I forgot to tell you in the last post. I inquired about Meals on Wheels. Seems we are too far out for Dallas and our little town isn't listed on the website. The local township sponsers something similar and my husband even volunteers once a week to deliver them. On the days he delivers, if there are any meals left over, we get them. So occasionally we get one or two of them. They are usually a ground meat patty with dark gravy, over cooked veggies and pretty unpalatible. But it is a meal I don't have to struggle with. But they won't deliver in the rural part of the town.

But I did find some interesting places I can order things from on the web site you posted. I'm checking them out. Thanks for posting.

Anyone heard anything about Bob and Shiney Sue?

Billye

Melody wil you email I think her name is Antonina she made the Mayo post. She was interested in the meeting. I told her you go and she lives in NY.
I'm so confused about Sue and who Bob is. I hope all is ok.
I have no clue on Thanksgiving. I'm out here in Ca but if my pain allows and unfortunatly I have had a relapse and my pain so high I may volunteer at the hospital. Its hard on the patients.I hate holidays I'm sorry to be a grinch. I always have even before pn. I count down till after New year.
Silverlady random ? and I know this may not be possible but have you thought of moving. It seems your so trapped out there and with your pain level it may be physically and mentally better to live near things. I may be in a dream land but an idea. Could you have a young person like a nursing student come in your home and maybe help cook? It may be more affordable someone trying to get some experience.
As for me like I said my pain is higher then its been. Its so random my ups and downs. I feel very frustrated and finding a good doc who will not push me off or just want to do a huge invasive procedure is like winning the lottery.
Sending thoughts to everyone.

Hi,
I'm so sorry you are suffering so much. It's just not fair. I say that to myself everyday. I just wish I knew how to help you.

We actually started thinking about moving. But we have been here for 25 or so years. So much accumulation. I started giving stuff away, donating it, throwing it away. But my body keeps giving out when I do that. Any real activity always seems to break or strain something. I'm just really fragile. And where would we move? We know this small town, been here all our lives and there would be no contact with anyone we know.

He's very introverted. Does volunteer things some, but has a hard time communicating with folks. He has NO best friend. only a few people he is in contact with thru his Kiwanis club. There is just no where that it is better. So we will stay here until our childeren put us somewhere. I grew up in this tiny town and my 81 year old father is here. I can't move. But thank you for thinking of us.

I just so wish I could help you.
Billye

Billye:

I had to ask!!!

What happens to the camera after it takes all the pictures.

You must have looked like a person out of Star Trek!!!! I LOVE THIS!!!

Melody

Daniella (and everybody who knows about the neuropathy meeting in NYC).

Alan and I never got to go. I am so mad I could punch someone (I'm actually very gentle, NORMALLY, but really, this stinks).

Alan and I were to be picked up by Access-a-ride at 4:05 p.m. We were all ready, all spiffied up and Alan even had his shoe boot thingee shiny and all. I even got to put on something nice and my makeup, and well...we were all ready to go. Nobody showed up. We waited at the front door for one hour (I tried to get Access-a-ride on the phone) and I was on hold for 45 minutes.

When 5:05 rolled around, I looked at Alan and said "forget it, it's an hour now, we'll never make it). I finally got through to Access-a-ride on the phone, explained we were cancelling because the guy never showed up. She then proceeds to ask me 'do you want to cancel your return trip too??" I said 'obviously, since I can't get there" (ooh, punch time).

So we walked around the corner, came back with some steamed chinese food stuff, and would you believe at 5:35 p.m., my doorbell rings and the Access-a-ride guy is there!!!!

I looked at him and said "I beg your pardon but do you know you are 90 minutes late, and I called and cancelled"?? He goes "nobody told me, don't you want to go to NYC??" I said "I'd love it, IF YOU CAME WHEN YOU WERE SUPPOSED TO COME".

I then politely closed the door, went back in and ate my chinese food.

I sent my regrets vie email to everybody I knew at the meeting.

Tomorrow I shall call up Access-A Ride headquarters, and I shall draw and quarter them.

jeez...

Mel

I'm so sorry you didn't get to go Melody, that just su*ks bigtime. I would not have been a happy camper with the company that caused you to miss the meeting.

As for the camera ? you really don't want the answer to this one.

Billye

Well, I WILL make you laugh.

This morning, my birthday present from my husband's family arrived. It was a package with products from Bath and Body Works. My absolute favorite fragrance from that store is Japanese Cherry Blossom.

