[Silverlady]

I'll be glad to post this elsewhere but I wasn't sure where to put it. You all know I've been dealing with multiple sacral and pelvic stress fractures since Oct of 2007. I got the results of the latest pelvic CT scan yesterday and it is worse than it was the last time. The pubic bone on the right side is misaligned and will not heal in this position. I have a new one that has opened up on the wing of the ilium toward the sacroilliac joint. The others are in various stages of healing or breaking. I've been taking Forteo for 4 months and I'm still breaking. But how will the edges of the one that is misaligned ever meet up and heal.

I made an appt. with the Metabolic Bone Clinic at SWestern Medical Center in Dallas. A big medical university where they are teaching our doctors. I saw the professor of the Clinic with 3 medical students. No hands on exam. He wanted me to stop my Forteo and let him do a bunch of testing. I'm 4 months into a 2 year program. I'm not stopping until that 2 year period is over. So we ageed he'd leave an open door and to call if I changed my mind. He also agreed to send a letter with his findings (? what findings), suggestions and testing he thought should be done. This was to go to my Rheumatologist who referred me to him.

I get my copy of the letter on Monday. It's addressed to the neuro I saw at SWestern over 3 years ago. He mentioned during the interview that he'd send him the letter and I corrected him then. Obviously wasn't listening to me. He then stated I had told him I had had bilateral fractured knees. No...bi-lateral knee replacements. He said I didn't seem in any distress. I stood up from my wheelchair multiple times during the interview because I was hurting too badly to sit. And he ended the interview by tellling me he'd send a letter suggesting tests that should be run to investigate. The letter mentioned no test suggestions. I blew the ceiling off the top of my kitchen when I read that ridiculous letter. So I phoned the office, got the correct person on the line and made her day. So now I've received the corrected version of the letter and it still has fractured knees in it but the rest of it has been straightened out and the correct doctor is getting it (I hope). So I'm not anxious to go back to that place again. That is my second terrible experience with them. I will not return again. Wasted time and money.

But back to the original problem. I have a bone that cannot mend. It's not physically possible. My bladder has no support which is causing problems too. And the pain from all of this is just unreal. Do any of you have any suggestions for how they can repair this break or what type of doctor to see? I don't even know where to start.

Billye

[fanfaire]

I must admit I'm stumped, but I'm also furious on your behalf. Why should anyone take his recommendations seriously if he doesn't even know or care what bones are broken?? And he says you're in no apparent distress - does he think you're in a wheelchair for FUN?

I wish I had something more constructive to say. My heart is breaking for you.

fanfaire

[Jomar]

so they can't align the bones and put screws in it?
Or do they think that wouldn't work?
Why can't they go in a and surgically support the bladder?
I knew of some ladies at work that had things like that done many many yrs ago.

sorry if I'm missing some details, but it seems that would be a logical step unless there is some reason that it is not an option.

[Yorkiemom]

I feel very badly for encouraging you to go over there. I was so in hopes that you would be able to get some of the bones cemented back together. You know, I emailed him about that; he never mentioned that there were problems from that...

As you know, I saw the same doctor before you did. I now am questioning some of the recommendations that were made, one thing was reducing my calcium intake (could be because of kidney stones though.)

I have already gotten my Internist to rerun the 24 h urine for uric acid that was done there ...

I have had earlier problems at the school, but they were in the Dept. of Neurology.

I am just appalled that this happened and regret that I recommended this. I hope you can forgive me... When he said he knew of someone there who could cement (or was it glue) the bones back together, I was so excited for you.

Cathie

[Kathi49]

My recommendation...a good spinal doc; preferrably and OSS along with a GOOD Urogyn and even a spinal PM. I have written before a few times and grant you I don't have stress fractures. I do have a fractured coccyx and minor prolapses. But between my PM and Urogyn they have pretty much sorted it out. And, yes, I know...my issues are different. But the sit pain can be awful! But since you are speaking of the sacrum, illium, sacroilliac joint, and bladder. These are the docs I would see. Oops, I did want to mention the bladder. My prolapses are actually minor and are a cystocele and rectocele. The thing I found out later is that if they were to do the repairs, they would attach the sling at the sacrum! And that is precisely where I have nerve damage or lumbar/sacral pain. So, I am holding off and doing pelvic floor PT to release spasms caused by the nerve damage. So far so good because the prolapses are actually being helped by this. And it will be injections for the coccyx because it has been recommended to NEVER have that removed. I wish I could be of more help.

[mrsD]

I saw a program on TV that said "soon" there will be a cement that doctors
will inject into a broken bone and you can go home with no cast...no support.

I don't know where this is being trialed however.

http://news-service.stanford.edu/new...onecement.html

Your weight bearing area would be more problematic.

Do you have a hip replacement on that side? I forgot if you have hip
replacements too?