NeuroTalk Support Groups - Definition of PN?

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- - Definition of PN? (https://www.neurotalk.org/peripheral-neuropathy/39709-definition-pn.html)

Mrs D, a question.
Does the surgical route always have to be taken
to cure/reduce CTS symptoms?
I've had CTS for years & its getting slowly, progressively worse.
My orthopedic surgeon has been giving me cortisone shots about once a year for the last 3 yrs, but he says it can get so bad that even surgery won't help.
(I'm staving off the surgery, for a number of different reasons - mostly cause I can't take the long 'down time' of not working during recuperation.)
But he's a surgeon. His job is cutting, that's what he likes to do.
(and gets a hefty chunk if income from doing)
The cortisone & P-5-P help a lot, but is there a non-surgical way
to reverse the progression? Supplements? Therapy? Anything?

So, now that we are on this subject--my friend Kev has numb fingers and has a hard time playing guitar anymore. He cant feel where his fingers are. Is there anything he can take that may help get some of that feeling back? He is a type 2 diabetic with neuropathy. He is taking 3000mcg of B12 daily, I did get him going on that.

You play string instruments...and this is hard on the hands. My son is already having troubles.

I would suggest you try the Benfotiamine... Since it came down drastically in price I can now afford it. (SAMe takes up alot of my budget in that respect).

It has been wonderful for me. I have always needed the thiamine. This is working better. I can have "pressure" palsies at times sleeping, and they have gone away. For best results I use 300mg a day. I've tried going back to 150, but over time I get some arm falling asleep at night.

You can try wearing the carpal tunnel braces at night when you are sleeping.
They work for me. When I garden alot, or use tools/sanding etc I get little flare ups and use the braces at night. They keep your hands in a position that does not pinch the nerve, so it can heal etc.

I have problems with salt, MSG etc too.

I had the "cortisone' shot during my pregnancy, on my right hand only. Since I was so impaired I could not function. It worked, and after I delivered I was good enough to go without further surgery thoughts about 3 days after my C-section. If I do any heavy work with rock, garden, or twisting of hands, I will get a flare up.

I think surgery should be a last resort. While it seems more accurate now with the lasers they use, it still can go wrong...and I am basically a surgical chicken!! :rolleyes:

Thanks for the information. Quite an extensive and interesting list of possibilities. I'd never heard of any of these causes...
I've had wrist/hand pains & numbness for years, but never wanted to complain about it, (incase I lost my job at the time!) I just thought (and have been told by others) that carpal tunnel developes from repetitive work (RSI), and I know that I have done a lot of repetitive jobs for over 20 years, and also I write/type/sketch/paint and have other hobbies that put strain on the wrists and hands. I also now have arthritis in most joints, so I'm sure that doesn't help things...
I'll ask about some of these possible causes at my next appointment, but I'm sure my Neurologist will probably think I'm crazy!:o lol

Quote:

Originally Posted by mrsd (Post 222849)

is metabolic in nature.

Low thyroid function deposits a substance under the tendons that pinches off the carpal and tarsal tunnels giving the symptoms.

Fluid retention can also cause this. I have found that P5P..a special B6 is very useful for this. Also one gets fluid retention with thiamine problems.
Thiamine 200-300mg a day may help. Or the newer Benfotiamine 150 - 300mg a day (which I switched to recently), is also good. It in fact seems better to me for this edema/fluid issue. Benfotiamine is a special form of thiamine, and also over the counter. You will most likely have to get it online, I have never seen it in stores.
It has just become more affordable too. I get mine at iherb.com

Also hormones will cause carpal tunnel. When I was pregnant I had a terrible time and lost both hands, and couldn't even sign my name. Much of it resolved after delivery, but it returned as just irritating.(instead of debilitating).
So if you take birth control pills or estrogen, you might see carpal tunnel.
This is rather like the pregnancy effects.

