[jannaw]

Last week I finally saw rheumatologist for the pain inside my knees and also in my wrists and elbows, etc. I saw him because my ANA was 180 although I have a normal sed rate. Anyway we discussed my sudden onset of pain mid July of this year and his answer for me was Adult Human Parvo, adding that my symptoms should have normally resolved by now. I have for the past six months ran a low grade fever along with the pain an stiffness, I now know that parvo is simply fifth's disease in adults who have not previously been exposed, but I also note that my IMG and Iga should have peaked and I should be seeing relief by now. I am not entirely comfortable with this diagnosis and for treatment he simply said about five times "Yoga will become your best friend", okay....I also have hyper something flexion syndrome.
My alternative now is to simply live with this or try to hook up with another rheumy, the closest being 130 miles away on winter roads. For now it will be live with the pain.
Also, anyone ever experience intermittant pain under the lower(towards back) ribcage? This started about a week ago and it mighty uncomfortable, my liver panels were normal this summer, my gall bladder has been checked out and this pain goes away when I rest. Can I just live with one malfunction at a time, why all these wacky little problems in addition to neuropathy? I gained twenty pounds while on Lyrica, okay though because I started at 115lbs, however it is all in my belly area and I sometimes have a stomach resembling late stage pregnancy, I was being treated for IBS at one time but didn't want to continue with gastro, just one more doctor. Should I see my GP or gastro for this?
Happy Thanksgiving to you all!

[dahlek]

Jannaw? Any doc who is blase about your problems is well, in my book too blase? And yes, with any neuro issue your reflexes, be they over or under responsive be indications of 'problems' - I know you have read extensively, and IF I had a doc tell me 'yoga will be your best friend', well, I'd be shopping for other docs pronto! While yoga can help with flexibiility and balance issues [after PT tho in my HO] It is not the solution.
That is not what I like to hear before a holiday weekend tho. All that money spent to train that doc, and where did it go? Down the drain I guess. Sad but reality.
Please take a few cyber hugs from me to you: 's Sounds like you are truly down and need them.
Check out this web site tho? IF your doc really suspected Parvo, he should have 'reported' it. Betcha he didn't! Up to you now.
http://www.cdc.gov/ncidod/dvrd/revb/.../parvo_b19.htm
Hope this helps light fires where certain derrierres need to get cracking?
Eat TURKEY! Over Dose on Turkey! At times it's far, far better than drugs! - j

[jannaw]

Hi, thought I'd check in, went to my spine and pain dr today and he thought my parvo diagnosis was interesting. But then, so do I.
My lower back has been locking up something fierce on me when I stand for more than a minute and when I lay down, have to use a cane to get around first thing in the morning so I am having a spinal shot Tuesday. Seems like it doesn't work because the pain doesn't go away but obviously it does since the pain has become so intense again.
I asked for and got a script for warm pool therapy, regular exercise is out for me and I can't wear shoes long enought to walk. The yoga the rheumy advised for me scares me because of my back so I am excited to start water therapy. Anyone out there have success with this?
Last night I started working at home taking inbound calls for fund raisers, if it works out I will be able to leave my day job, I can work at home barefoot in my jammie pants and take frequent breaks, wish me luck. Bye for now Friends

[cyclelops]

I assume they checked you for a herniated disc?? And yes, they DO herniate in the thoracic spine, contrary to what many docs will tell you. I am for full spine MRIs.

Water therapy is usually well tolerated by most people provided the water is warm.

[shiney sue]

Hi it helped some,have a big towel waiting,you can get so cold coming
out...Dry your hair,with this weather...I don't understand why he
didn't do more,sounds like he's the only one in the neighborhood.
I'm sorry this stinks and somethiing about him does too. Sue

[Silverlady]

I've had a stress fracture in the thoracic and also the lumbar area recently. I'd insist on a full spine MRI. I love the water therapy but only if the water is warm. Cold water makes the muscles lock up. Try to get an arthritis approved exercise class. Most YMCA's have them. Even as small as our little town is, we have a YMCA with a heated pool and an Arthritis Assoc. approved instructor.

If you are going to be working at home, remember to take frequent breaks to rest your spine. Sitting puts a full load on the spine according to my husband's neurosurgeon.

Billye