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Old 02-13-2008, 05:53 PM #1
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Default HI All.......Still trying to figure out........

the pain I've had since my bladder surgery this past Dec. I had a cystoscopy last week and it didn't show a problem.......then had a pelvic MRI yesterday and will get the results from it tomorrow. The bladder pain seems to makes the PN pain even worse.
I talked to my psychiatrist about trying Cymbalta for pain and depression. I'd tried it a year ago and it really bothered my stomach.......but wanted to try it again. So I'm on 30mg. once a day and still taking Lyrica as I did before. Next week I'll start 60mg of Cymbalta as long as it doesn't bother my stomach.
Also I talked with some of you about my heel/ankle pain. Well I had an MRI for that and xrays.....saw the Orthopedic dr. and he gave me the Cortisone shot and it's helped quite a bit. Then I saw a Podiatrist last week and he said my tendon is torn lengthwise and torn from the muscle. He ordered Orthotics for me and said this tendon will sometimes heal itself once the stress is off it....so I have my fingers crossed that it heals.
Sorry I haven't been around lately.....seems like I live at the dr.s offices!
I hope everyone is doing ok........I need to catch up on all the posts here.......Happy Valentine's day everyone! Tomorrow is our (me and Mike) 4 yr anniversary!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 02-13-2008, 07:18 PM #2
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Glad to see you posting again, Roxie. Cortisone shots do wonders, it is getting one that is NOT too fun though.

Happy Anniversary to you and Mike and a Happy Valentine's Day.

I was wondering one thing, if you know. Is it possible to have PN of the bladder? I was told that they thought I had IC, but no biopsy was ever done. See if you can try Urelle, if you haven't already. Urimax was great for this, but for some reason, it is not on the market any more.

(This makes me suspicious, expecially when the company tells me they cannot find a supplier...) Hmmm. Supplier rhymes with LIAR...

Cathie
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"Thanks for this!" says:
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Old 02-13-2008, 07:20 PM #3
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Default OH Roxie!

I've been worried about you as we'd not heard much since your surgery. I'm glad you are still kicking rocks, but not so about the pain...About that all, sure sounds as if you have been very busy trying to but a block to it all tho!
Yes, don't think that being depressed rite now is 'abnormal'. It is not! You have been thru a lot and still HURT a lot. Who wouldn't be depressed? 's good and kind person. I am pulling for you and not only hope but believe that some sort of peace with your pain will come soon.
We've survived this long, haven't we? - j

PS May YOUR valentine surprise you in some silly but small way. Those are the best.
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Old 02-13-2008, 07:32 PM #4
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Welcome back...I was wondering about you....I decided to call in sick on here....kinda like my job....LOL, but you guys don't yell at me....and I can't get fired.
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Old 02-13-2008, 07:56 PM #5
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Default Whoosh!

Roxie,
I'm so glad to hear from you. But I'm so sorry you are still suffering. I just finished a urodynamic bladder test and am having problems. Reading your post realllly has me nervous. I sure hope you have some relief soon.

Billye
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Old 02-13-2008, 08:05 PM #6
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OH gosh Billye! I've had urodynamic done 4 times thru the years and hate it more everytime I have it done! I feel for you! I hope I have some relief soon too. I'm SO tired of all this pain!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 02-14-2008, 01:40 AM #7
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I probably should know this, but what is a urodynamic bladder test done for?

I don't know how Urelle works, but if it is like Urimax, I think it might have methylene blue in it, which may cause some numbing. I don't know if that is right or not for sure, but it does help. In fact, I noticed that it seems to help with some of the overall burning, not just the bladder...

Hope you get some relief...

By the way, Roxie are you still working? I was wondering how your job was going for you.

Cathie
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Old 02-13-2008, 08:02 PM #8
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HI All good to hear from ya!
Cathie, not sure if the bladder can have PN but at this point I wouldn't be surprised! Nothing surprises me anymore! I've never heard of Urelle but will check on it.
Hi J! I've missed y'all just haven't had the energy to get on the site. I've truely felt like I've lived at dr. offices! And then once a week having my infusion.....I'm tired!
HI Cyclelops, You won't be fired....we'd miss you!
__________________

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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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