Roxie
 

I wrote you a note and it went away ,anywho 2 yrs. ago i had a picc line
better than trying to get poked. Just like hey Joe and C. said no
problem. I would think your idea about doing something else at work
is good. Other wise how are ya sugar.hmmmm!!! Hugs Sue

good idea
 

Roxie,
How are you doing? I think the idea of doing something less physically demanding is a good one. Have your doctor write you a note explaining this for your employer.

Billye

HI Sue and Billye, I'm going to try to get my school district to let me transfer to a different job since this PICC line will probably be long term for me, tho I have to talk to my dr. on Wed. for sure. I'm very tired of being poked more than once to get the iv in and then it hurting the whole time it's in, even with a slower speed. Each week is worse and worse.
Y'all have a great New Years Eve! Take care and be safe!

Hi Roxie you and your honey going out or staying home and relaxing?
You should see the Dress I got,it's Royal Blue and pretty. John and I are going
to a dinner party at Freinds. I would ratter be at home it's cold again,
but I promised awhile ago,just hope nobody is sickk,I'll get it. John
has thick dark black hair look's nice when he's all dressed up. Hugs to all Sue

Hey Roxie--

Is the PICC for IVIG? I can't remember....I think it was IVIG?

If it is steroids...man I would take off the job, as being in a school really puts you at risk. If it is IVIG, then you should be fine. I stayed away from kids when I was on the IV roids, and my kid had a waiver for the chicken pox shot.

BTW-I am having esophagus problems like crazy...I am going to look up Barretts. I am going to call my GI guy this week....my esophagus is actually 'making noises', pills are getting stuck, coming back up, air gets stuck...sheesh. I started sleeping on a slant and it still isn't helping. (I have not just the neuropathy but the myopathy as you do. I am assuming this gurgling and other stuff is related.)

Roxie, how long are you going to have the IV treatments?
My Mom had a Picc line in her arm for a short term hospital stay.
She didn't like it, but she was very fragile. Later she had a Central line (triple lumen) and it had to be flushed daily, even after she came home. The supplies to flush it were not cheap either.
I have a MediPort and at first it was sore, but since I need long term (more than 1 year) IV treatments, the port was the way to go for me.
Both PICC lines and Central lines have tubing that hangs outside the skin. A port is inserted under the skin, and while you still get poked, at least they don't have to dig for a vein.
It does make a difference who accesses it. Mine is for chemo and the chemo nurse can access it and most times I don't feel it much, but I had a nurse at the hospital access it for anesthesia use, and it hurt like the dickens.

HI Cyclopes,
Your esophagus problems sound dreadful! I've gone through most of that and now am doing fairly well.....but then again we bought an adjustable bed and I sleep sitting up. The bed has been a lifesaver for me! I was in terrible pain prior to getting the Tempurpedic King-split adjustable bed. I have Barrett's esophagus.....and recently had the new cutting edge procudure called the Halo procedure. I've been doing really well since I had the 2nd part of the Halo done. My mother had the swallowing problems and pain in the middle of her back....that's where my burning pain is also.......some people's is in front but ours is in our backs.
I think you need to see a Gastro dr. and get an Endoscopy scheduled so he can see exactly what's going on. Let me know how you are doing.......this stuff is NO fun at all!

HI Brenda!
I think I'll have the IVIG indefinently at this point. I've had it for 9 months so far. My veins are just in very bad shape right now and the infusions are very painful now. Tomorrow I'll see my dr. to see what he wants me to do but I'm guessing it'll be the PICC line or something similar. I'm not looking forward to it but can't go on like I have been.
Thanks for all the info......I'll let y'all know what the dr. says tomorrow.