Deb and Billye thanks to the both of you,i've really got to do something.
Monica when I became a diabetic at a very young age,the diet was
hard to learn,and telling people how much I would love to eat all the goodies
I really had to take care of myself,they would respone ok or just
what am I going to feed you,I would say no problem You have many
good fooods right there on your table,i'll just help myself..
Now it's so much easier to find things surgar free ,but you must read
lables..

I am giving it a try in a few weeks as well..When your young you just don't
want to hurt feelings,but I promise you most people don't want you
sick..What ever you decide I wish you luck,you sound like a lovely
young lady,but I really don't agree with that statement your Dr. made,
It might make me think about checking out another and keep the diet.
Hugs to all Sue

Sue is so right! It may be time for a new doctor. A doctor like her will never stand behind you and your gluten free status. You have to take gluten free meds too and she has to understand that. My doctor has a list to refer too. I sometimes have to remind them of my gluten free status, they are busy, but then they will look at the list that I provided them with and will prescribe from the list. I will not take a med that I can not have. I can't, it's not that I won't, I can't. You have to look at gluten as poison, as should your doctor and she doesn't. When the doctor at least tries to understand, then you have a beginning. Your doctor isn't understanding you.

Keep with the gluten free. Don't give up.

Hey All,

Pardon me for jumping in. But I wonder about gluten issues as well. I have an appointment with my Gastro doc next week. So, besides having PN or in my case Central Pain, WHAT are the symptoms. I know I could go and look it up; guess I am just lazy at the moment. :) I do have Gastritis and GERD and have been told a mild form of IBS. But here is a new issue I found very interesting. I also have a fractured, arthritic and basically bent coccyx. A PM came online the other day and told me to google and read up on the ganglion that sits behind that...part of the sympathetic nervous system. So, I did...and ran across an article that stated, I THINK it was the sacral nerves 2 and 3 that can affect your gut!!! :eek: Anyway, the whole post was about myself having alternating constipation and diahrea which pretty much goes hand in hand with IBS. But now...this coccyx problem really makes me wonder. Anyway, any advice or knowledge about this that you can give me would be greatly appreciated. Oops, and I should add...I tried Miralax for constipation and it made me soooo sick. Then I had some Nulev tablets for the cramping which works wonders....including helping the pelvic floor problem. But the nausea and such is something else. What tests do they do to determine if it is Celiac?

I use
 

Ginger extract capsules for the nausea caused by my twisted stomach and intestines (malrotation). It works far better than any other drug I have used in the past 40 yrs for nausea.

Another thing that can cause irritable bowel, is fructose intolerance.
Some people get gas and diarrhea from that too.
http://en.wikipedia.org/wiki/Fructose_malabsorption
examine your foods that you eat, and see if you react to fructose.
It is in fruit juices, apple especially. Honey, anything sweetened by processed foods.

I really started reacting to honey...about 6mos ago. So I did a major fructose,
removal and no more "episodes".

I can tolerate a little, if eaten with other things...but very little.
I have NEVER been able to eat pears, and some fresh fruit all my life.
Doctors blamed my malrotation, but now I have sort of zeroed in on fructose.
Who would have thought?

I've spent my whole life trying to fix my GI issues...and it always boils down to
food intolerance.

I know you are out of the us but I feel with nutrient issues the key is to work with someone who specializes in that area. This meaning a doc and if you can see a nutritionist who deals with gluten issues. It can make the world of difference. When I was in my ed and to get into recovery I saw nutritionist who had no clue about ed and really it became harmful. When you have special need you really need someone who has a lot of knowledge. See to me if you have gluten issues eating it would be unhealthy not what that doc said. Of course if you are unbalanced then you will develop other issues. As for others when I was eating a high calorie diet I got a lot of comments and input. People are trying to help even if it doesn't. For me I just said I had health issue and am working with doctors to get well. You could say the similar and people should respect that. Unfortunatly we live ina world of idiots too. Being young is hard because friends don't understand always because they will eat a box of donuts for breakfast with a beer without a thought. You have to focus on your needs and health. When I get comments or the pushy people I self talk and remind myself what I need to do to be healthy and you too. I agree it is your choice but if you do stay on the gluten free maybe work on ways to make it more enjoyable and that way you can be excited about it. There are some fun blogs too and I bet even with young people going through the same issues.Hang in there.

Just for informational purposes--
 

--the general first line serological tests for gluten sensitivity/celiac are:

Anti-gliadin IgA
Anti-gliadin IgG
Anti-transglutaminase IgA
Total IgA

The first three are antibody tests; the fourth is to determine if one is IgA deficient, which can, if one is, throw off the other IgA test values.

The most specific is the third, but the first two are more sensitive. In fact, a number of people with non-celiac gluten sensitivity show up with an isolated high anti-gliadin reading, which may also be more associated with the neurological consequences of gluten sensitivity.

One should really go peruse the Gluten File that Cara--jcccglutenfree--has compiled to read a lot of the research on this (I especially recommend the papers by Dr. Hadjivassiliou):

http://jccglutenfree.googlepages.com/diagnostictesting

http://jccglutenfree.googlepages.com...niggantibodies

Thank you all for your support and ecouragement. I really needed it because both my neuro and my nutritionist told me gluten was not really the onw to blame. I don't really know wether it is or not, but if it can give me some releif or avoid future problems, i will stick to the gluten free diet.

Billey, do you really bake your own bread?? How do you do it??? I was told about a person in my city who sells gluten free bread. So can bread be totally gluten free?? I mean, should i trust the protein is completely withdrawn from the wheat. This bread looks flat, which leads me to think it has no gluten, but is this to trust???


About the meds, how can i know if the meds i take are gluten free?? I am currently on lyrica, imuran and novotiral, do you know if these meds are gluten free?? or How can i find out???

Thank you for being around:)

Monica--gluten free bread does not have wheat in it. Wheat can never be gluten free, wheat is gluten, gluten is wheat--it's the same thing. Wheat, rye, barley--they all are gluten. A gluten free bread is made with flours made from a different grain source, such as: corn flour, soy flour, rice flour, bean flour, or maybe potato flour.

You need to read some good books about gluten free foods. Never let someone convince you that their "wheat" bread is gluten free, because it isn't possible. OK? Many people make their own breads using a bread maker. There are even gluten free bread mixes out there to buy. Check out the forums I listed earlier for the best mixes or good recipes.

almost
 

I think I'm almost totally gluten free. My labs were negative, and my genetic testing, which is extremely accurate, basically is against my having celiac. On the other hand, I do not digest wheat well, and I have enough GI problems without adding what wheat does.

So, I have cut out all products that I know to have wheat, and eat mainly fresh food. I do eat some processed foods (canned soup, for instance, ketchup, soy sauce, things that would appear to not require gluten), so I figure my gluten load is low, but not zero.

I'm not sure what I'd gain from reading the fine print and eliminating the small quantities of processed foods.

mrsd thank you for bringing up the ginger,i brought this up to
my brother,he said what's wrong with you,that was the best
thing med we ever took,i'm still taking it,don't you rem .telling me to
take it year's ago well no...when he stop's laughing and being rude,
i will talk to him again. sue