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Old 11-24-2007, 08:44 PM #1
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Default Thyroid meds??

Hey All!
I'm just wondering if any of you are taking Thyroid meds that are helping with your PN? I've been having lots of achiness in my arms and legs. The last time I saw my dr. he said he wanted me to try these 2 Thyroid meds...Levothroxine and Cytomel. I'm trying them for a month and then reporting back to him. Well after being on them for 2 weeks my pain is much less! I'm still taking Lyrica but it's not like I have to take it around the clock.....every 4 hrs like I have been doing because the pain was SO bad.
So anyway.....I guess this means I'm lacking some Thyroid in my system and now have to take 2 more prescriptions....like I don't take enough already...$$$! But I'm happy to have less pain.......I can't seem to win!
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Dx'd with Spinal Arthritis 09
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Halo 360 & 90 procedure for Barrett's esophagus
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Dx'd IC May 2006 (after suffering for 25+ yrs!)
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Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
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Old 11-24-2007, 09:22 PM #2
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I've been on Armour and Cytomel since 2002. I notice no difference in the neuropathy. But then, I feel like I need a disclaimer that says: results not typical.

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Old 11-24-2007, 09:40 PM #3
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HI Fanfaire!
Well I didn't expect any results from my taking the thyroid meds but they do seem to be helping with my pain. I just hate taking 2 more prescriptions since I take so many already.
All of my tests have come back ok.....but I guess that doesn't always show a problem.
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 11-25-2007, 09:33 AM #4
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Post My PN...

was mostly due to hypothyroidism.
I've posted that many times, so I won't go into it again.

I also have some arthritis, but that does not cause nearly the pain I had when my thyroid was messed up.

You want to make sure you do not take TOO much replacement hormone. That leads to osteoporosis.
So keep it tightly controlled.
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Old 11-25-2007, 09:50 AM #5
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Good Morning Mrs. D,
Thanks for your post. I'll mention to the dr. about the amount of meds I'm taking and the Osteoporosis, I sure don't need that on top of everything else! I'll look for your posts about your Thyroid problems. Thanks again!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 11-25-2007, 12:59 PM #6
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Hi. Even if not from this med I would encourage you to get a bone scan if you haven't. I have osteo and am 29 and my mom has it too and is on meds for that. I know its not going to fix your other pain issues but at least may prevent other issues.
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Old 11-25-2007, 06:22 PM #7
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I take both of those meds, though I take a slow release Cytomel which is compounded. I can't say that correcting my thyroid changed the neuropathy, but it still makes a huge difference in how I feel.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
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Old 11-25-2007, 07:21 PM #8
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Default hI ROXIE

I HAVE BEEN ON LEVOXYL FOR YEARS, IT WAS IT WAS LOWERED 1 YEAR AGO, ,HONEST DON'T KNOW. IF IT HELPS ARE NOT BEEN ON IT YEARS.
wHY DID HE SAY IT WOULD HELP pn. I'M BEHIND AND IN WORST PAIN I'VE
EVER BEEN IN. fRIDAY bOB HAD SURGERY,HE'S FAIR..i KOW SHOES OFF,
BROTHER FROM MI. IS BACK HOME,SO IS SON AND DAUGHTER-IN-LAW.
TOMORROW i GO TO SE dR. JOHN MCdONALD A WASHINGTON VERY WELL
KNOWN NEUROLOGISH IN BARNES ST. LOUIS AREA..HE HAS BEEN A DR. OF MINE FOR A FEW YEARS..ALSO CHRISTOPHER REEVES,MY BROTHER AND FAMILY INSIST,GOOOD RESON'S. ROXIE WILL PUT IT ON MY LIST..

i WAS A BIT AFRAID WHEN THEY LEFT CRYING TO BE HONEST..HEY MOM HOLD YOUR GRANDBABY,THE 1 I HAVEN'T SEEN,LITTLE OZZY,WITH A NEW TOOTH,
AND MY SON GRADY,MY BABY. THANK YOU,ALSO YOU KNOW WHO YOU ARE
FOR YOUR OFFER,YOU ARE A BLESSING. SORRY ROXIE AND ALL FOR BUTTING IN. GETTING A THOROUGH CHECKUP NEXT WEEK,WEEKEND I SCREAMED AND BIT MY LIPS...WHEN OZZY SMILES YOUR GOING TO GET BIT. THANKS FOR UNDERSTANDING,IF YOU DON'T THROW ME OFF...lOVE YOU ALL,THANKS SUE
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Old 11-25-2007, 07:39 PM #9
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Default

I have been on thyroid medication since I was in my 30's. I take Synthroid 75MCG. My doctor has me do blood work at least once a year to make sure the dosage does not need adjustment.

Roxie, did your doctor put you on this medication without a blood test? I guess I don't understand the correlation between thyroid (high/low) and PN. My arms and legs ache sometimes, but I just attributed it to working outside or just the PN condition.

I was only diagnosed about 7 years ago, so I don't believe my low thyroid played a part in my PN.
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Old 11-25-2007, 07:52 PM #10
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Default Same Here

I DON'T SEE WHY ARE HOW THEY WOULD DO THAT WITHOUT BLOOD TEST.
I ALSO BEEN ON IT SINCE EARLY THIRTIES 61 NOW,MY ENDNDRO. HANDLES
THAT . mY SON SAID SAME THING INTERESTING. SUE
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