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Tomorrow I meet with the Port surgeon.........

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Old 01-07-2008, 07:50 PM #1
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Default Tomorrow I meet with the Port surgeon.........
Does anyone have any questions I should make sure to ask him???
I have to admit.....I've had 12 major surgeries in my life.....but this one has me a little queezy! I've never had one even similar to this one so not sure what all I should ask the surgeon tomorrow........
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-07-2008, 08:02 PM #2
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Hi Rox.

How are you doing? I'm sure others will come and tell you what to ask your doc, but I just wanted to wish you well.

You take care,

Melody
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Old 01-07-2008, 08:06 PM #3
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HI Mel!
Thank you!
Mike is going with me to the appt tomorrow.......and I'm very glad of that! I'm just very nervous about having this done.
How are you and Alan....guess you survived the holidaze! Loved all the videos y'all made!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-07-2008, 09:07 PM #4
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Roxie,

Please tell me you saw the one where Alan sings the song Celebrate???

I never laughed so hard in all my life.

mel
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Old 01-07-2008, 09:27 PM #5
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Yep Mel, I sure saw it......and laughed and laughed and enjoyed it!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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"Thanks for this!" says:
MelodyL (01-07-2008)
Old 01-07-2008, 09:40 PM #6
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Default OH My Roxie! I am soo glad!
All the 'experiences' I've had to learn from were from cancer patients...and one CIDP'er....
I guess, I'd go down a menu of questions I've picked up from meeting and reading about others' experiences...
1- How long is it gonna really HURT? Days, weeks, what?
2- When can I USE this thing?
3- How will I know that nurses are infusing me correctly?
4- How long is this thing gonna last? And, if I've got to get a new one, what will that entail?
Last
5- How can I tell if there is a problem, of any kind? What should I look out for in the short and long run? Admit your'e immune compromised and that you want to know about all the possibles...not that you will have them, just that you and your Mike want to know and be alert for possible problems, so's to avoid them...
Honestly? I am kind of jealous! It seems like a humane way to deal with infusions and bad veins! OK I AM plain jealous! 's truly! - j
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