I do belive many diseases whomp you with it...then in efforts to 'cure' you or 'help your pain', you can be made worse. When you are not getting all the medical, pharmaceutical and physical support you need it becomes harder still?
I do know at my onset with the CIDP [diganosed 14 months later, after hospital admission] I was released from the hospital with only a Cane and a script for neurontin... PT consisted only of an OT certifying that I could 'walk' [albiet in a harness of some sort]. It WAS exhausting to walk less than 12 feet from where I was to the bathroom and back...equalled a 2 hour nap. Trips to the kitchen, a 20 foot walk, deserved a 3 hour nap! Mostly I attributed it all to the meds I was on, plus whatever was going on in me. It didn't take a 'rocket-surgeon' to figure out that IF I didn't persue a diagnosis while I could still drive...and get help, I'd be a goner. But, I got the help and am not 'gone'...yet.
Apparently from all you've posted in the past, is that docs..well think you are too complicated? Lazy docs...Obviously they have forgotten that silly 'oath' they pledge to?
As for exhaustion, You have to rest...learn your limits and push them only little bits at a time. We ALL want to OVERACHIEVE at times? Goodness knows we all try..then complain here about it? With good cause for all reasons!

I only hope you can hang in there until some help of some sort arrives? - ALL from ME! - j