I've only had two-3 plain old sonograms done on my thyroid, and one biopsy ages ago...each worse than the one before. So, I guess I got off easy? Even so, my thyroid sono's said my thyroid was shot, now totally shot. At least, for 90-95% of us the therapies are fairly easy with synthroid or other similar meds. Trick is to get the dosage JUST rite! It took me about 3 years of 'adjusting' to get things on track and stable. Then I got this silly CIDP and it went OFF again [recent tests show the thyroid got 'wholly and truly dead']. I think we are now on track again, but, one never knows truly....do they?
Roxie? Just cause it all seems scary and you feel like the pits, keep faith that things CAN and will be patched together right! It sounds like you have docs that are working hard for you and trying to solve all the problems you are having.... 's - j