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-   -   Fanfaire? (https://www.neurotalk.org/peripheral-neuropathy/33081-fanfaire.html)

Curious 12-04-2007 07:56 AM

http://re3.mm-a4.yimg.com/image/2845021727

http://re3.mm-a3.yimg.com/image/2552212939 http://re3.mm-a8.yimg.com/image/4128007733

lol :hug:

Silverlady 12-04-2007 11:11 AM

Wonderful!! Wonderful!!
 
Those are great balloons!! All of us hovering around her to give her our support and love!! Keep them in your mind whenever you are suffering there. We're there.

Billye

fanfaire 12-04-2007 11:42 AM

Hi! I'm alive! My husband is watching me type this, so say hi to him too! :D

Weather was semi-rotten. Ice was bad enough, but the WIND! Ack! We passed lots of flipped and crashed vehicles on the way to Rochester.

Saw Dr. Osborn in rheumatology yesterday. He's nice and has a SENSE OF HUMOR! He got me started with bloodwork and stuff.

He said something seemed a bit off with my heart, so I did some scans yesterday. I'm going to do some pulmonary stuff too tomorrow. But today, it's the neuro adventure.

Did the EMG this morning. OUCH, as you all know. But it didn't hurt nearly as much today as the one I had three years ago. :confused:

Am about to go do a sweat test, so need to run. Will do neuro consult if I can tomorrow, and will try to see the ENT maybe Thursday, if more tests aren't added by the neuro guys.

Thanks for all the posts! It was cool to get to read them. Will pop in again if I get another chance to use the Mayo computers.

fanfaire
:cool:

dahlek 12-04-2007 11:54 AM

WOWs all around!
 
Wow that you got there safely....Hi good Husband!
Wow that you are really getting the once over!
Wow that there is another doc with a sense of humor to add to the lists!

Wows to everyone who has come up with those GREAT balloons!

Fanfaire, keep up your strength [hard to do I bet] and know that all those balloons mite help hold you up? Hugs - j

cyclelops 12-04-2007 05:00 PM

If it is the same sweat test I had (thermoregulatory sweat test) or roasting you in a box test.....hope that Fanfaire turns purple!! (That sounds bad, but it is actually good.)

I just do not understand why every one hates our weather...sometimes it is good not being able to walk to your mailbox without skating. No news is sometimes good news...I let the mail sit for a few days. It is kind of funny to watch my 90 lb. dog slide outside when I let him out..........this weather has its benefits (not).

(It is snowing again, so hopefully the snow, covered with ice, will become snow again and we will have some traction.

MelodyL 12-04-2007 08:10 PM

Where did you get that great big yellow sun balloon. I love it!!!

Mel

cyclelops 12-04-2007 08:44 PM

Oh my, Fanfaire is getting the works....an Alberta Clipper is hitting us with 3 to 5 inches and arctic blast. I assume Rochester is in the same path, but you never know. At least it will give us some traction on the ice. Rochester probably didn't get the ice we got....they just may get a pile on of more snow. Expressway driving is down to 35 mph here.

The yellow balloon reminds me of summer. Ahhhh..........I will turn on my heating pad....cover up with 2 quilts and pretend I am at the beach. I am in a bit of a funk over my testing coming up, (scared, nervous, the works)....so I am not upset about 'holing up' in the house in the bad weather. It suits my mood.

Silverlady 12-04-2007 08:45 PM

Turning purple in a box
 
Yes,
That's the same sweat test they did on me last Dec. You can look it up on line to see what they are like. Fanfaire, Be prepared to have purple hands, knees, feet, etc. Anywhere the skin is dry it will stick more. My hands were purple for days as were my feet and the sides of my body where I couldn't reach to scrub. Underarms were purple. It just has to wear off. And you will see lots of people at Mayo with purple hands and feet (if they are exposed). They are pretty common. I wish I'd know she were going thru this, I'd have had some hints for the eyes. The box is so hot and dry.

Also,
be sure someone sends you to a Gastro. You have problems and if it's Sjogren's and neuropathy, you are likely to have more. This all needs to be documented.

Good luck to your husband. I know the weather is so bad.

Billye

shiney sue 12-04-2007 10:34 PM

I liked being purple,I thought purple hands were interesting...Keep them
busy,and Hi hubby!!!!Hugs Sue

Yorkiemom 12-05-2007 01:27 AM

So glad to hear from you Fanfaire and that you and hubby made it without landing in a ditch... Hello hubby... Welcome to our group! I wasn't sure you all would have access to computers up there.

I like your snow, but we never get anything like that in Texas, maybe a little snow, but nothing like you are describing... People here would freak out. You all would laugh at the closings we get when we get even a light dusting of snow...

I don't know anything about this sweat test, but if it makes you hot, doesn't that make the neuropathy burn? Purple sweat???

Cathie


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