Well, we were getting ready to go to the front door and wait for the Access-a-ride, when I thought to myself, "why not make a video of Alan's absolute initial reaction when I spritz myself with this fragrance".

So I sat Alan down, and told him "I'm spritzing myself with a new fragrance, and I want your honest reaction".

Well,.............I just uploaded it to youtube. I hope I did it right.

If it takes, I'll come back and post the link.

I got hysterical.

You'll see.

Melody

P.S.. guess what?? I can't upload a video to youtube. I have no idea why. I know how to make them, I know how to upload them, but for some reason, it's all about file transfers and file converting. Way over my head. Oh well, it was a thought.

Thanks for your support always. I feel so bad for everyone here too. You guys show me how important it is to fight and cope in the best way possible.I have made progress but then I get hit by the bad days. I'm thankful though at the progress I have made just hope it never goes back to the way it was and oneday I'm fixed.Each night I go to bed I hope the next morning it disappears and never comes back. Then no more docs,tests,worries,or pain. Ok now back to reality.
Silverlady I understand how hard it would be. I just wish you had more access and help. Is there anyone near though like I said a college kid to help? I understand too on the thought of moving as I'm just recovering from moving to ca and unfortunatly once here had to move 2 more times. Talk about being tired and in pain.
Melody I'm sorry you missed it. That is annoying but at least you got a present. When ever you talk about your husband I get a mental picture of what a cute couple you guys are. I'm sure I'm off base but everyone on here I have images of in my mind. I feel like were family.

Daniella:

Here's my hubby




He hasn't been to the gym in a while because of the foot ulcer, but just you wait, he'll go back there and act like Rocky once more!!! lol

I'm tired,Bob is still in ICU,and my son slept a little today is will stay with him tonight...He will be taken to Barnes Hopital in St, Louis Tommorow..Ryan
my son will be with him...Dr.John my friend felt there is a Dr. there,that
should be able to give better care...Bob is not happy about this,but my
oldest brother,Steve lives in Granite City,IL just across the Bridge that seperates,IL,and Mo. Bob loves Steve and his wife Mary...They will be waiting for him...Ryan called his job at the Hospital,and they agreed to
let him stay until after Thanksgiving. The health food store is owned by his wife and Ryan so no problem there. .Dr.
Amy my daughter-in-law will be there on Thanksgiving,now Bob has perked up..Amy is a Psychiatrist so i'm sure we will need her then...Bob's deceased wife has some sisters still living there so help we, have.,I'm far to tired to explain the medical problem,so for now we are all well.

Now no comments,but I am moving in with Dr. John, because he have 2 bedrooms on the first floor of his house, and a housekeeper,so nobody has to worry about me taking a header down the stares...But I did fall alsleep and hit my head on the computer .ouch. My brother from Mi. will fly in next week,
he is the 1 that was very upset,Mama didn't leave Bob to him..Ha
Danilla my mom left me Bob,he was her childhood friend... And he is has been a angel to me..He will be 79 Dec. 3,had has 6 girlfriends in there 60's.

I was with him most of the day,oh my tubes everywhere he will make it he must.. So on Thanksgiving we will all be in St Louis,It will be good to be with
my brothers,it's been a while since i'm seen the oldest...

My Drs. all know trouble,that's what they call Bob,not to happy about me going,but my Neuro the Barnes one is there so phooey...Mel the salvation Army always picked me up when we volunteered on Turkey day or Tofu day
for most of my Children. My youngest will have to stay home,new Children,
My Son has a big family,in Mn,so it's important for his wife,Bob wrote on a text for him and my Daughter,who has a 6 month old and lives in Portland
with her husband...So that's that...So far so good.

Darlindadeb, Danilla,and I lived in Michigan as,well I grew up in Grosse Point
and St. Clair Shores...Mrs.D does as well. and Cindy on the MS forum.....
I will be checking on you all but I have to sleep soon...Thanks to all for your
prayers thought PM's..I can't tell you how great and wonderful it is to
have a cyber space family...And this is a good forum...The taxes on the house
went up,They guy who did a great job on my roof is now trying tto hit me up
for more money...Yada Yada...And good grief why did I say I would stay
at Dr. John's house,well it's 2 blocks away,I could always sneak home,i'm a
old lady Mel,J, all the rest help!!!!!Hugs to all and my legs hurt, I love you
Sue Cathie we just have to get that Commue..heh heh..