures and gab. gab well alot. Now i get very little sleep,never could..
My Steve and Mary put me in there big bed,fear of falling,kindness,bathroom,so on. She has a blue box NightWave, it projects a blue light on your darkened bedroom ceiling to encourage sleep. My brothers can't sleep...Anywho,the glow expands and shrinks more and more slowly,your breathing slows too,which makes you sleepy.. Well why not,
it works for me went right out woke up watched out I went...It's a 3 foot circle of blue light you watch it appear and slowly fade over and over the ceiling..Me in a bed,amazing. Now it's called Nighrwave that's all I know so far.

My friend George who loves Superman,once said,Mulling over a problem at night makes you less likely to solve it than sleeping on it..Now never worded for me. .J sound familar.

Mrs D my son's and friends collect rocks ,only one we brought home on a flatback of truck.. Most of the smaller ones have been polished,with means layers of dirt removed,but some left alone,some have been cracked open,
they sparkle,shine,they would greet you coming up my front stair's and
porch. Bob collects flat marble rocks,by the river front,he want's to do the front of fire place,too many bricks...I collect bricks,old one;s they are
believe are not a hot item...They must be covered and hidden..Copper out of
ouses has for years been choice of Drug money.

Well St Louis became the 2nd leading murder capital,so here I am,1st Detroit
there I was...Well on way to hospital to sit with Bob,he out ,hope Drs. are
not..Ryan and Amy willl take me we will,listen and yes it's still scary...

If your going out of town take care,see ya's in awhile,,Thanks for caring,
Hugs to all..Sue

MelodyL 11-20-2007 06:02 PM

Sue:

I love this Nightwave thing that shines a blue thing on the ceiling. I have never been able to sleep my entire life (through the night I mean).

I take something at bed time and I sleep for 8 hours. It's like a gift.

But if I could stop taking that, well, that would be preferable.

I'm going to google Nightwave.

Happy Turkey Day.

Melody

MelodyL 11-22-2007 05:58 PM

This should all give you a laugh. Kick back your heels and enjoy!!!


http://www.youtube.com/watch?v=fJuNgBkloFE

MelodyL 11-25-2007 09:10 PM

You have never seen this before in your life!!
 
This has to be a first. I accidentally happened upon this while watching an old 'YOU ASKED FOR IT". It seems that in 1919 a man invented a musical instrument that no one touches. It actually is a machine that has two antennaes. It uses magnetic electric polarity (or some such stuff). But no one touches it and it uses the magnetic resistance to make the sound. It's a rare art form and a very very rare musical instrument.

The gentlemen in this video is actually using his hands (and not touching anything) and the various positioning of his hands, makes the two antennaes react and that's what produces the sound. You can google it on youtube. But here....for your listening pleasure. is an instrument known as THE THEREMIN.

Now tell me you've seen THIS ONE BEFORE???

Here you go.....................

http://www.youtube.com/watch?v=XwqLy...eature=related

HeyJoe 11-25-2007 11:10 PM

at least developing callouses doesnt seem to be a problem.

MelodyL 11-25-2007 11:32 PM

You have just seen an instrument from the early 1900's (way before technology), and this instrument, well no one touches it, and it makes beautiful music, and you think of Callouses??

Now that is funny.

If you youtube it, you'll find various artists take this very seriously. I had never heard of this in my entire life?? I wonder what other lost treasures from the past, are floating around on youtube??

mel

Brian 11-26-2007 01:46 AM

Thanks Mel, never seen anything like that before, that is amazing, i googled the name and come up with its history-
http://www.thereminworld.com/article.asp?id=17

Brian :)

glenntaj 11-26-2007 06:40 AM

I've actually--
 
--read a lot about this in the past, and heard a number of radio reports on it as well.

It seems this instrument was used quite extensively in horror and science fiction movies of the 1950's and 1960's to produce that eerie "woo-ing" sound in background music.

http://en.wikipedia.org/wiki/Theremin

MelodyL 11-26-2007 08:39 AM

So THAT'S how they got the background noises (eeerilly done), in all those 1950's serials??

Last night I saw an old time black and white vintage thing. It was 12 chapters. I've only seen chapter one, but it's fascinating. It's called the Lost City. And it seems they played these serials when you went to the movies and had to wait for the movie to begin, they would play these.

This Lost City was made in 1935. That's 73 or so years ago, right?? Well, it's science fiction, taking place in Africa, where some Atlantis type of ruler is making giants out of the natives, using an enlarging machine. And the special effects are right out of TESLA, believe me.

If you want to have a laugh, take a walk back in time 73 years ago and just look at all the cheesy special effect. But the electricity Tesla thing was amazing for 73 years ago.

Here's the link.

http://tesla.liketelevision.com/like...tv&theme=guide

and by the way, I am learning how to do the google video and youtube thing. Unfortunately, I can't upload to Youtube. I have no idea why, I'm discussing this over at the Computer forums.

But if you want to have a good laugh, I found a video that I made over the summer and I'm wearing a simple black top, and I was about to go out to the store, when Alan said "where do you think you are going wearing that thing?" Well, I never got out of the house. I made this video to show his sister. She laughed her head off. Videos don't come that great on the upload, I am still learning how to do this. It is not that simple. Young people today know all about bits and bytes, and resolution, and changing this. I am still learning. Let me know if this comes out at your end.

http://video.google.com/videoplay?do...56936760959211


All times are GMT -5. The time now is 12:04 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.