[BEGLET]

Hi folks. Havent posted much lately - first got major case of flu with high fever that flattened me for weeks in December - then stomach flu righ after that which still seems to be taking a toll, and I dont know what else but still feel very sick and weak....

Couple questions - the only places I've been since beginning of December are docs - have a new "team" - they are very good and each trying their best to address their specialities... the GP has referred me to an actual motility specilaist in my area - which is very rare - and he knows his stuff - we have very few options left though on meds which I'm now trying (have gastropareiss due to autonomic PN) - I'm trying new meds and have continued to loose weight - getting kind scary but Medicare wont hospitalize someone unless I show severe malnutrition and I'm not at that point -just drastically losing weight and very weak. I can't even tolerate acid blockers which prior to PN were not an issue at all (Proton Pump Inhibitors could not tolerate before PN) The next step the doc wants to try is a gastric pacemaker - anyone with autonomic symtoms have this done??????

Saw a pain specialist for my back yesterday - he spent a great deal of time going over the adverse drug reactions I've had (which shows me he's going to be very diligent in this area) - wants to start with steroid injections which he's even hesitant about because we dont know what will happen with the med.... but at this point we've got to try something because one needs to be able to sit up to function....

See new neuro next week - hoping for a complete evaul (hopefully this will be a good thing - need to start IVIG again but have to get gut in better shape first)..

Since PN onset - have any of you had a drastic increase in allergies to "stuff" in general???? (I had testing only once in my life for allergies, right after I got PN, and had reaction to about 80% of everything tested for, and to top if off went into shock after the testing - the doc refuesed to give me allergy shots cause of the risk) Would this be typical for an auto-immune PN? How about mediction tolerance? And recovery from the creeping grunge (the flu or???????) If so - how have you dealt with this?

I know there are lots of questions here - but hope maybe a few can shed some light.... I'm fighting as hard as I an to gain some weight and get stronger - but keep making myself sicker