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Old 01-08-2008, 07:57 PM #11
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HI J!
I'll bet you're right.......the dr. was probably glad to see us leave! LOL But at least he sat there and let us ask him all the questions on our list and explained things well and asked if we had any other questions. I feel pretty good about him and the surgery.

HI Billye! Good to hear from you! Thank you for the good wishes!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-09-2008, 12:08 AM #12
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I didn't have a hard time, it was the fear of the unknown,you did a great
job with your questions. Bless you heart and give Mike a hug. He sounds
great.. Hugs Sue
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Old 01-09-2008, 10:18 AM #13
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Default Hi Roxie

I have been offline quite a bit over the holidays and have not caught up yet. When I saw the posting, "Port Surgeon" I could not figure out what that was about and was trying somehow to connect that to the water I know you are not all that far from... Doctor on a ship maybe? Doctor who was a sailor perhaps??? It is times like this that makes me aware of how screwy brain fog can be...

Have a good day. I am sure you will do just great!

Cathie
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Old 01-09-2008, 10:38 PM #14
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Default Roxie i had a PIC

while in the hospital for a month. They poisoned my body during an operation. I had to antibiotics 24 hours a day for two weeks. They put a PIC in my arm for the meds and i had no trouble at all. It had 3 ports and sometimes i had 2 meds at once. I thank GOD someone invented the PIC.

I will pray for you. George
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Old 01-10-2008, 06:52 AM #15
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Default Go get 'em, Roxie.

Just keep your wits about you, and don't hesitate to speak up if soemthing seems to not be going quite right, either during or after . . .
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Old 01-10-2008, 11:20 AM #16
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I wish I had advice or more to add. Just to use your voice and ask for what you need from docs and family/friends. I am sending so many hugs and you are such an inspiration to keep fighting. I have so many role models on this board. I am lucky. Now sending many hugs and you are always in my thoughts!
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Old 01-10-2008, 08:36 PM #17
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Smile port pain?

I don't know if this will help, but my daughter is 5 and has had two infusiport placements.
It is a simple surgery and takes barely anytime at all.
I don't know about us wimpy adults but she was playing and doing fine is 36 hours after surgery and we used the port hours after the surgery to make sure it is working. Just be sure to know your needle size and your heperin solution so if you have to have it accessed for any reason you can and it makes it easy. It needs to be accessed at least once every 4-5 weeks to keep it working.
She had Ostegenesis Imperfecta of a moderate to severe type. "OI" is brittle bone disorder and she has had 10 breaks about 50 fractures 14 bone surgeries and 4-5 child hood type surgeries.
Ports are wonderful as long as they are cared for properly.
You replace them mainly when they stop working or if they become infected.
God Bless,
Cristy
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God Bless,
Cristy
mom of 5
had fusion in c4/5 May of 07
pain in shoulder possible surgery coming up.
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Old 01-10-2008, 10:04 PM #18
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Hi All!
Thank you for your wishes. I'm ready for my surgery tomorrow and I have confidence in the surgeon. My husband will be with me tomorrow and we are hoping all goes well. I will let y'all know how it goes....Hugs to all of you! Y'all are the best!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-10-2008, 10:26 PM #19
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Good Luck Roxie.

Take care, and keep calm. You'll be fine!!!

melody
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Old 01-10-2008, 11:06 PM #20
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HI Cristy!
I tried to PM you but you can't receive PM.......darn!
Anyway, I can't imagine all you've gone thru with your daughter and her illness! My hat's off to you! My granddaughter was born with out a bladder so I know how difficult that is to deal with....and she's doing really well right now.
Thank you for your post!
__________________

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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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