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01-23-2008, 10:28 PM
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#11 | ||
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Junior Member
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Roxie, I use to take elmiron orally but it caused some bad side effects so I instill it directly into my bladder along with marcaine and sodium bicarb. I try to do these treatments daily and they do help. However, I've gotten several bladder infections as a result of the instills and I wonder if the levaquin I've taken for the infections could have caused the neuropathy. I read on the levaquin site where neuropathy can be a rare side effect. I'm so glad the elmiron is helping you! I wish you the best of luck also!
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01-23-2008, 10:35 PM
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#12 | |||
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Elsie,
That's great that you can do the instills......I've never had the guts to try that. I'd never heard that about Levaquin......but I don't doubt it. So many things we take cause so many side effects.....and then we start mixing drugs.....and who knows what all that does to the body.....it can't be a good thing! I know I'm lucky to be able to take Elmiron without all the side effects... and never did loose my hair and am SO thankful about that! I do wish I knew what caused my Neuropathy......but guess I'll never know 
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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01-23-2008, 11:55 PM
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#13 | ||
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Senior Member
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Susan I just love those slippers they don't hurt,and these Drs.
in the hospital all they do is repeat same questions .Put it in the puter and read it..Roxie I wish I knew,we could all get rich and get out of this place. Wait a min. did I just sing a song...:confused Hugs Sue |
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01-24-2008, 11:22 AM
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#14 | |||
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Wise Elder
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Okay, I'll bite.
What is an Instill??? Melody
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. CONSUMER REPORTER SPROUT-LADY . |
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01-24-2008, 11:27 AM
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#15 | |||
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Member
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Mel,
An Instill is medication put into the bladder thru a catherater.......and you do that at home yourself......OUCH!!
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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01-24-2008, 05:33 PM
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#16 | |||
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Wise Elder
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You do it at home??? with a catheter??
you mean like where you place a tampon?? Oh, I think I get it. I once had bladder problems and I had to get a cystoscope, and he put a tube inside me (using water), it didn't hurt, but when he was finished, and I had to go pee, my god, the burning... Some people do this to themselves?????? I'm confused. Melody
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. CONSUMER REPORTER SPROUT-LADY . |
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01-24-2008, 05:45 PM
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#17 | |||
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Member
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You put the cath in your urethra to put the medicine in the instillation into your bladder. Yep they do it themselves, at home......but I never had the nerve! LOL
__________________
. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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01-24-2008, 05:50 PM
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#18 | ||
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Senior Member
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Nope in the little hole you pee out of,that's brave and tricky. Could
do it years ago not now,but the Dr. just did...Hope this didn't offend oh the h-ll with it. Elsie your a strong person,but we all are in our own way..Hugs Sue |
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01-24-2008, 06:39 PM
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#19 | ||
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Junior Member
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LOL! I got a chuckle out of this thread. It's really not that bad and its not painful. I think I could do it with my eyes closed!
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01-24-2008, 07:14 PM
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#20 | ||
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Senior Member
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Well as a nurse i could do it with my eyes wide open,now there to dry
you wouldn't call me lol..  I might get the wrong spot,that'sa ouch...Hugs to all Sue |
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