I get those radical swings in BP too. It has been better lately, but I used to get them something awful....and my pulse would be sitting at 42...and the BP at 203/110....then a week later 70/40....then 120/80 for weeks at a time. BP can sometimes be highest at night in people with autonomic problems...my doc wanted me to sleep with the head of bed elevated....but I kept ending up at the bottom of the bed...I slid down there.

Lately it has been more controlled, and I take very little medication. The autonomic nervous system has a way of making this all very confusing...and potentially dangerous.

My doc agreed that all BP medication had to be short acting, so if my BP sunk it was not two days before the medication to keep it low wore off....I also have fludrocortisone to bring it up. I am lucky enough now not to take either....but I have an EPS coming up in January, so I will see what that shows, and I may end up on something for an arrhythmia...then again, maybe not.

Thank goodness you took that reading....your BP can be high and you not even know it! Keep us posted.

Back to the topic---I too have problems with walking and problems with legs below the knee and hands below the elbow (no I do not walk on my hands, not anymore, nor not yet again)....I can walk, but I don't feel much, so their are times, when I stand up, I have to wait until there is some feeling before I walk or I will crumple. Once I get enough feeling...then I can walk around OK...but I never get total feeling...there is always 'something missing'. It is hard to walk around with that feeling and I don't trust myself, but I carry a cell phone and go anyway...I figure if I go down, some nice person will help me...I hope!!...or some creep will steal my purse.