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12-29-2007, 09:38 PM | #11 | ||
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Junior Member
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I have been taking 2000 mcg of methylcobalamin daily since July. It hasn't helped. The glucose test I had was called HGBAlc. I will ask about the OGTT. I called around to different neurologists in my area and none even take appointments from patients, only from doctors, so I will have to go thru my PCP even though my insurance doesn't require a referral. I want to find a neurologist that will help me and do the tests required. I feel helpless knowing it will take months to get into see another one plus I have no idea who to go to in my area. The closest neurologist on the neurology.org site is about 3 hrs. away so I may call and see what kind of wait time he has. Thanks everyone for all this information. I have so much to learn.
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12-29-2007, 10:51 PM | #12 | ||
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Senior Member
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Hi elsie, with my burning feet this skin itself was normal temperature to touch, but there is a condition called erythromelalgia were the actual skin temperature does increase, you may like to have a look at this site.
http://dermnetnz.org/vascular/erythromelalgia.html good luck Brian |
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12-29-2007, 11:07 PM | #13 | |||
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Wisest Elder Ever
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Here who had this extreme hot feet from a drug side effect from a common
blood pressure drug: Verapamil. This is a calcium channel blocker and as such I suspect other ones may also contribute Cardizem Norvasc ProCardia For burning I'd suggest also a trial for a month with high dose vit B1 Thiamine. This really helps me. Thiamine historically has been suggested for neuropathy, but the big guns Neurontin etc have squeezed it out. It still works, and is inexpensive and non toxic. You'd need at least 200-300mg daily in divided doses. If after a month you don't see results, then you can stop it. Applying ointments and creams with menthol in them also helps. I use BioFreeze. Also I had a treatment for vaginal Candidiasis and it really took down my burning significantly. Yeast infection (including GI tract) release alot of aldehydes into the body (like alcohol) and they overload the dehydrogenases which eliminate them. A sign of overload is burning/flushing skin. (this is the reaction of Antabuse and Flagyl as well). Thiamine supports and improves the metabolism of aldehydes. Some foods will also flush the skin and cause burning...foods that release histamine. Quote:
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12-29-2007, 11:24 PM | #14 | ||
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Junior Member
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The internal burning is present 24/7. My feet only get hot to the touch when I am on them and have shoes and socks on. It never happens when I am barefoot. I will try the B1 and thanks Brian for the link.
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12-29-2007, 11:37 PM | #15 | ||
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Senior Member
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I see, then it's very typical of small fibre damage, the small nerves function is to interpret the sensation of heat, cold & pain, there many here that can't stand wearing socks and shoes.
When you find a neuro that is PN savy you might want to ask if any cancellations come up you might be able to take them, they don't like loosing money.lol. Last edited by Brian; 12-29-2007 at 11:59 PM. Reason: added info |
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12-30-2007, 01:07 AM | #16 | |||
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Quote:
Not fun, but certainly not boring. fanfaire
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Sjogren's, neuropathy, gastroparesis, diabetes, celiac, Raynaud's, hypothyroidism, fibromyalgia, chronic myofascial pain, periodic limb movement disorder |
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12-30-2007, 03:58 PM | #17 | ||
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Senior Member
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Your very welcome Fanfaire, in the early days of my pn, one doc perscribed 6 Celebrex a day which at that time did help me as well, it's mind boggling this PN stuff.
Brian |
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12-31-2007, 08:37 AM | #18 | |||
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Member
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Darn, I have to get to work. Raynauds can make your feet burn too? I am waking up with the soles of my feet on fire, not hot to the touch, bur feeling like they are on fire. This is new to me, something I have not experienced yet, I dont think anyways!!!!!
Always something huh? My raynauds has been flaring though, but has always effected my fingers.
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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