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Old 12-02-2007, 07:26 PM #11
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sounds like you need to wrap yourself in an electric blanket melody.


fanfair, i hope all is going well. sending you lots of good thoughts and prayers.
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Old 12-02-2007, 08:01 PM #12
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Default Melody warm up with

'sunbeam warming throws' Sites as follows:
http://www.sunbeambedding.com/produc...x?ProductID=33
And
http://www.walmart.com/catalog/produ...uct_id=6371080
I've had one for about 3+ years now, and It's living on my LR chair, keeping me and the surrounding air warm constantly.. I've the kind that doesn't have an auto-shut.off, but that is me? and my preferences. IF you are in a chair, a throw kind of thing is far better than the extra bulk of a blanket...only negative is the 'cord and the plug' it all requires. I find I am often more comfy and toasty in the chair than in bed.

BACK TO FANFAIRE? I truly hope, if you can read this...that you have been on my mind and in my heart during your travels today! That there were no disasters or even 'near' ones? [KNOCK WOOD QUICKLY here?] And that you are gonna be ready to do DOCTORS! Lots of them tomorrow!!!! Good thoughts and hopes for the 'duration'. Get thru it all and be proud you have DONE MAYO!? Sure wish this was more than it is -'s ? - j
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Old 12-02-2007, 08:30 PM #13
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Default Me as well C

Thank you for that and what a insperation indeed. My 30 yr old son
has shingles,called and wanted to know how we all managed from
day to day.

I started to read Neurotalk when Billye went to Mayo,,I to thought
how will she ever make it..She decribed the weather changes,
the effects of weater change and pain..Boredom and pain..But the
help so many people from here rooting her on from all over,,it was
amazing..I knew no one,I had just come across all of you and what
a blesssing..I just sat and read and yes at times prayed,if they needed
directions,there would be someone there with directions..

I was and still am so proud of this Neurotalk family,all of you so
kind,when someone needs it,so patient went someone cries,sit
back and help when someone vents,but for so many others,
you put aside you pain to embrace others pain..He asked and that
was just the easy way to answer,because believe me I could gone
on for days...Be brave for all of us Fanfaire,and you will be in many
hearts and prayers..All the rest on the Neurotalk,you have helped
me and Bob ,make it through many bad days and nights..You have
turned our tears to laughter. Bless you all,hugs Sue
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Old 12-02-2007, 09:56 PM #14
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Default To Sue and Fanfaire

Sue,
It truly was a blessing to have this group when I went to Mayo a year ago. I was in constant unrelenting pain. Tests for 8 hours. Struggle for the entire week and a half. I lived to hear from this group here at Neuro Talk. It was the first thing I did when I got back to the hotel room. My husband and I had no contact with family. But we did have my family here. And Liza Jane's chocolates. All my friends, Melody and Dahlek and the Balloon bouquet. When I struggled to get thru the pain, I'd think of the balloons. Everything was so unfamiliar and stressful for me. I'm not a traveler. But with the support of everyone here, I was armed and ready for everything. You will all never know the blessing you were and how dear you all are to me.

Fanfaire,
I"m sending that same balloon to watch over you. Dahlek can you post it for us again? I want to be the orange balloon floating over Fanfaire giving her all the strength and energy I have. I'm so praying they got thru the roads safely. I just got an email from my sister-in-law in DeMoines Iowa. Terrible road conditions. I'll say an extra prayer tonight.

Hugs and strength
Billye
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Old 12-02-2007, 10:45 PM #15
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Default OH MY! Billye?

You are gonna have me do a dogs body of searching for that...but gimme until tomorrow and I'll probably find the right 'spot'?
I do recall that it was sort of like this?: Consider us a bunch of nosy, boinky, helium balloons, hovering over you...listening to every word said...going HUH? What'd HE say? She Say?-etc.DID THAT DOC REALLY SAY THAT? Really NO?.. Essentially being nosey parkers, but not of the 'church lady' type [pardon to some here?- just not trying to be intrusive..I mean] Really wanting to KNOW all that's going on and give you OUR take while it's happening.. Also, as you are going from room-to-room-wing-to-wing, we just go along with you...boinking thru the doors and along into people's heads as you are trundled to and fro.. all the while jabbering at each other, getting off track just like we do here! Hopefully, none of us 'bursting'?
Me? I guess I wanna be a small, silvery and super head boinkey type to all the docs who arent' saying what YOU WANT! I promise some strange breeze will come along and thwonk them in-between the eyes! Yeppers, that's gonna be ME!
Is that what you meant? Well, Fanfaire...I'm boinking over or near you...in spirit at least... got that? WARM hugs and all that... - j
Here have a It should keep you warm and cover a lot of bases? I have the utmost respect for sheep, and their wool! Especially at times like these? BURRRR.
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Old 12-03-2007, 09:49 AM #16
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Well, since I control the thermostat in this house, I am not cold, never cold, and I don't need throws or electric blankets. When I say my body doesn't like the cold, I don't mean I'm cold, I mean, the temp outside (no matter that it's toasty warm inside my apartment), well whenever the weather changes dramatically, like it's been doing, well my whole body goes crazy.

Two days ago, was the prime example. I wanted to commit murder. My whole body was killing me (including my teeth), which baffles me, but then again, it happens to my girlfriend who lives in NJ. Our teeth hurt us at the same time.

She has severe allergies. Yesterday it snowed in the morning, and it was freezing. Then it changed to rain, and all the snow disappeared. This morning, it's all sunny and beautiful BUT because of the change between yesterday and today, my right knee is throbbing as is my upper teeth. I was fine yesterday though. Last night, I was just fine. Went to bed just fine (no meds or anything). I'm not one to take any meds unless I'm dying.

So my body is all about the barometer.

God I hope it either stays 40, or stays 20. But that it doesn't keep flip-flopping.

The odd thing is when it rains, Alan is in heaven and I'm going crazy.

What a contrary thing, this arthritis is.

See, my PN is under control due to good sugar control and my Methyl B-12.

I only wish that my body would cooperate when the weather changes.

I wish I had the moola to move to Arizona where the sun shines 360 days a year.

And I had to laugh when someone suggested an electric blanket. I'm walking around in shorts in my house all the time. And a tee shirt.

Believe me, I don't need an electric blanket.

lol

Mel
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Old 12-03-2007, 05:47 PM #17
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Default Melody, I DO understand the barometer stuff,

But that is secondary to my other issues...I is a 'thing' that just comes with the territory. Had it all long before I came down with the neuro issues. And yes, it drives one nuts...but, compared to other stuff, it's really little stuff.

AS for FANFAIRE? I sure wish we could get some sort of word back from her. I realize that it's all gonna be INTENSE, frenetic and cold? But at the same time, I'd like to know that Fanfaire is THERE and safe and getting the tests! That should be foremost in our hearts and minds... for now. - j
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Old 12-03-2007, 06:00 PM #18
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will this do for now?



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Old 12-03-2007, 08:59 PM #19
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Default Good one Curious

I think I know where the balloon bouquet is, it's in my Mayo saga. But I have no idea how to get them here. And it would be my bouquet. This one will be Fanfaire's and I want the orange one. I want her to feel sunshine and warmth around her. Maybe we will hear something soon.

Billye
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Old 12-04-2007, 07:28 AM #20
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Lightbulb best smileys...

remember the website with the linkable graphics?



or







http://bestsmileys.com/ballons/

I like the little one at the bottom, myself.
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