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Old 01-13-2008, 08:58 AM #21
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I have a new saying.


ROXIE HAS MOXIE.

If you don't know what that means, just look it up.

It means you are a brave person.

And thanks for the info on the port. I had absolutely no clue what it looked like.

Wishing you the best,

Love ya,

Melody
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Old 01-13-2008, 10:00 AM #22
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Good Morning All!
Well today the new port incision doesn't hurt as bad as it did the past cpl of days, it just feels like a sore cut. I've read too that it's good to use the port soon after getting it put in so I hope Monday is soon enough. I'll let y'all know.

Daniella, my friend, I know you have gone through SO much with dr.s and clinics. It's sure not been easy for you! I hope you find a good dr. soon who will listen to you and help you with your pain. Good luck to you!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-13-2008, 11:12 AM #23
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HUGS and I am so glad it is feeling better today. I hope it continues too.
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Old 01-13-2008, 07:20 PM #24
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Hey All........I'm a little queezy about having the new port accessed tomorrow......even tho I know I have the EMLA cream and all.....it's just kinda scary. The incision is still very tender, guess that doesn't help with my fear. I'm not exactly sure where they will access the port.....the top or bottom. I'm putting cream all over it so I make sure everything gets numb!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-13-2008, 08:16 PM #25
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I am sure it is natural to feel nervous. It is unknown but maybe you can ask them to explain it to you before they start. Be open with your fears and concerns. Hopefully this unknown will bring better times ahead and make things easier for you. When do you have the ivig tomorrow?If you are up to it let us know if not you are in our thoughts.Hang in there
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Old 01-13-2008, 08:24 PM #26
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Default Roxie? I feel that way every

TIME that needle comes near me? I've still got some 'good' veins left...so I'm told. {HUMPF!}
What I do, is just close my eyes, and IMAGINE REALLY HARD That...I'm on that perfect beach, soaking up all the Vitamin D I can imagine, not sweating at all because the lite breeze is deliteful...and then Scrunch the eyes when..the needle goes in. But for you, probably the 'movements' of accessing the port site will be a bit similar at first and not to mention a trifle tender. You have to get that 'line' going tho, and up and running.
It's a bit scary, but I bet you are made of tougher stuff than most of us! - j
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Old 01-13-2008, 08:32 PM #27
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Thanks ladies.......I need a peptalk tonight, I guess. I'll be glad after they have the line in tomorrow and it's running ok. I know the first time is always scary.....I'll work on that beach scene with the light breeze! LOL Thanks again!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-13-2008, 10:33 PM #28
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Default Don't forget those famous balloons!!

You can tie them to the beach umbrella. I need a little sun and if they come untied, so be it, I'd like to float somewhere where nothing touches me but the wind, sun and peace.

O.K. NOW!!! Pull those shoulders back, lift up that chin and paste a big smile on your face. You CAN do it. It's natural to be a little worried. But soon it will be old hat and you will be telling someone else about how to do it.

Hope everything goes well tomorrow.(lightly)

Billye
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Old 01-13-2008, 10:57 PM #29
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Default You got it soo right!

Billye! Only thing missing is that BIG slushy drink w/an umbrella in it...plus the straw.

Close your eyes..and keep saying? 'There's no place like home!' Only you ARE home?

Sometimes, if you THINK it to be good, it will be good, even tho it's gonna be good anyhow....All that mind over matter stuff, does at times, work. This is one key one. More hugs - j
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Old 01-14-2008, 12:06 AM #30
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Default Roxie

It will work or i send you a ticket to Mo. and we will hit the slot machines,
it will two of us to use the thing...lol When we win enough I'll send you home.
Hmmm i've never been gambling before,but i'm sure we will have fun,Bob
is very funny...Bless you honey your doing fine..I just glad they have
those things. Hugs Sue
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