Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 11-30-2010, 09:16 AM #1
cope cope is offline
New Member
 
Join Date: Nov 2010
Posts: 3
10 yr Member
cope cope is offline
New Member
 
Join Date: Nov 2010
Posts: 3
10 yr Member
Default Needing expert advice on strange PN! Very long post!

I am really glad I found this forum. I am really struggling with what to demand as far as testing because I don't know what is wrong with me and I am being dismissed.

I am a 29 year old American female living abroad in Denmark. I have been to 3 neurologists here. My questions for you all include:
1. Do my symptoms ring a bell?
2. What tests should I demand?
3. What supplements should I take?

Brief (as possible) history:
Sep 2008: 30 min of intense formication on both feet and ankles at sister's wedding. I didn't know this was neurological at the time and thought there had been ants I didn't see. No further symptoms.
June 2010: found fingernail sized numb patch at top of Left leg next to groin simultaneous with 2 weeks of top of both feet tingles (spot still numb)
Sep 20, 2010: Right big toe underneath numb. Lasted a few hours till I walked on it and got feeling back, sat down and intermittent numbness till I went to sleep. Next day mostly resolved. Since then I have had continuous problems (a little over two months):
--twitches and jerks all over, worse at night
--fasiculations in both feet below ankles after exercise
--extremities falling asleep for too long but I can shake them back
--sharp pains anywhere but mostly feet, sometimes hands
--after jogging sharp pain in toes even "live wire" shock in right big toe and pain in knees the day after, so now I don't run
--have seen my lower abdomen twitching/jumping
--ringing in left ear
--I got a pain in my right rib twice that was very transient and hard to breathe but very brief
--"coolness" on top of back after walking and zits all over shoulders (I have always had clear skin)
--full body weakness after yoga (I start shaking from muscle fatigue I think and this is happening now just in general)
--now: both feet tingle nearly all the time and seems to be headed towards painful feet

Like I said I have been to many neuros. The first was with the numb patch and I was told "we are not perfect you know" and no tests ordered. The second after the toe went numb and after a normal clinical evaluation I was told to see a psychiatrist with no tests ordered. The recent third finally ordered an extensive blood test and MRI of brain and spine--all clear so I was told to see a psychiatrist and that no further tests will be ordered.

I realize that I have to find a new neurologist and ask for nerve conduction studies and possibly a skin biopsy since they have all completely neglected to test my PN. Are there any other tests I should have?

I am taking omega 3 and regular supplements. In 2004 I was anemic (score of 6) but now I am ok with a 24 (I was vegetarian at the time and not knowledgeable about supplementation). There is no history of autoimmune or neuro disease in my family. I don't drink, smoke, or take any meds and I exercise and eat very well.

I noticed that my WBC count from July to October has gone down by a little more than one point and is now one point away from being below the minimum--this could be a clue?

You can throw your guesses my way as to what this is, it can't scare me after thinking I had MS, a tumor, etc. I know that CIDP can present with sensory problems and motor after 2 or 3 years. I really appreciate any advice you may have, I am quite distraught at watching my situation progressively worsen while being told I am a nut case! It is really unreasonable how I have been treated and I can sympathize with a lot of you that have similarly had to defend your neurological case!
cope is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
What a long strange trip it's been..... legzzalot The Stumble Inn 4 11-16-2010 02:15 PM
New Member Needing Advice! TonyR Aneurysm 3 11-12-2010 05:47 AM
Needing Advice mumoffive Thoracic Outlet Syndrome 9 09-26-2010 05:11 PM
Newbie needing advice please daftlass Spinal Disorders & Back Pain 1 08-02-2008 03:23 PM
New Site - Still needing Advice Susanmkemp Multiple Sclerosis 9 09-28-2006 07:04 PM


All times are GMT -5. The time now is 04:48 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.