If you are gluten sensitive or have other food intolerances, you may see carpal tunnel effects too. Right now I am reacting to nightshades dramatically. (potatoes give me burning). Eliminating a suspected culprit... for 2 weeks and reintroducing it, and getting symptoms is the telling sign.
I would start with gluten first, since it is most common. Then move on to others if you don't react to gluten. Nightshades (tomato peppers potato), Lily family (garlic onion), Corn, dairy, soy are the most common others.

I think, along with some scientists that carpal tunnel is a symptom that something in your metabolic profile is not working right. I think you have to be a detective to target it.

Some other things: If you take drugs for your other issues, some of them may be depleting you of nutrients.
This might show up as carpal tunnel.
And also, eating MSG contain foods (monosodium glutamate) stimulates the nervous system in a negative way.
So check your labels. Restaurant food typically adds this heavily...so anything that tastes really good and seductive
when you eat out can be loaded with this additive. Soups especially or seasoned fries, etc.

If it is CTS, you'll be best off getting a referral
from your neuro to an orthopedic doc.

My neuro is quite against doing surgeries on small fiber neuropathics, to fix 'neuro' issues, as he feels they are generally not very successful, due to the nature of small fiber. Now that is not to say if it is 'simple' carpal tunnel, (no small fiber) that surgery would not be successful. It would not be successful for me, because of the SNF. If you don't have SFN, it could be successful, but I would try all other options first.

Quote:

Originally Posted by mrsd (Post 222883)

You play string instruments...and this is hard on the hands. My son is already having troubles.

I would suggest you try the Benfotiamine... Since it came down drastically in price I can now afford it. (SAMe takes up alot of my budget in that respect).
.............I can have "pressure" palsies at times sleeping, and they have gone away. For best results I use 300mg a day. I
.........You can try wearing the carpal tunnel braces at night when you are sleeping.
They work for me.

Thanks for the info, Mrs D.
Yup, I've had to put the guitars on the 'back burner' for quite a while, now. Altho it is easier to play the classical acoustic one with nylon strings (Classical/Flamenco guitar style doesn't use picks), than the heavier tension of the steel stringed acoustic ones. Even with light tension strings. I don't have, or play electrics, with super-slinky xtra-light strings.
I've taken up the Clawhammer style banjo, lately (past 18+ mos). Lower tension strings and can be tuned down even lower. No picks are used. I'm considering an old time repro model with nylgut strings for even less tension. Any of them are much easier to play than my guitars. My left hand just doesn't have the grip or strength and my right gets numb and I lose/drop the pick.

I'll try the 300 mgs Benfotiamine. I do take 100 mgs of regular B1 (thiamine) daily, tho. Maybe a switch will help.

I do wear a brace every nite on my R wrist while sleeping, but still get the numbness/pain waking me up, and the L is starting to get a bit worse.
Any suggestions on brand (lowest cost, but still good quality) at iherb?
Thanks again,

I chose Doctor's Best brand.

for the benfotiamine.
http://www.iherb.com/ProductDetails.aspx?c=1&pid=42

Jaime--- If you were not given these options by your doctor, it is clear to me he does not know about them! Otherwise you'd know them already!
Don't expect doctors to know common sense things, things others have discovered. Most of them stay pretty insulated, in their own little world.

I didn't know there were other options or causes before now, so that's why it has never been mentioned. The cause I said is obvious, and that's the only one talked about so far. I haven't even talked with my GP about it at all yet. It was my neurologist who I talked with and it was he who sent me for the NCS, after all, I see him every month.
It's all new to me, so obviously I don't know what questions to ask...

Quote:

Originally Posted by mrsd (Post 223806)

Jamie read though all of the posts more then once,since I have the issues
with the hands,I am so glad you posted..I miss drumming,a great stress reliever. Then start writing down your questions and speak up..I had a
messed up sugery on my feet. Since then I really try to find other options,
but thats me. Mrs.d gave you such good options before jumping into
aanything drastic..Good luck Sue