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-   -   Phantom vibrations??? (https://www.neurotalk.org/peripheral-neuropathy/32293-phantom-vibrations.html)

darlindeb25 11-17-2007 05:38 PM

My left side is worse than my right. I can stand on my right foot for a maybe 30 sec without swaying, but not my left. My left foot feels like a constant twitching is going on while I am standing there and I sway after a very short time. I can stand nearly as long with my eyes closed on my right foot, but not at all on my left foot, I tip immediately.

As I mentioned once before, when we had a power outage at work and I was in total darkness, I was totally disoriented, my sense of balance was completely gone. I was right next to my desk and my boss's wife was right beside me, she walked me out to the light, by the time we got there, I was totally shaken up. I never felt that disoriented before, not that I remember.

Why do our nerves effect out balance--did I miss something?

Brian 11-17-2007 07:42 PM

Fascinating subject, i come across some reading that talks about how pain works, the subconscious and biofeedback technique.
http://www.fibrotalk.info/index.php?...d=41&Itemid=48
http://www.fibrotalk.info/index.php?...d=40&Itemid=48

Brian :)

Silverlady 11-17-2007 08:35 PM

very fasinating
 
Brian,
The first post explained what my neuro was saying and the second post I forwarded to my youngest stepson to see if it might help with his son (14 yrs. old) who had a devastating stroke 2 years ago.

I appreciate your research.

Billye

Brian 11-18-2007 01:00 AM

A stroke at any age is awful enough but such a young child, just isn't fair at all.
I really do hope there is some value in that for him.

Brian :)

Julie K 11-18-2007 12:09 PM

Quote:

Originally Posted by HeyJoe (Post 168455)
with my numb feet if its dark or i close my eyes i fall over never mind balancing on one foot

I'm with HeyJoe

daniella 11-18-2007 12:10 PM

Silverlady I'm so sorry about your son. My thoughts are with you and the whole family.
Now on the biofeedback, I have anxiety times 10. The biofeedback was such a great part of the clinic and really helped me with the anxiety so much. I keep saying I want to find a biofeedback therapist here. I really encourage all of you to try it. I'm not sure if it helped my pain front but any help is great on any aspect. I think it takes time too for it to work.

MelodyL 11-18-2007 12:31 PM

Yeah, me too Billye:

So this young person who suffered the stroke, he's your step grandson, is that right?? Makes no real difference in the scheme of things. He's your grandson.

I hope your step son is dealing as best he can. Has the young boy recovered??

I've never heard of such a young person having a stroke.

My god, the stuff families have to endure.

No wonder why so many people have such stress in their lives.

My thoughts are with you.

Melody

shiney sue 11-18-2007 12:49 PM

Hi
 
I have seen them being brought in with strokes,then transfer to Childern's
hospital. It was aways a shock..

Hey Joe after 18 years of dance lessons,which I must say was stupid,
Children tiny feet are noT ready for that,anywho now with numb feet,
I also fall over,,Neurontin doesn't help with balance but helps with some
of the pain...Oh I would think at times we are in a quagmire,or whatever.
hugs to all Sue

Silverlady 11-18-2007 04:56 PM

Not much better
 
My step-grandson is the only boy grandchild in our family. He had a vein burst in his brain when he was 12 years old. Here is the link to the type of problem he had. http://cpmcnet.columbia.edu/dept/cerebro/AVM.html They put him into a deep coma for a period of time, did surgery on his brain to close those veins off and he had a stroke while this was going on.

It has been two years since this happened. He is now paralyzed on one side of his body, and it has been a terrible journey for my step-son and family. My grandson will never be the same.

Didn't mean to steal the thread but I felt that this was really necessary info to post as this was a life altering problem not only for my grandson but the entire family.

I hope you all will read and learn about this neurological problem. And thanks so much for asking.

Billye

daniella 11-19-2007 01:33 PM

I'm so sorry. Your right pain and illness effects the whole family. Its very hard to cope but I know support for both sides is important


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